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Just started PRP serum....

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  • Gerri55455
    replied
    Hi Steve, How have you been? It would be great to hear about your progress with PRP. After travelling to Chicago several times to get my serum compounded there, I resorted to making my own some time last year, then stopped. I'm thinking of going back to making my own serum again as my eyes have been quite irritated lately. I would love to hear how your eyes are doing!

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  • Gerri55455
    replied
    Hi Steve,
    Originally posted by steveyez View Post
    It was acknowledged that I needed Autologous Serum and had been properly prescribed it by a suitable NHS official but i still did not fit the unique criteria and the door was firmly shut on me.
    I'm very sorry to read this.
    Neal Matthews, who's also posted on this site, makes his own serum because what is most available in the US compounding pharmacies is 20% serum. He believes the saline solution causes a lot of the burning side effects. http://www.youtube.com/watch?v=3kmTTfGFQgQ

    http://www.dryeyezone.com/talk/showt...-saved-my-eyes

    I am not confident about making my own serum, though. So I'm paying $295 for a three month supply of 20% serum. My insurance does not cover this but I am able to use my pre-tax money (through what is known here as a Flexible Spending Account-FSA) to buy my serum. In this regard, I am very lucky. Had I developed the very severe problems I've had the last year some 2-3 years ago, I would have lost my job. Then I'd really be in terrible trouble. I really hope the NHS issues is sorted out and you can get your AS without having to take all the trouble. Thanks again for sharing. ~Gerri

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  • steveyez
    replied
    I'll post this once then its off my chest - its so ludicrous its like a scene from Catch 22

    Just over a year ago i got turned down for Individual Funding by NHS South Warwickshire Clinical Commissioning Group based in Warwick, England

    I appealed and was told I was not eligible for NHS funding for Autologous Serum because i was not "unique" because they already funded someone else for Autologous Serum in the area and therefore i was not unique and was not entitled for funding!

    It was acknowledged that I needed Autologous Serum and had been properly prescribed it by a suitable NHS official but i still did not fit the unique criteria and the door was firmly shut on me.

    If it wasnt so important i would have asked the question which came first the chicken or the egg ;-)

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  • steveyez
    replied
    Hi Gerri

    You're right there is a difference - i use PRP ( Platelet Rich Plasma ) purely because i live in England and even though i was prescribed Autologous Serum via the NHS, the local area i live in England does not fund Autologous Serum. The cost difference is 6000 per year for Autologous Serum as opposed to 600 for PRP. But i have to pay for flights to Alicante in Spain every 3 months but Alicante is a nice place and always sunny and the PRP is doing me a lot of good ;-)

    My opthamologist in Birmingham is really pushing for the NHS to sort out the postcode lottery we have in England where some people in certain areas of England get Autologous Serum free via the NHS and people in other areas with the same needs dont get Autologous Serum free via the NHS.

    All the best with the Autologous Serum
    Best Regards
    Steve

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  • Gerri55455
    replied
    Steve,
    Originally posted by steveyez View Post
    you can get them all on the NHS in England
    Thanks for response. I live in the upper midwest (USA) where I get Refresh Celluvisic from my local store but I'd have to order Vismed Gel from Amazon. No problem, though. I can do that easily. On another note, from the threads above, I'm realizing there is a different between autologous serum tears and PRP serum(?). A quick search on the internet seems to confirm this difference. Which of the two do you use? If you use (or have used) autologous serum (which is what I'm using), did you use/are you using 100% serum or less. Mine is 20% and I've definitely felt some improvement the two weeks I've been on it. But I would like to try 100% when my current supply runs out. Thanks. ~Gerri

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  • steveyez
    replied
    Hi Gerry

    Yes I've tried Refresh Celluvisc and for me Vismed and Vismed Gel work better - you can get them all on the NHS in England

    Best Regards
    Steve

    Leave a comment:


  • steveyez
    replied
    Hi DryLonder

    My story is pretty much the same as Lizlou put
    "No, I got PRP serum in Alicante, Spain. I asked about getting it on the NHS but it would have taken a long time (I was told up to a year to get approval)."

    For me i would love to be able to get PRP in England - Ive been prescribed Autologous Serum by my NHS opthamologist but unfortunately the NHS will not fund Autlogous Serum in Warwickshire or the West Midlands for anyone new since the end of 2012

    If you hear of anyway of getting PRP in England then please let me know

    Best Regards
    Steve

    Leave a comment:


  • Gerri55455
    replied
    Hi again Steve,
    Originally posted by steveyez View Post
    ( i use vismed gel ) not long afterwards and that rebalances things."
    Quick question: have you tried Refresh Celluvisic? If so, how does Vismed gel compare to the former? I have Refresh Celluvisic and would have to order Vismed online so I'm just wondering? Thanks! ~Gerri

    Leave a comment:


  • Gerri55455
    replied
    Originally posted by No tears in ATL View Post
    my autologous serum burns also. BUT I have found that I have got to cool that eye down before I put anything in them in to reduce the stinging. .
    Hello, so glad to be reading these. My tears have been burning and stinging a lot but I have tried everything so this is all that is left for me now. What's your update a year later? Thanks so much. Gerri

    Leave a comment:


  • Gerri55455
    replied
    Thanks again Steve,
    Originally posted by steveyez View Post
    to me it feels like the Serum / PRP is the standout performer so to speak but it literally is painful slow progress but a year ago i doubted any progress was possible so there's definetly hope.
    It really does something to a suffering soul to hear words that resonate with my current feelings. So I'll keep hoping. Very much appreciate the encouragement. Cheers!!

    Leave a comment:


  • lizlou29
    replied
    Originally posted by DryLondoner View Post
    Steveyez and Lizlou, did you get the serum on the NHS or have to go abroad to get it?

    Steveyez - I hated commuting to work this summer (even more than normal), in the winter it was ok, but suddenly one day all the windows on the tube were open and my eyes were not happy!
    No, I got PRP serum in Alicante, Spain. I asked about getting it on the NHS but it would have taken a long time (I was told up to a year to get approval).

    Leave a comment:


  • DryLondoner
    replied
    Steveyez and Lizlou, did you get the serum on the NHS or have to go abroad to get it?

    Steveyez - I hated commuting to work this summer (even more than normal), in the winter it was ok, but suddenly one day all the windows on the tube were open and my eyes were not happy!

    Leave a comment:


  • steveyez
    replied
    Hi Gerri

    I understand what you're saying totally. Its only looking back at things Ive struggled with like the wind in the tube in London over several months Ive struggled to cope with it that i realise i am actually making progress - its only natural to want to be better instantly - I'm just the same.

    Ive benefited from a great opthamologist (in Birmingham, England) and recently had MGD Probing done, regularly take Omega 3 tablets, regularly do Hot Compresses etc but to me it feels like the Serum / PRP is the standout performer so to speak but it literally is painful slow progress but a year ago i doubted any progress was possible so there's definetly hope.

    Cheers Steve

    Leave a comment:


  • Gerri55455
    replied
    Steve, thank you so very much for taking the time to write. I've oscillated between hope and despair since beginning the serum 10 days ago but I must say that it does calm the severe corneal neuralgia that I've had since developing side effects from steroids. If I had to use it for that alone, I gladly would. But I keep hoping that the dryness will gradually subside. After trying everything this past year, the Serum and hope are all I have left. Thanks for the tips on vismed gel. I'll try it. Best, ~Gerri

    Leave a comment:


  • lizlou29
    replied
    Originally posted by Gerri55455 View Post
    lizlou, hi:

    I began the serum a week ago and was expecting more. My eyes feel even drier so I'm a little discouraged. What has your experience been? Thanks so much. ~Gerri
    Unfortunately I stopped it as it just made my eyes so uncomfortable. It was like putting salty water in them and it made my eyes too uncomfortable to work (they are always uncomfortable but this was horrible). Seems I am in the minority though. As others said give it time. I tried for a while but just couldn't get used to it.

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