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2 Month followup with cornea specialist.....

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  • vivian3090
    replied
    Thank you all,
    I'm sorry I went off like that. All I can say is that frustration can make you say things that come out wrong or rude!

    All I really want is to get to a place in the situation where I'm more comfortable....Self-concous wise, pain wise, drop wise...EVERYTHING-wise really! It's taken a toll on my schooling...I am a straight A student...and this semester may be the first semster I don't get all A's b/c I'm in so much pain and the dryness is at its worst late at night, which is the only time i can study ( I work a full time job as well during the day). I just want a more comfortable life.

    And No Tears in ATL, I got your PM! Thank you! I will respond to it soon, I am trying to get a bit of studying done before my poor eyes give up on me for the night.

    Leave a comment:


  • No tears in ATL
    replied
    Vivian, I sent you a PM.

    Leave a comment:


  • Rebecca Petris
    replied
    Originally posted by villfan22 View Post
    I had the flu last week... but my eyes were feeling the best they have for months! ...I wonder if anyone else has bad similar experiences
    Oh yeah. There's a gazillion posts like this from over the years. It's probably a combination of factors but personally I bet the increase in mucous when you're sick makes a big difference to comfort.

    Leave a comment:


  • villfan22
    replied
    Originally posted by bakunin View Post
    We know what you mean. I think we all feel the same.

    I got a flu this week and yesterday and today my eyes are really good, almost normal.. no burning feeling, even under AC. I wish science could explain that. Probably if scientists understood what happens to my eyes when my throat is inflammed I would have a solution to my dry eyes symptoms.
    Sorry to change tac, but this is interesting. I had the flu last week, well man flu is probably more accurate, even so I was streaming from my nose but my eyes were feeling the best they have for months! Short lived as now fine and eyes back to 'normal'. So, either the cold virus itself improved the eyes, having a streaming cold took my mind off my eyes, or the medications, paracetamol, anti-congestants somehow improved my eyes. I wonder if anyone else has bad similar experiences

    Leave a comment:


  • tornado
    replied
    ello everyone, I'm an Italian patient in venice, here we are not talking about these issues, I would like to know if among you there are people who are positive Schirmer test. I am completely without tears and aqsciutto, I use the drops, and my eyes are fine, I noticed that at intervals of 1 month my Western are full of sand, and I also see how if I had a white veil in front, I do inpacchi of fresh water for relief, sometimes I take off my eyeballs so I ended up suffering, many of you were subjected to the treatment of lipoflow? and if it works in cases like me, I hope to dear friends, thank you all
    mooris sos

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  • SAAG
    replied
    Hey Vivian, please don't take anyone's posts as criticism for being worried about how dry eye is affecting your appearance. It's normal to dwell on that for a time, and I think most of us have gone through it.

    Anyhow, for what it's worth, when my eyes were at their worst, I had to force myself to ignore my appearance - I went from a girl who wore makeup religiously, to never wearing any, having dark circles under my eyes now exposed for all the world to see, plus red eyes all the time - I totally get that it sucks. To get around that, I just chose to never look in the mirror unless I knew it was under flattering lighting conditions haha... sounds stupid probably, but it helped.

    Luckily, as I found things that helped my eyes to function better, the redness improved also - I can now go out under even flourescent lighting and, on a good eye day, my eyes will appear pretty much normal. Very cool since a few years ago that would never, ever, happen. So, keep on looking for treatments that will help your eyes heal over the long term - I bet as your tear function improves, the appearance of your eyes will improve right along with it. It may very well take a long time, but in the big scheme of your life, it's a blip... so try to take a long term view and ignore the now as best you can.

    ((((hugs))))

    Leave a comment:


  • robster
    replied
    No worries. I did edit my original response as I thought it was too harsh, but not before you quoted it! Everyone on here has major dry eye issues and I really hope you can find the help you need. As FG says we're in this together and people who reply to your thread are only trying to help.

    Leave a comment:


  • jenny2008
    replied
    i just have to say Rebecca--you are not Frumpy! You are an attractive lady!
    I am 37 and i often feel my looks have gone cause of my eyes and little makeup i can wear--
    but i look at pics later and i think-'nah'.. this is probably how i would have aged anyway. i look good still! for my age.lol

    and vivian you are very pretty! but i know how it is or how it was to be young-... i still get that way about my looks alot.. esp on dates!!! yikes...

    Leave a comment:


  • farmgirl
    replied
    Wow Vivian, if you have self esteem issues they sure can't be related to your looks - at least based on what I can see on your picture you are a knockout.

    I get why you would take Rebecca's comments personally but I don't think it was intended that way. I urge you to heed her advice, she is very knowledgeable and I really don't think her advice was directed specifically at you it is just plain sage advice for anyone with dry eye and it came in on your post.

    I know what it is like to put drops in every 10-15 min because they are so dry they burn. I have been there, done that and I have concluded that I didn't actually need the drops every 10-15 min because of the dryness, but rather that it relieves the burning and stinging for about that length of time. I know we have discussed the serum drops and I really recommend you up that from 20% to 50% at least for the short term. They have done a lot to help me heal. I don't know if you have had plugs in but I recommend getting them on both upper and lowers while you are in this phase, if you haven't already (at least in your bad eye). That has helped me more than anything else that I have done and I have gone from drops every 10-15 min like you to sometimes only the serum and restasis in a day of late. I have Sjogrens and am told I will never get better. I wish you luck, you still have hope of recovery and hopefully one day this will all be a dim bad memory.

    Remember we are all in this together....cheers...F/G

    Leave a comment:


  • vivian3090
    replied
    Originally posted by robster View Post
    I think your response is rude to the people that have tried to offer you advice on this thread and other threads. My response was not meant to be rude and I'm sorry you've taken it that way.
    I'm just frustrated that everyone is trying to tell me to not worry about the redness factor and to worry about other things. I do worry about my overall eye health. My left eye is so dry that I have trouble focusing on things, it gets so dry i can feel my lid scratchign up on my cornea, I know that is doing a lot of damage, and I am afraid of what all this is going to do for me in the long run if things dont get better, if i cannot find some dryness relief.

    I apologize for my rudeness as well, but for you guys to say redness of my eye should be the least of my worries felt like a slap in the face. I know you don't know my situation, but I have major self esteem issues. ANd granted i should have remembered that you guys DONT know my issues other than from what I post on here, but regardless it made me a bit upset. I'm sorry.

    Leave a comment:


  • robster
    replied
    No one is shrugging your situation off. I read all the posts in the open forum and people are always replying to the threads you start with good helpful advice. I think your response is rude in particular to Rebecca who always does her best to offer good unbiased advice. My response was not meant to be demeaning to you or your problems.

    Leave a comment:


  • Tankie
    replied
    I totally understand the physical appearance thing. I know I'm a guy, but it's still a really big deal for me too and it bothered me greatly. For about 10 months I went around wearing swimming goggles, and after that I had the worst wrinkles under my eyes, and then I had very strange looking eyes after my surgeries while they healed. It totally is a big deal, and it definitely affects your self-esteem immensely. Thank goodness I've recovered since then. I don't think anyone is intentionally trying to say that appearance doesn't matter, but instead, everyone is trying to help and give encouragement and the best advice they can. We're all friends here =)

    Leave a comment:


  • vivian3090
    replied
    The redness is not the main driving factor but yes it is a factor.... but it's not that easy for me to be OKAY with the redness appearance of my left eye. Is that a crime??

    It's not that simple to just change the way you think about a situation when you've had self esteem issues all your life.

    I mean how would you guys like to have to be putting in drops EVERY 10 or 15 minutes? You of all people should be understanding about how someone feels regarding the "constant worrying and feelings" about your eyes. If I don't put drops in they start to burn, sting, and I will get a head ache.....So No it's NOT all about the redness. It's about getting my eyes healed. I'm sorry that you guys think I may be being stupid for being upset over my left eye constantly being red and dry; but that's me and I'd appreciate you guys don't put me down for being upset about my eye being red constantly along with the dryness.

    I come on here to read people's stories, get tips and get hope restored in me and this is a place where i feel are the only people who understand; but posts like these make me feel like you guys are shrugging my situation off and nobody understands.I feel like you are saying "your situation isn't bad, it'll be okay, just put some drops in it."

    Leave a comment:


  • robster
    replied
    Agree 100% with Rebecca about the appearance being the last of the priorities. Ever since my LASIK I have had two massive red veins in my left eye that are always there but 90% of my dry eye issues are with my right eye which looks far better than my left eye but feels far worse. I would rather have two eyes that look like my left eye than have two eyes that feel like my right eye.

    Leave a comment:


  • Rebecca Petris
    replied
    I agree that redness should not be the driving factor in treatment.

    I'm going to interject with a little 'philosophy' here - my personal opinion about approaching these things:

    1) Ocular surface health trumps all
    i.e. DON'T do anything damaging to the tear film / ocular surface health, even if it makes you temporarily feel or look better. Just don't. Period. DO do the things that will improve the surface long-term even if it means some short term comfort sacrifices - within reason of course.

    2) Comfort comes next
    Drops, compresses, naps, whatever floats your boat always with the caveat that it doesn't violate #1

    3) Appearance comes last
    Easy for me to say because I'm 43 and frumpy? Sure, but I still think I'm right If you let yourself be guided by this at all you'll almost always be violating #1 either by using stuff you shouldn't or failing to use things you should because your yardstick is always how it affects your redness in an immediate sense.

    Leave a comment:

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