Announcement

Collapse
No announcement yet.

So lost and confused

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • So lost and confused

    Hi everyone, I'm glad to have found this supportive forum since I don't think anyone else really understands what we're going through!

    I'm a 26-year-old female who had worn contacts for a decade until recently. I saw a tiny white dot on my right iris a few months ago and my optometrist told me it was a corneal ulcer probably from over-wearing contacts. She prescribed me a steroid drop to take for 4 days. It healed but left a tiny scar that wasn't visible to the naked eye. I was also told to stay away from contacts for a month and to use Refresh Plus tears 4x a day since she saw dry spots.

    Things went all right for 3 weeks. For the last week before I could wear contacts again I had a 3 day weekend where I suppose I used the computer for way too long because my eyes became painful (like a pulling sensation or soreness), so dry, vein-y, and light sensitive. I used to be all right with looking at a computer with maximum brightness but now I turn it all the way down. Well, I took a break from the computer all together (I could barely stand looking at it) and felt a lot better, so I proceeded to try contact lens at the 1 month mark. I wore it for 3 hours only because it didn't really feel comfortable. When I took it out my eyes had a bit of pinkness (like a cloud) on one side of my iris. I went back to my optometrist and she said that my eyes were just dry - no infections, no allergies, and that I should just wear glasses from now on.

    A week or two later I headed to see an ophthalmologist anyway since I wanted a 2nd opinion. I was using artificial tears 6x a day at this point. The day of my appointment I used it 2x before seeing the doctor. They checked my eye pressure, dilated my pupils, flipped my eyelids, and looked at my eyes from every angle but found nothing. I was told my eyes were "very healthy" and that "they don't look dry"... I asked, "Would I have to use artificial tears forever?" and she said to just keep using it until I managed to cut down. As for contact lens she actually told me I could start wearing them anytime.

    I don't understand because my eyes don't feel like they were before the infection. Aside from the dryness, my eyes feel cold - like there's wind blowing into them when I walk around. Sometimes itchy. Once in a while I'll feel the pulling/sore sensation again or slight blurriness. For my right eye (the one that was infected), I'll find white mucus (it looks like dried white paint) on the outer corner and I can hear myself blink. The dryness is worst when I first wake up (sometimes it's okay, other times it feels gritty).

    I did some reading on here and thought maybe I should see my ophthalmologist again for a dry eye evaluation. However, my primary care doctor thinks that since they thought everything was fine the first time that I should just keep using tears 4x/day for at least another 3 months. She thinks my tear film is unstable because the ulcer scar isn't making everything smooth.. but then I don't get why my left eye feels these symptoms, too and not just my right eye?

    I bought a sleeping mask, started taking flaxseed oil 1300mg and washing my eyelash line with diluted baby shampoo/water everyday, doing hot compresses a few times a week, and using artificial tears 4x/day. Should I try using a night time ointment? Is there anything else I should do..? The doctors just keep telling me to give it time and I'm concerned if maybe that isn't enough.

    I have been sticking to glasses, which really killed my self-esteem but I guess I'm getting used to it.. I'd love to be able to wear contacts again and not even for full time wear like I did previously (I'm too scared, haha) but it'd be nice for a night out or for special occasions.. but I really don't know if that's possible. I've been feeling all sorts of negative emotions since this all happened - the stress, anxiety, depression, etc. so thank you so much for taking the time to read all of this. If anyone has any advice or suggestions, I'd greatly appreciate it.

  • #2
    Hey Teary,

    Dry eye centers are opening up in many cities across the country, staffed with optometrist who focus on dry eyes. Having taken my daughter to a number of them I have found that these doctors typically know FAR more about diagnosing and treating dry eyes than a standard optometrist. With that said, you may have a systemic issue like a hormonal imbalance or a leaky gut that is leading to fat malabsorption, and the dry eye doctors seem to know little about these issues. You may need to dig deeper with your primary care physician or go to a naturopathic physician. I hope you get to the root cause quickly with a dry eye doctor, but don't stop there if they don't have the answer!

    Good luck!
    Thanks, DryEyeDad
    *21-year-old has DE since 14. NOMGD getting worse; Can express thick oil; 4-6 MG dropouts per lid. Mono at 11 and 14; Candida at 17; knee/foot pain, SIBO and Chronic Lyme now

    Comment


    • #3
      Hiya, welcome to the forum. I completely understand how you must be feeling and the worry that your optometrist might be missing something is natural since advice does differ from professional's with dryeyes particularly. I would advice you to see a specialist in dry eye too. Not someone who says they know what it is, but someone supportive and has experience in it if possible.
      There are other options that may help some in the mean time, humidifier in the room you sleep, avoiding screens for a while, lid scrub is good as you need to keep you lids clean, since drops can leave residue and encourage bacteria on the lash line and drink lots too.
      People have recovered, so can we.
      www.twitter.com/EyeGirlfriend)

      Comment


      • #4
        dryeyedad - I haven't heard of leaky gut but I will look into that as well as finding a dry eye specialist in my city. Thanks for all of the suggestions and kind words!

        waterbee - Thanks for the warm welcome and for all of the tips! I never knew drops could leave residue, encouraging bacteria.. sounds kind of frightening :S and I'll definitely make sure to hydrate enough, too.

        Comment


        • #5
          Teary824, how are you holding up now? I too have had issues since overwearing my contacts. I did not have an ulcer, but I got terrible red blood vessels in one eye all of a sudden and took out my contacts right away when I saw it. I didn't have terribly dry eyes yet at that point (my only complaint before was the redness) until after the optometrist gave me Neo-Poly-Dex drops. The day after I stopped the drops I had the terrible dryness in the morning which led to terrible dryness during the day. I finally went to see an opthalmologist a couple of weeks later and he put me on Lotemax and Restasis plus lower punctal plugs. I have seen some improvement so far with the Lotemax, while waiting for Restasis to kick in. I still don't know how I went from being fine one day to getting these horribly dry eyes the next..

          Comment


          • #6
            Hi elbliss, it's been a really long journey for me because of not finding the right doctors. I went to many regular opthalmologists who thought I was normal when I KNEW something was wrong. It took me 3-4 months to find a dry eye specialist but she diagnosed me wrong, too :/ I went to a new one a few days ago, who taught me how to do massages and that helped a lot. I'm sorry you're going through this as well. It's crazy how things can just change one day.

            Comment


            • #7
              Teary824 Did the last doctor diagnose you with MGD ? The Dr. I went to is supposedly a dry eye specialist and he assured me that I was just aqueous deficient (not producing enough tears) due to inflammation. I'm guessing the inflammation was started by overwearing my contacts and putting my eyes through too much computer use. I work at home on the computer. I am 31, so relatively young like you. I'm at my 2 week mark with Lotemax + Restasis + plugs and have seen more improvement, although I still need to put in drops several times a day, but don't feel the need to every half hour to hour like before. I am hoping we can both improve from this with time.

              Comment


              • #8
                Computer use hormones and many other causes, contacts too. I'd work on what you are doing, maybe ask about restasis and other things mentioned above, I think I can say for nearly everyone that one day this just happened to us too and wishing it didn't. Now it's just to find an effective treatment now. Good luck I'm still find another thing that helps me, sorry i wasn't more useful but most things are said already.

                Comment


                • #9
                  elbliss - Yes, both doctors diagnosed me with MGD. My tears evaporate because of the oil issue, I'm not aqueous deficient. Hopefully we can improve back as close to normal again. Will you continue wearing contacts?

                  Comment


                  • #10
                    Teary824 the specialist was very positive and assured me I could wear contacts as soon as I was off the steroid, but my eyes still do no look normal. I have a web of blood vessels, especially in my right eye that were not there before. I was also diagnosed with corneal neovascularization so that puts more fear into me trying out contacts again. If I do, I will probably wait many more months (hopefully by then the Restasis will be doing it's job) and use daily's for special occasions only. It sucks, because I was so used to contacts and am having to get used to wearing glasses 24/7 now and I miss my contacts.

                    Comment

                    Working...
                    X