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My dry eye story and recent LIPIFLOW consultation

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  • My dry eye story and recent LIPIFLOW consultation

    Hi all,


    Just been reading through everyone's posts and I'm feeling really inspired.


    MY DRY EYE BACKGROUND


    I have had dry eye symptoms for about 10 years now and trace it back to a beach volleyball game where I got a mixture of sweat / sun lotion in my eyes which led to a small infection. The infection was cleared up with chloramphenicol but my dry eye story started


    For initial couple of years doctors / consultants / opticians in UK never took complaint very seriously and I tried a concoction of eye drops which provided limited relief. Eyelids were visibly red, itchy and dry and I could no longer where contact lenses.

    I saw one specialist who confirmed my eyes were dry and did a couple of tests but concluded, "some people just have dry eyes

    One optician suggested I may have MGD (this was then confirmed by a number of opticians / optometrists over the years) and for the last few years heat treatment and eyelid hygiene had vastly improved my dry eye but it is still impacts my quality of life.


    2019 LIPI FLOW CONSULTATION

    This year my dry eye has really impacted my quality of life so when I saw that LIPIFLOW is now available in Manchester, England I thought this may be the answer and was happy to pay 800 if it made my problem go away.

    At my consultation the following was confirmed-
    1. My oil levels in my eyes were low at 60 (I don't know the unit of measure) compared to a normal 100
    2. I don't blink very well. IN my right eye 7/9 blinks were partial!
    3. TO my surprise my Meibomian glands are healthy and not blocked!!

    Another thing - optician suggested I should use preservative free HYCO SAN extra eye drops but although I get some instant relief I find these drops can paradoxically dry my eyes out and make them feel clogged.


    NEXT STEPS


    So now I find myself trawling through the posts on this awesome forum and being inspired by the community's amazing stories but I need a PLAN.

    One of the common themes I have read in the posts is DIET, DIET, DIET. SO first thing I will be experimenting with is what I eat. Staying hydrated and taking omegas including flax will be first thing and trying to consciously improve my blinking!

    QUESTIONS FOR THE COMMUNITY


    Does have anyone have any advice?

    Why would my oil levels be low even though my glands are healthy? Diet?

    Does anyone else find that eye drops can make their dry eye worse?

    When I drink beer my eyes feel better - what is that all about??

    I generally wake up with dry eyes - can anyone recommend any sleep masks / solutions?

  • #2
    Very interested to hear your story. Have you had your lip flow? Is your doctor able to express clear oil when examining your eyes?

    Comment


    • #3
      Hi Linda,

      The optometrist didn’t recommend I go ahead with Lipiflow due to scan showing glands were not blocked - surprising as every other optician I have seen (even recently) suggested that they were.

      I think MGs can be visibly and perhaps sometimes superficially blocked on the surface of the eyelid but still functioning.

      She didn’t confirm glands were producing clear oil but I didn’t ask. Having read the dry eye 101 post I now wish I had gone to the consultation armed with better, more direct questions. I had, naively, assumed that my MGs would be blocked and that Lipiflow would be the answer.

      i am now going to do some more detailed research and glean as much information from the community. I will also closely monitor my diet, up my omegas and seek out a proven dry eye specialist in UK. @everyone any recommendations??

      I asked the Lipiflow optometrist did she specialise in dry eye and told her my stories of seeing various eye specialists who were not in fact “dry eye specialists” a subtle but important difference.

      She admitted her focus was laser eye and Lipiflow was just something else that she does.

      A couple of things I have learned:

      1. Just because someone is a specialist they may not be a dry eye specialist or passionate about finding dry eye solutions
      2. When it come to your own dry eyes, YOU are the specialist as everyone is unique. You just need an engaged optometrist who can listen to your story and offer professional guidance.

      Comment


      • #4
        nick84 Regarding waking up with dry eyes, keep a humidifier running from the time you go to bed in your bedroom. I'd bet you'll see a noticeable improvement. I just leave mine on my nightstand and you shouldn't have to spend more than $30US. I keep a humidifier in my living room as we'll as my cubicle at work. It's cheap and, in my humble opinion, effective.

        Comment


        • #5
          I can guess which UK high street LASIK butcher you went too based on your description. Don't bother with OE.

          Find a decent dry eye specialist. If you suspect MGD or bleth have a look at the dry eye clinic in Salford. They are expensive for lippiflow.

          If you don't mind traveling go to BBR in Hereford, only 550 after consultation.

          Comment

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