Recommendations for "dry eye" consultants at Moorfields

[Matt0029]

Diagnosis: dry eyes and MGD. Have four punctum cauterised. Waiting fitting of scleral lenses.
Current regime:
heat bag(microwaveable) for 10mins,
lid massage, lumecare lid wipe in the mornings.
Clinitas Soothe preservative free drops all day long...
Softacort x1 drop both eyes
Ciclosporin X1 drop both eyes.
vita pos ointment at bedtime.
ANYBODY OUT THERE WITH POSITIVE VIBES FOR THIS?

Do you use softacort long term?

[lizzyk]

Have you though of using EPP lenses? Downside is there is only one fitter in the UK, in Northampton I think.

What are EPP lenses please?

[Kehoe]

Diagnosis: dry eyes and MGD. Have four punctum cauterised. Waiting fitting of scleral lenses.
Current regime:
heat bag(microwaveable) for 10mins,
lid massage, lumecare lid wipe in the mornings.
Clinitas Soothe preservative free drops all day long...
Softacort x1 drop both eyes
Ciclosporin X1 drop both eyes.
vita pos ointment at bedtime.
ANYBODY OUT THERE WITH POSITIVE VIBES FOR THIS?

[Kehoe]

Waiting for scleral lenses to be made to measure.
Have dry eyes and four punctum are cauterised. Also told I have blepharitis / MGD.
Any helpful advice re treatments?

[jm95dryeye]

Excellent I also bitten the bullet. Going down on the 12th April.

I spoke to Brian for 20 minutes on the phone about dry eyes and scleral lenses. He comes across as very switched on and interested in helping.

Cost wise for EPP seemed reasonable to me but Brian doesn't want to dismiss standard scleral lenses before trying them.

Can you provide updates with how you get on? Also enquired at Northampton opticians. Thanks!

[quattroboy]

That's great. I'm staying positive as well. I looked up where exactly Northampton is, and it's only one hour by train from London, I had thought it was further than that. So I made an appointment to get scleral lenses at the EyePrintPro place. I'm not giving up on them just yet.

I've also found a surgeon in London that does CCH surgery so I'm going to see him as well.

Excellent I also bitten the bullet. Going down on the 12th April.

I spoke to Brian for 20 minutes on the phone about dry eyes and scleral lenses. He comes across as very switched on and interested in helping.

Cost wise for EPP seemed reasonable to me but Brian doesn't want to dismiss standard scleral lenses before trying them.

[Alix]

Very early days so hard to call. Only been a couple of weeks. But staying positive.

That's great. I'm staying positive as well. I looked up where exactly Northampton is, and it's only one hour by train from London, I had thought it was further than that. So I made an appointment to get scleral lenses at the EyePrintPro place. I'm not giving up on them just yet.

I've also found a surgeon in London that does CCH surgery so I'm going to see him as well.

[quattroboy]

You are lucky you have understanding bosses. Mine are not. How are the PRP drops going?

Very early days so hard to call. Only been a couple of weeks. But staying positive.

[Alix]

Yes I'm currently trying prp drop which I got from Spain. But they are the next option.

Like you I struggle at work with the screen time and AC. Hoping they will help.

My NHS consultant has them on his treatment plan, he's been very supportive,, so I may get some help funding them but not sure how that works. If not I'll pay the lot myself.

Northampton is about 2 hours on the train for me but more then happy to travel to solve this. Work have been excellent and I've been allowed extra time of work to attend appointments etc.

You are lucky you have understanding bosses. Mine are not. How are the PRP drops going?

[quattroboy]

Yes that would be ideal but I live too far away and I can't afford to take any more time off work. Are you still thinking about getting scleral lenses?

Yes I'm currently trying prp drop which I got from Spain. But they are the next option.

Like you I struggle at work with the screen time and AC. Hoping they will help.

My NHS consultant has them on his treatment plan, he's been very supportive,, so I may get some help funding them but not sure how that works. If not I'll pay the lot myself.

Northampton is about 2 hours on the train for me but more then happy to travel to solve this. Work have been excellent and I've been allowed extra time of work to attend appointments etc.

[Alix]

Have you though of using EPP lenses? Downside is there is only one fitter in the UK, in Northampton I think.

Yes that would be ideal but I live too far away and I can't afford to take any more time off work. Are you still thinking about getting scleral lenses?

[quattroboy]

Thank you for your advice. I’ll see what my fitter says. Maybe my underlying MGD issues are just too bad, but in any case I noticed yesterday when I tried them again and removed them that while my eyes were completely bloodshot again, there was a white ring around my corneas which means that you are right the fit is not correct, they are too tight.

Have you though of using EPP lenses? Downside is there is only one fitter in the UK, in Northampton I think.

[CJ L.]

Alix that's actually a silver lining: it's not your eyes, it's the sclerals. keep fighting the good fight.

[Alix]

Alix if you're seeing the debris that quickly they aren't fit correctly. I learned that between my second and third pair. When they don't fit correctly it allows space for debris to number one creep in and number two stay in, obviously obscuring vision and inducing pain. That happened to me. I don't know how they test the fit over there but in the States my doctor put an orange dye in my eyes with the lenses already on. He could then see how much and how quickly debris (in this case the dye) crept in between the sclerals and the eye. My concern on your end, without of course knowing your doctor, is they may not be testing the fit adequately. If it were me, I would ask how he tests for the correctness of the fit besides just giving them a quick look through his microscope device. Don't give up; I've learned the fitting process is exactly that: a process.

Thank you for your advice. I’ll see what my fitter says. Maybe my underlying MGD issues are just too bad, but in any case I noticed yesterday when I tried them again and removed them that while my eyes were completely bloodshot again, there was a white ring around my corneas which means that you are right the fit is not correct, they are too tight.

[CJ L.]

Alix if you're seeing the debris that quickly they aren't fit correctly. I learned that between my second and third pair. When they don't fit correctly it allows space for debris to number one creep in and number two stay in, obviously obscuring vision and inducing pain. That happened to me. I don't know how they test the fit over there but in the States my doctor put an orange dye in my eyes with the lenses already on. He could then see how much and how quickly debris (in this case the dye) crept in between the sclerals and the eye. My concern on your end, without of course knowing your doctor, is they may not be testing the fit adequately. If it were me, I would ask how he tests for the correctness of the fit besides just giving them a quick look through his microscope device. Don't give up; I've learned the fitting process is exactly that: a process.