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  • Originally posted by Dowork123 View Post
    SAAG Well, I have glaucoma. I have a ridge the doctor said. Which makes me prone to fluctuations in pressure. No clue what that means yet. But itís a genetic/structural thing. I also have a non typical nerve thatís thinning. So she said we cant even compare me to a normal nerve because mine looks so different. They also gave me an abrasion in my left eye checking my corneal thickness. That woman was unprofessional from that start. Next time Iím only allowing oressurevto be.cgecked with that ring. Not the pen. So mad about that and sad about the glaucoma ****kkkkkk

    i canít see right Iím so pissed. Came in with 20/15 vision both eyes now I canít read anything with my left. She ****ed me up bad.
    Did the technician do the blunder?

    This seems worrisome. What does the specialist say about the use of steroids in your case?

    ​​​​​​

    Comment


    • Originally posted by Milo007 View Post

      Did the technician do the blunder?

      This seems worrisome. What does the specialist say about the use of steroids in your case?

      ​​​​​​
      The technician ****ed it up. She did my right eye before the anesthetic kicked in and the way she was talking, I should have known. So next time, Iím going back to the old me, extremely aggressive and assertive. I am 100% sure now that most people do not care about my eyes. My doc did the same test on Friday and I said the same thing, please be careful of my left eye, and he was. Zero issues. My doctor and his team are about how I feel. This glaucoma tech didnít give a ****. Itís like she was flipping hash cakes at mc Donaldís, not testing people eyes. That said, thank god I can see today no problem. The corneal haze went away and Iím almost back to 20/20z that usually takes weeks, so to get better in less than 24 hours, thank god im happy fir that.

      Theyre not worried now becayse the pressure is 8 and 9 now. But I need to be monitored. The steroids did not cause this, itís a structural change to the disc on the back. Please bare with me as I donít really know anything about glaucoma yet. It they said thereís a disc cupping and a ridge on it, which makes me prone to fluctuating pressure because the drain in my eye closes. So sheís going to do a test where they dilate my eyes and see if the drain closes or not. So I have to be monitored for life now because of this erratic pressure change. I just canít believe my eyes were a ticking time bomb. It isnít just my lids and cornea. My whole eye is messed up.

      ler me say this too. Almost 20 years ago I went to an eye doctor once and she looked in the back of my eye and said, you have blood spots in there lie youíre being choked (maybe from sleep apnea?) but I never thought anything if it. No other doc ever mentioned it. So I know that has been happening my whole life. Iím betting the sleep apnea I had from ages 2 to 5 may have caused these structural changes. Who knows. Maybe I akways had them. Maybe this is my penance for my mom smoking with me when she was pregnant. No clue. But this is crazy. Almost every person in that office is elderly. Itís so hard to be me in that office. It doesnít feel right.

      Comment


      • Originally posted by Milo007 View Post

        This is something insanely remarkable! You have good genetics in this regard. I can't imagine IOP dropping from 25 to 8/9 just by weaning off steroids in such a short time. I think you reduced to dosage from once everyday to once every alternate day. Right?

        If that's working for you at least you have time to explore other options. I really hope the cpap machine reverses the laxity of your lids and you don't need the surgery. I am really happy that you have something positive to hold on to at the moment. Keeping my fingers crossed. Don't want to spoil the touchwood!
        Well maybe you missed it or I didnít put it on the thread. I was on glaucoma drops. For four days I was on the drops. I still think thatís insane even with the drops I didnít expect that low on 4 days. But yes, so happy I can use them. They feel like acid and fire, but they work. They hurt soooo bad. But only fir 5 mins.

        Comment


        • Originally posted by Dowork123 View Post

          Well maybe you missed it or I didnít put it on the thread. I was on glaucoma drops. For four days I was on the drops. I still think thatís insane even with the drops I didnít expect that low on 4 days. But yes, so happy I can use them. They feel like acid and fire, but they work. They hurt soooo bad. But only fir 5 mins.
          Oh man at least the glaucoma drops are working splendidly. That's some relief. It really sucks to know that the sleep apnea went undiagnosed for decades. Now I am afraid as well. For the the last few months in some nights I am waking up in the middle of my sleep feeling like I am choked. I take some heavy breaths after the sleep is disrupted and it happens several times on SOME nights. Could it be sleep apnea?

          It wasn't there before but after anxiety kicked in thanks to my dry eyes I am getting these. Horrible phase of our lives. Truly forgettable.

          Comment


          • Originally posted by Dowork123 View Post

            The technician ****ed it up. She did my right eye before the anesthetic kicked in and the way she was talking, I should have known. So next time, Iím going back to the old me, extremely aggressive and assertive. I am 100% sure now that most people do not care about my eyes. My doc did the same test on Friday and I said the same thing, please be careful of my left eye, and he was. Zero issues. My doctor and his team are about how I feel. This glaucoma tech didnít give a ****. Itís like she was flipping hash cakes at mc Donaldís, not testing people eyes. That said, thank god I can see today no problem. The corneal haze went away and Iím almost back to 20/20z that usually takes weeks, so to get better in less than 24 hours, thank god im happy fir that.

            Theyre not worried now becayse the pressure is 8 and 9 now. But I need to be monitored. The steroids did not cause this, itís a structural change to the disc on the back. Please bare with me as I donít really know anything about glaucoma yet. It they said thereís a disc cupping and a ridge on it, which makes me prone to fluctuating pressure because the drain in my eye closes. So sheís going to do a test where they dilate my eyes and see if the drain closes or not. So I have to be monitored for life now because of this erratic pressure change. I just canít believe my eyes were a ticking time bomb. It isnít just my lids and cornea. My whole eye is messed up.

            ler me say this too. Almost 20 years ago I went to an eye doctor once and she looked in the back of my eye and said, you have blood spots in there lie youíre being choked (maybe from sleep apnea?) but I never thought anything if it. No other doc ever mentioned it. So I know that has been happening my whole life. Iím betting the sleep apnea I had from ages 2 to 5 may have caused these structural changes. Who knows. Maybe I akways had them. Maybe this is my penance for my mom smoking with me when she was pregnant. No clue. But this is crazy. Almost every person in that office is elderly. Itís so hard to be me in that office. It doesnít feel right.
            To be honest I hate assistants and technicians in doctors offices. They are often insensitive, cruel and pretend to be over smart.Recently I went to my local eye clinic to have my IOP checked. I told the instrument operator my grandfather had glaucoma and my last IOP readings were high so please take at least three pairs of readings. The guy was rough and told me in a sarcastic manner "if there's something to worry about the doctor would resend you to me". I was pissed off really. It's not the doctor or him who's at risk anyway. The doctor didn't resend me for a re-evaluation even though the IOP was borderline high. So that pissed me off further.

            I am going to see a glaucoma specialist soon. I have a genetic possibility. Never thought my eyes would screw up my life this bad.

            ​​​

            Comment


            • Originally posted by Milo007 View Post

              To be honest I hate assistants and technicians in doctors offices. They are often insensitive, cruel and pretend to be over smart.Recently I went to my local eye clinic to have my IOP checked. I told the instrument operator my grandfather had glaucoma and my last IOP readings were high so please take at least three pairs of readings. The guy was rough and told me in a sarcastic manner "if there's something to worry about the doctor would resend you to me". I was pissed off really. It's not the doctor or him who's at risk anyway. The doctor didn't resend me for a re-evaluation even though the IOP was borderline high. So that pissed me off further.

              I am going to see a glaucoma specialist soon. I have a genetic possibility. Never thought my eyes would screw up my life this bad.

              ​​​
              Whatís crazy Milo is I think I knew I was going to have eye problems. I say that because I have always been overly sensitive about my eyes after having issues with contacts in my teens. I REFUSED lasik, I refused to pay for my wifeís and she asked a dozen times In the 10 years weíve been together. I coukd affird it, buy I said if something happened and me paying for it caused it, I wouldnít be able to live with myself. I literally told my wife over the years a few times, I can handle anything but eye problems. I feel like I almost subconsciously knew.

              But yeah, I knew if I had eye issues my life would be over. Thankfully Iím doing better than I thought. And if Iím going to go blind anyway because I have glaucoma, well steroids arenít really a risk anymore are they? I have to treat the glaucoma so **** it, take the steroids too. Honestly finding out I have glaucoma relieves a stress from one end. The strsss that I have to prevent it, I already have it and itís not from the drugs. Weird how that works mentally.

              by the way, Iím very sorry youíre doing bad recently. Seeing your post and Alixs post makes me sad. I know the pain you are both in. I was where both of you are now. So I genuinely hope you find a solution man. I feel like we all have a genetic component confounding the issue...creating the issue.

              Comment


              • Originally posted by Dowork123 View Post

                Whatís crazy Milo is I think I knew I was going to have eye problems. I say that because I have always been overly sensitive about my eyes after having issues with contacts in my teens. I REFUSED lasik, I refused to pay for my wifeís and she asked a dozen times In the 10 years weíve been together. I coukd affird it, buy I said if something happened and me paying for it caused it, I wouldnít be able to live with myself. I literally told my wife over the years a few times, I can handle anything but eye problems. I feel like I almost subconsciously knew.

                But yeah, I knew if I had eye issues my life would be over. Thankfully Iím doing better than I thought. And if Iím going to go blind anyway because I have glaucoma, well steroids arenít really a risk anymore are they? I have to treat the glaucoma so **** it, take the steroids too. Honestly finding out I have glaucoma relieves a stress from one end. The strsss that I have to prevent it, I already have it and itís not from the drugs. Weird how that works mentally.

                by the way, Iím very sorry youíre doing bad recently. Seeing your post and Alixs post makes me sad. I know the pain you are both in. I was where both of you are now. So I genuinely hope you find a solution man. I feel like we all have a genetic component confounding the issue...creating the issue.
                I thought patients of glaucoma should avoid ocular steroids and use IOP lowering drugs instead. Please clarify...do you want to say that since you have glaucoma there's nothing that can stop it from damaging your sight?

                What about the drugs that lowered your IOP significantly? Won't it be a lifelong option of managing the glaucoma you have?

                Do you also think that use of steroids won't make a difference to the risk of blindness posed by glaucoma?

                Comment


                • Originally posted by Milo007 View Post

                  I thought patients of glaucoma should avoid ocular steroids and use IOP lowering drugs instead. Please clarify...do you want to say that since you have glaucoma there's nothing that can stop it from damaging your sight?

                  What about the drugs that lowered your IOP significantly? Won't it be a lifelong option of managing the glaucoma you have?

                  Do you also think that use of steroids won't make a difference to the risk of blindness posed by glaucoma?
                  I think he does understand the risks associated and that glaucoma can be managed quite well with appropriate steps. I think heís just upset at the moment and heís kind of got a ď**** it/oh wellĒ attitude. He wants to be comfortable and steroids make him feel as normal as he possible can along with his other measures. Dowork is probably one of the most thorough users on this forum and believe me he knows probably everything to do with what should and shouldnít be done with his conditions. But please pull
                  me up if Iím wrong I probably shouldnít be posting on behalf of another user

                  Comment


                  • Originally posted by Topher3 View Post

                    I think he does understand the risks associated and that glaucoma can be managed quite well with appropriate steps. I think heís just upset at the moment and heís kind of got a ď**** it/oh wellĒ attitude. He wants to be comfortable and steroids make him feel as normal as he possible can along with his other measures. Dowork is probably one of the most thorough users on this forum and believe me he knows probably everything to do with what should and shouldnít be done with his conditions. But please pull
                    me up if Iím wrong I probably shouldnít be posting on behalf of another user
                    No man you are right. We all are terribly screwed up mentally at the moment. I feel the same way. Don't give a **** kind of attitude. From the core of my heart I can say we are losing it. If God doesn't respond now with some miracle it would be too tough a test of life for us to handle. If you are listening God I think we are at the dead end and you must act urgently. You don't want your children to suffer as miserably as this... Do you?

                    Comment


                    • Originally posted by Milo007 View Post

                      I thought patients of glaucoma should avoid ocular steroids and use IOP lowering drugs instead. Please clarify...do you want to say that since you have glaucoma there's nothing that can stop it from damaging your sight?

                      What about the drugs that lowered your IOP significantly? Won't it be a lifelong option of managing the glaucoma you have?

                      Do you also think that use of steroids won't make a difference to the risk of blindness posed by glaucoma?
                      Thatís what Iím saying, I have to be on glaucoma meds anyway, so if I can take steroids and the glaucoma meds keep my pressure good, thatís great. I donít have this fear like, Iím taking one drop to prevent effects from another. But I have no choice so I guess as long as I feel good, **** it. That was my point. My oressure today was 17/18 so pretty good. But clearly it fluctuates A LOT. So this is just my life I have no choice. That brings relief actually. In a weurd way.

                      Topher3 im not upset actually, relieved. Iím not happy I have glaucoma, but I couldnít stop it. Itís 100% structural and genetic. So I MUST take the drops not for steroid use, Iím actually happy the drugs arenít causing this. So if they keep my pressure good AND I can take steroids, well Iím happy about that. I found a solution and knowing what works is making me feel better mentally.

                      I had had my doctor ask me for advice today for another patient. Asked about my night protection and asked what I thought about surgery. So I asked if I could just stay on the therapy. He thought that was a good idea. The fact Iím doing great and his other patent is horrible, mucus everywhere, red stinging eyes, heís hurting....makes me feel good. I could be him. I coukd be on everything and still ****ed up. This was a long time coming for me.

                      So no, Iím not upset. Iím sad I have glaucoma and I couldnít have stoped it. But my wife said she will stay with me no matter what even if I go blind. So Iím finally starting to feel lucky. Iím lucky this injury happened and only because I have a treatment that works. Because I discovered this glaucoma issue because I was treating the floppy eyelid. Now if I was still hurting, trust me, I would NOT be appreciating this injury at all. But now Iím treating an even greater problem, a problem that can cause irreversible blindness. So yeah, Iím actually happy about that for the first time.

                      Comment


                      • Originally posted by Dowork123 View Post

                        But my wife said she will stay with me no matter what even if I go blind.
                        You have got a soul mate not just a wife man. She must be an absolute angel. Now I feel you don't have any reason to fear or be sad. You have got a family who cares for you that much. And you won't go blind our prayers are all with you. Glaucoma is quite manageable. My grandfather had it and he managed it with meds all life. You are doing possibly everything you can and it will pay off one day. Hang in there my friend!

                        Let's fight till the end...

                        Comment


                        • Originally posted by Milo007 View Post
                          Let's fight till the end...
                          Exactly! We will have ups and downs.. and even though some of the downs may be really big, the ups are worth fighting for. We will prevail in the end. I don't know how, I don't know when, but somehow, we will.

                          Yet another post-Lasik (2005)...
                          Anyone have a time machine so I can go back and undo this mess?

                          Comment


                          • Originally posted by Milo007 View Post

                            You have got a soul mate not just a wife man. She must be an absolute angel. Now I feel you don't have any reason to fear or be sad. You have got a family who cares for you that much. And you won't go blind our prayers are all with you. Glaucoma is quite manageable. My grandfather had it and he managed it with meds all life. You are doing possibly everything you can and it will pay off one day. Hang in there my friend!

                            Let's fight till the end...
                            Honestly I donít know how she deals with me. Iíve beem a nightmare and no lie, a few weeks ago when I was doing much better finally....She said to me, itís good to have you back and I want you to know, my love has not waivered. I just cried because I felt bad. I was happy she said it, but I felt so guilty. So yeah, sheís a saint. She refuses to stop pumping milk for our daughter because sheís still drinking it. She just had a horrible infection recently and sheís just a champ. Sheís amazing.

                            Im trying to hang in there. You do the same, I really hope things turn around for you. Iím sorry youíre still suffering so bad.

                            Comment


                            • Originally posted by SAAG View Post

                              Exactly! We will have ups and downs.. and even though some of the downs may be really big, the ups are worth fighting for. We will prevail in the end. I don't know how, I don't know when, but somehow, we will.
                              Now that I know itís possibme to function again, Iím much more willing to fight. Itís still very hard, but knowing it can be good again, gives me fuel to get through the rough parts. Still hard damn it.

                              Comment


                              • Alright, so good news on the left cornea that got destroyed, lol. Iím finally back to good vision, not 100% but really damn close. Iím noticing less glare now. I almost feel like the tech knocked off some loose epithelium and now it healed a bit nicer. I only say that because my glare is reduced 70%. Which is so awesome. That glare really makes it hard to see right. Hopefully in the next week the cornea doesnít get thick and I get the glare back. Letís see what happens.

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