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  • gilles
    replied
    Originally posted by KittyCat View Post
    Hi everyone! I just wanted to check in and give a little bit of an update!

    I had my 4th IPL treatment 2 weeks ago, and honestly, my eye doctor and I are INCREDIBLY happy with my results! My tear film has gone from unstable to stable (I can't remember my specific numbers, but when I went for my first consultation, there was a very faint green line all around my eyes when scanned, on my most recent scan 2 weeks ago, it was MUCH thicker, and I'm officially out of the danger zone!).

    My glands in my right eye are now completely functional, to the point that when my eye doctor did a manual expression, a tonne of oil came out and ran down my face!
    My left eye (my stubborn eye) is much better, the oil is flowing and clear and nothing is blocked, but the consistency is still a bit thick. But I can live with that.

    Overall, from a clinical point of view, me and my eye doctor are so so happy with the change after 4 treatments of IPL. This is without any kind of medication (I take some supplements which I will list below), and use an eye mask once a day, EyeSeals for bed, and eye drops maybe 3 times per day max (tends to be after 5pm after 8 hours in front of a screen for my job).

    In myself, I feel great! I have completely normal-feeling eyes the majority of the time, except for my period week when I definitely have more stinging in my left eye. I very rarely use any form of drops during the day now (when this was first diagnosed in May, I was using drops maybe 10-15 times per day).

    I would just like to stress that my dry eye was never severe. It was moderate. It is now mild, and I can only really attribute that to IPL as nothing else has really changed. I have cleaned up my diet a bit (I eat red meat once per week, and eat more home-cooked meals) and I now exercise for 30-40 mins 5 days per week at home on my lunch break (if anyone is interested, I use Lesley Sansone's Walk at Home programme, you can find some of her videos on YouTube).

    I would also like to stress for UK people, go private if you can. My NHS optometrist discharged me and told me to use eye drops and warm compresses. That was it. I never would have been offered IPL, and it's saved me. The service and care and compassion I've received has been outstanding, and I owe my private eye doctor Alison a whole lot.

    The supplements I use are:

    Seabuckthorn Oil
    Folate (I don't metabolise folate so this is nothing to do with dry eye)
    Zinc
    Vitamin D
    Omega-3

    I'm also on 10mg Celexa for anxiety and this has had no negative impact on my eyes.

    I really really recommend IPL to those who haven't tried it yet. It isn't a guarantee that it will work for everyone, but it has saved my life. I was depressed and absolutely petrified when I was diagnosed with MGD in May. I'd never had depression before but I can openly say, I wanted to end my life.
    And this forum, although incredibly helpful, scared me even more when reading the stories and posts, which made it all worse.

    It turns out, for me at least, all I needed was IPL, and to take a bit more care in looking after myself, and a low-dose antidepressant.

    To those of you that are struggling, or viewing this forum for the first time to look for answers, or newly diagnosed: YOU WILL GET BETTER.

    Please stay safe everyone, and always always practice self-care. It's so important. The chores can wait, the work can wait, your health can't wait. Do everything in your power to care for your body and mind. It truly makes a huge difference.

    Lots of love to you all.

    Cat xx
    Really glad to hear you are doing so well!
    Would it not be possible that the warm compresses were also responsible for the improvement; even a bigger influence than IPL? You had dry eye only since may, so maybe it took some time before your glands could start function normal again after some months of heat treatments. Just trying to fully understand the impact IPL made in comparison with eye compresses.

    Leave a comment:


  • KittyCat
    replied
    Hi everyone! I just wanted to check in and give a little bit of an update!

    I had my 4th IPL treatment 2 weeks ago, and honestly, my eye doctor and I are INCREDIBLY happy with my results! My tear film has gone from unstable to stable (I can't remember my specific numbers, but when I went for my first consultation, there was a very faint green line all around my eyes when scanned, on my most recent scan 2 weeks ago, it was MUCH thicker, and I'm officially out of the danger zone!).

    My glands in my right eye are now completely functional, to the point that when my eye doctor did a manual expression, a tonne of oil came out and ran down my face!
    My left eye (my stubborn eye) is much better, the oil is flowing and clear and nothing is blocked, but the consistency is still a bit thick. But I can live with that.

    Overall, from a clinical point of view, me and my eye doctor are so so happy with the change after 4 treatments of IPL. This is without any kind of medication (I take some supplements which I will list below), and use an eye mask once a day, EyeSeals for bed, and eye drops maybe 3 times per day max (tends to be after 5pm after 8 hours in front of a screen for my job).

    In myself, I feel great! I have completely normal-feeling eyes the majority of the time, except for my period week when I definitely have more stinging in my left eye. I very rarely use any form of drops during the day now (when this was first diagnosed in May, I was using drops maybe 10-15 times per day).

    I would just like to stress that my dry eye was never severe. It was moderate. It is now mild, and I can only really attribute that to IPL as nothing else has really changed. I have cleaned up my diet a bit (I eat red meat once per week, and eat more home-cooked meals) and I now exercise for 30-40 mins 5 days per week at home on my lunch break (if anyone is interested, I use Lesley Sansone's Walk at Home programme, you can find some of her videos on YouTube).

    I would also like to stress for UK people, go private if you can. My NHS optometrist discharged me and told me to use eye drops and warm compresses. That was it. I never would have been offered IPL, and it's saved me. The service and care and compassion I've received has been outstanding, and I owe my private eye doctor Alison a whole lot.

    The supplements I use are:

    Seabuckthorn Oil
    Folate (I don't metabolise folate so this is nothing to do with dry eye)
    Zinc
    Vitamin D
    Omega-3

    I'm also on 10mg Celexa for anxiety and this has had no negative impact on my eyes.

    I really really recommend IPL to those who haven't tried it yet. It isn't a guarantee that it will work for everyone, but it has saved my life. I was depressed and absolutely petrified when I was diagnosed with MGD in May. I'd never had depression before but I can openly say, I wanted to end my life.
    And this forum, although incredibly helpful, scared me even more when reading the stories and posts, which made it all worse.

    It turns out, for me at least, all I needed was IPL, and to take a bit more care in looking after myself, and a low-dose antidepressant.

    To those of you that are struggling, or viewing this forum for the first time to look for answers, or newly diagnosed: YOU WILL GET BETTER.

    Please stay safe everyone, and always always practice self-care. It's so important. The chores can wait, the work can wait, your health can't wait. Do everything in your power to care for your body and mind. It truly makes a huge difference.

    Lots of love to you all.

    Cat xx

    Leave a comment:


  • gilles
    replied
    Originally posted by KittyCat View Post
    Hi gilles!

    I'm doing well, thank you! How are you?

    I think the IPL is really helping me, as well as the expression afterwards. I know this because I have to admit, sometimes I forget to do the eye compress, and every time I go to my eye doctor, she says I'm improving after each IPL treatment. I need to state though, that I do not have 'severe' disease (my eye doctor said moderate) so I am fortunate enough that IPL, along with supplements and eye compresses might just be enough to help me manage this.

    Sometimes I don't need eye drops at all during the day (but my eye starts to sting in the evening after a full day of work, using 2 screens (proofreader).

    I'm on no medication for dry eye (no Restasis, Xiidra etc) as I don't need to be. My eye doctor wishes that IPL was available on the NHS and actually thinks that it should be much higher up on the treatment ladder (ie before commencement of daily medication), and I have to agree. It might be that all I need is a maintenance treatment every 6 months (150), and that's it.

    I have my 4th treatment booked in on October 20th, so I'll report back then!

    I definitely feel and am better, though

    Stay safe.

    Cat
    That's so great and motivational to hear for all of us!
    I started using the Thermalon eye compress (similar to the Bruder mask, and from the same company), which you heat with a microwave and have to admit it has been a big difference over the Blephasteam I was using (which does not get that high a temperature, which is a bummer!). Difference is flagrant: blurry vision for over 10 to up to 30 minutes after the compress. My vision improved and I don't use eyedrops/gels at nighttime and almost none during screen time.
    I know that every specialist said that my case looks mild, and that I have thick oil which does not get out easily; so my best guess would be that I need a higher temperature to get the oils out.

    On another hand: I tried Lipiflow, and found it to be a waste because no manual expression was done afterwards. The automatic massage was so soft, it was a joke (jokes aside, I bet it's just to cover from risks of damage and to meet the average person eyelids), so manual expression should be demanded by the patient after the treatment. But to be honest, I did not even get blurry vision after the treatment which I have with a good warm compress though.

    Next week I'll go for a diagnosis for IPL and manual expression (I feel lucky that in Belgium the prices are quite fair: 680 euro for both eyes Lipiflow and 152euro per IPL treatment with manual expression; and I think that's the price that it should be everywhere; or even cheaper with health assurance finally covering it - because on the long run they paid more in all the doctors I visited and which the assurance company had to reimburse).

    Leave a comment:


  • KittyCat
    replied
    Hi gilles!

    I'm doing well, thank you! How are you?

    I think the IPL is really helping me, as well as the expression afterwards. I know this because I have to admit, sometimes I forget to do the eye compress, and every time I go to my eye doctor, she says I'm improving after each IPL treatment. I need to state though, that I do not have 'severe' disease (my eye doctor said moderate) so I am fortunate enough that IPL, along with supplements and eye compresses might just be enough to help me manage this.

    Sometimes I don't need eye drops at all during the day (but my eye starts to sting in the evening after a full day of work, using 2 screens (proofreader).

    I'm on no medication for dry eye (no Restasis, Xiidra etc) as I don't need to be. My eye doctor wishes that IPL was available on the NHS and actually thinks that it should be much higher up on the treatment ladder (ie before commencement of daily medication), and I have to agree. It might be that all I need is a maintenance treatment every 6 months (150), and that's it.

    I have my 4th treatment booked in on October 20th, so I'll report back then!

    I definitely feel and am better, though

    Stay safe.

    Cat

    Leave a comment:


  • gilles
    replied
    Hi KittyCat how have you been doing, how are you eyes?
    Would you mind giving is a new update of the status of your eyes? (do you have a feeling the IPL/manual expression improved your eyes, or rather your regimen of warm compress)

    Leave a comment:


  • gilles
    replied
    Originally posted by jack1988 View Post

    For the first hour, they are kind of irritating, in my opinion
    I'm not sure if eyedrops should be irritating at all...

    Leave a comment:


  • jack1988
    replied
    Originally posted by gilles View Post
    For me evotears was irritating my left eye, where is was a bit sensitive (eroded, inflammation vessels due to dryness). I think I also stopped using these eyedrops as I came across comments on this forum about a harmful ingredient in the eyedrops (bad batch I think). I think this is the link to the explanation.
    For the first hour, they are kind of irritating, in my opinion

    Leave a comment:


  • gilles
    replied
    For me evotears was irritating my left eye, where is was a bit sensitive (eroded, inflammation vessels due to dryness). I think I also stopped using these eyedrops as I came across comments on this forum about a harmful ingredient in the eyedrops (bad batch I think). I think this is the link to the explanation.

    Leave a comment:


  • KittyCat
    replied
    I wouldn't say they were irritating as such, but they felt sticky sometimes instead of refreshing! I don't know if that's common but it felt a bit weird at times.

    Leave a comment:


  • jack1988
    replied
    Originally posted by KittyCat View Post

    Hi Jack,

    I only used EvoTears because my eye doc gave me a trial! I didn't like them for the first week or so, and then I grew to like them! Although they've run out now and I haven't repurchased. I use HycoSan Dual (UK), and they seem to be just fine! It could be because my condition is moderate, rather than severe, but I don't seem to have a real preference when it comes to eye drops. As long as they hydrate me, I think I can pretty much use any (although I haven't actually tried that many so far).
    Thanks for the reply. Can I ask why you didn't like them? Were they irritating?

    Leave a comment:


  • KittyCat
    replied
    Originally posted by jack1988 View Post

    What made you choose Evotears btw? Have you tried any other drops? I have MGD and use Hypromollese but it doesn't always work!

    I have tried NovaTears (same as Evo) and they irritate my eyes a little bit. Is that something you have noticed too?
    Hi Jack,

    I only used EvoTears because my eye doc gave me a trial! I didn't like them for the first week or so, and then I grew to like them! Although they've run out now and I haven't repurchased. I use HycoSan Dual (UK), and they seem to be just fine! It could be because my condition is moderate, rather than severe, but I don't seem to have a real preference when it comes to eye drops. As long as they hydrate me, I think I can pretty much use any (although I haven't actually tried that many so far).

    Leave a comment:


  • jack1988
    replied
    Originally posted by KittyCat View Post
    Hi everyone,

    I just want to give a good news story!

    I have MGD (diagnosed just 4 months ago), I'm 33 and I was so scared when it first happened. My NHS optometrist just told me to use eye drops and hot compresses, but when I came across this forum I realised I needed to take my own action and pay to see a private specialist.
    I went to BBR in Hereford who were brilliant. They did a bunch of diagnostic tests and really listened to me and calmed my anxiety.
    My TBUT was 3 seconds in my left eye and 6 in my right, and my oil was like butter. Not great! I didn't need Lipiflow as my glands are all open, just very sluggish.

    I did my first IPL last Wednesday, and in the last 6 days I've used eye drops maybe 6 times in total. Down from about 4-6 times per day! My eyes feel 95% normal. I no longer have stinging and burning in my eyes, except a handful of days where I stay up too late, which I will happily take.
    And this is after the first treatment! They said I probably won't feel any improvement until my 3rd session but I feel a huge improvement to the point that I am no longer thinking about my eyes except pure joy.
    I have read up on it, and some people are considered early responders and will feel the benefit straight away, it seems that's me!
    For all of those who think they can't be treated, please please please consider IPL!
    I'm no longer depressed and anxious, I feel great.
    ​​​​​​
    All
    I'm doing at the moment is my relaxing hot compresses twice a day, and using EvoTears once or twice a day if I need to (but mostly no drops at all). I wear EyeSeals 4.0 to bed, and that's it!

    It's only because of this forum that I took matters into my own hands and paid for private care, and I'm so glad I did.

    I'll update again after my second session.

    Good luck everyone

    Cat xx
    What made you choose Evotears btw? Have you tried any other drops? I have MGD and use Hypromollese but it doesn't always work!

    I have tried NovaTears (same as Evo) and they irritate my eyes a little bit. Is that something you have noticed too?
    Last edited by jack1988; 22-Sep-2020, 01:27.

    Leave a comment:


  • gilles
    replied
    Originally posted by KittyCat View Post
    gilles my eye doctor said I have no signs of bleph at all so there's no real need for me to practice rigorous eyelid hygiene unless I feel I really want to. Obviously I wash my face normally but I don't really fret about perfect lid hygiene! But that's just me!

    I also don't know the root cause of my dysfunction, but I did suffer from adult acne until very recently and have oily skin generally. I also wore contact lenses to death until I could no longer wear them (so uncomfortable), and my job as a proofreader staring at screens for far too long are, I think, my "multifaceted" reasons it's happened to me. I'm 34 and have zero other health problems so I don't believe it's a biological thing, or a systemic thing. I just thing I've abused my eyes for too long unfortunately. However, I am now feeling much much better after IPL and not wearing makeup for 6 months thanks to covid and working from home.


    Fun fact that weirdly made me feel a lot better, Jennifer Aniston suffers from chronic dry eye! There's a few articles out there where she talks about it quite a bit.
    We share the oily skin, acne, and computer screen part (software developer). I also think having been at friends in a room full of cigarette smoke and allergens (his cat used to lay on the coach) and having chalazions because of that, while my other friend also had chalazions at that time, played a big role. Chalazions might be the reason of old meibum plugging the gland.

    I guess the eyelid hygiene could play a inflammatory role, because this blephasol makes my skin a bit red on the sides (it can be a bit harsh on the skin).
    By the way, if I understand it correctly, what you mean is anterior blepharitis with bleph? While what we both share (mgd, or posterior blepharitis), it is true that the hygiene part plays a bigger role with the anterior bleph.

    I also came across an article about Jennifer Aniston having trouble with dry eyes. I'll look into it is I'm curious to see which bleph. she is dealing with.

    Leave a comment:


  • KittyCat
    replied
    gilles my eye doctor said I have no signs of bleph at all so there's no real need for me to practice rigorous eyelid hygiene unless I feel I really want to. Obviously I wash my face normally but I don't really fret about perfect lid hygiene! But that's just me!

    I also don't know the root cause of my dysfunction, but I did suffer from adult acne until very recently and have oily skin generally. I also wore contact lenses to death until I could no longer wear them (so uncomfortable), and my job as a proofreader staring at screens for far too long are, I think, my "multifaceted" reasons it's happened to me. I'm 34 and have zero other health problems so I don't believe it's a biological thing, or a systemic thing. I just thing I've abused my eyes for too long unfortunately. However, I am now feeling much much better after IPL and not wearing makeup for 6 months thanks to covid and working from home.


    Fun fact that weirdly made me feel a lot better, Jennifer Aniston suffers from chronic dry eye! There's a few articles out there where she talks about it quite a bit.

    Leave a comment:


  • gilles
    replied
    Originally posted by KittyCat View Post
    gilles I use something called 'Vital Baby Aquaint' as recommended by another UK user, as it's available on Amazon UK and pretty cheap! It's just Hypochloric Acid and I just spray it on my finger and rub it onto my eyes in the morning, just to get rid of any sleep crustiness and to moisten my eyelids. That's all I do as far as eyelid hygiene goes as I don't have any bleph! It's nice and refreshing. Sometimes I'll do it during the day if my eyes are feeling a bit dry and I don't want to use a lot of drops, but that's a rare day! For eyedrops I use Hyco San Dual and I use those anywhere between twice a day and maybe 6 times a day max.

    Cat
    I don't know the cause of the dysfunctioning of my glands, so to rule out the bacterial part I try to clean my eyelids. Maybe it is of no use and will only exacerbate the inflammation. I guess eyelid hygiene is only useful if having flaky and itchy eyelids with lots of dirt, bacteria and dandruff; which I don't have.

    Leave a comment:

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