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  • #16
    Oh- I didn't understand what "residual epithelial defects" actually meant. We do come back to the point that this does not seem to be offered for dry eye. I am going to post a query on youtube about this- I wonder what it costs out of pocket?

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    • #17
      I came back today from my appt with my cornea specialist. She doesn't think Prokera would be beneficial :-( She told me that Prokera is indicated for acute (short term) healing of cornea injuries, and would not help much for chronic dry eye.

      My eyes are too big for the Prokera I was told and would need to either tape my eyelid shut for 7 days to retain it, or she would have to apply a stitch along the outer corner of my eye (tarsography) to keep the eye semi-closed. The Prokera would fall out too easily. Really? I thought I'm asian I have more oval eyes and she's worried it may fall out?

      The reasoning why it wouldn't work was because although the lens would help the cornea feel better in the interim, once you remove the Prokera after 7 days, the cornea will slowly return to baseline dryness............basically back to square one.

      I inquired if the nerve growth factors in the Prokera would help accelerate regrowth of the severed corneal nerves and she said she doesn't think this would make a difference.

      She encouraged to try Restasis again because it works for most of her patients, yet I told her it makes my eyes burn all day long, she said keep doing it because it is all we have now. Very sad news to hear.

      Suggestion was made for compounded albumin protein eye drops (from Leiters pharmacy, san jose) as an alternative, and I have not tried that yet, so told her I would be willing to give it a shot and she would call it in.
      Nice doctor, willing to listen, empathetic, and I could see she felt bad that I have tried mutliple modalities and nothing has seemed to provide good relief.

      The only thing we can do is keep trying and never give up !
      RG
      "Wishing I never had LASIK and was still wearing glasses and contact lenses"

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      • #18
        I had a consultation with an ophthalmologist in the States and she said that I'm a candidate for ProKera. She diagnosed me with stage 3 dry eye caused by ocular rosacea or possibly secondary sjogrens.

        Today I got two new google alerts with info on how ProKera is being used to treat inflammation:

        "the only FDA cleared therapeutic device that reduces inflammation and promotes healing."

        http://www.biotissue.com/news-events...Milestone.aspx

        How ProKera fights inflammation or the villain “inflammatron.” That's right - inflammatron!

        http://www.prokerainfo.com/about-pro...-inflammatron/

        Updates on how ProKera is being used to treat dry eye and how to find a doctor using it in your area:

        http://www.youtube.com/watch?v=GjGA4AOudVg
        Last edited by Pinky; 31-Mar-2013, 14:10. Reason: url didn't work

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