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steroids once a day-if not miserable.. doc says i will get cataracts early..

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  • #16
    Originally posted by jenny2008 View Post
    i know they all have their own opinions... so frustrating!
    ah! I KNOW! I wish there was just ONE answer to things in situations like this! haha

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    • #17
      i just got to thinking... i bet about the steriod thing is that you have to taper down and they are hard to get off of.... i know this from experience... if you taper too suddenly you can get rebound redness.etc... i go to my doc next friday...ughhhh.. good luck to u too vivian..how are the serumdrops going?
      Jenny

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      • #18
        Surya what do you have? mgd? lasik? auto immune?
        i am going to ask my doc about the pred-healon..i couldnt find it on the phillips eye institute website.. did you go there or just have the medicine ordered from there?thanks!
        Jenny

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        • #19
          Dr. Foulks was my corneal specialist until he retired last year...
          I'm very sorry for the Jenny2008. Know how it feels.
          Paediatric ocular rosacea ~ primum non nocere

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          • #20
            I think i had moderate dry eye due to contact lens wear and may be mgd. i had lasik (10 months back) because i couldn't tolerate contacts after using them for 3 years (i knew nothing about dry eye then). it became full blown dry eye after my lasik surgery. if only my lasik doc had been nice to me and treated me for dry eye or if i had known what i know about dry eye now, things would have been lot different......

            It is on their website http://www.allinahealth.org/ahs/pei.nsf/page/pharmacy. check the link at bottom right (it is .25% prednisolone and .001% healon) . Your doc has to call them in with a prescription. I am in minneapolis so i picked it up, but they also ship it. i don't think it is a big deal to prepare that. I think they just mix steroid (prednisolone) and healon. Any reputed pharmacy should be able to do it. Ask your doc.

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            • #21
              thanks Surya.i see it now! this is non preserved right?? just want to make sure as i am allergic to preservatives!


              and thanks littlemermaid.. i went to one of the top in dry eye research--i got to try so many things like probing for example for free.. becaue it was a university hospital plus Dr. Foulks actually cares.. he has done so much for dry eye research but it was time to retire... i believe he still may teach and does research but no longer practices..
              Jenny

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              • #22
                yes it is preservative free.

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                • #23
                  Dr. Foulks actually cares..
                  He was Editor-in-Chief of the Dry Eye Workshop (DEWS) Report. What a fantastic team achievement that is. If anyone isn't following the Tear Film & Ocular Surface Society, check 'em out. Did he leave a good team for you, Jenny?
                  I have to use them about every 15 mins
                  Vivian, Gosh, that's a lot of Theratears. Are you sensitive to all other drops? Are they telling you it's meibomian gland dysfunction as well? I'm just wondering if the daytime drops are contributing to mgd by making the eyes sore as well after a long day. Healing is a gentle and sensitive process and with the eyes, it seems to be the small things that matter too.
                  Last edited by littlemermaid; 18-Aug-2012, 04:58.
                  Paediatric ocular rosacea ~ primum non nocere

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                  • #24
                    Originally posted by poppy View Post
                    What eye doctors seem to be taught here in Australia, from what they've told me, is that it's better to use the steroids several times a day until your eyes feel really good, then taper off. I think this makes good sense, assuming you are able to tolerate a period of no steroids for a time at least until your eyes get really bad again. Inflammation is a vicious cycle where the inflammation makes your eyes dryer causing more inflammation. If you can get the inflammation under control with a steroid several times a day for a few weeks, then you have a much better chance of keeping things under control with your usual routine. One drop of steroids every day or so is going to take the worst edge off your inflammation but it can't stop the vicious cycle. I would also ask your eye doc how much inflammation they see and where it is (eyelids, cornea, conjunctiva etc), if the doc can't see much inflammation clinically then maybe you are doing the wrong thing using steroids. Whereas if your corneas are chronically inflamed, it's much more justifiable medically.
                    Think the advice here is worth noting.
                    Once you start on them you have to follow the prescribed course of hitting them hard
                    then tapering off slowly.

                    Just stopping suddenly causes inflamation to come back with a vengence.
                    My Dry Eye Story:
                    http://www.dryeyezone.com/talk/showt...7575#post47575

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                    • #25
                      I should also note that if your on Restasis like i have been for years now, it does
                      work, but over time.

                      I use it 3 times a day followed by hot rice baggies for 10 minutes.

                      I've noticed that using regular drops in between my 3 a day routine has
                      been cut in 1/2 now.

                      When i do use drops I'm using FreshKote or Oasis Tears Plus.
                      My Dry Eye Story:
                      http://www.dryeyezone.com/talk/showt...7575#post47575

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                      • #26
                        no Littlermermaid....i didnt care for his replacement..he was very young and to me not really a 'corneal specialist".... he never spent any time with me and barely expressed my glands... he didnt have a good bedside manner..dont want to get into it on here......
                        Jenny

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                        • #27
                          Originally posted by littlemermaid View Post

                          Vivian, Gosh, that's a lot of Theratears. Are you sensitive to all other drops? Are they telling you it's meibomian gland dysfunction as well? I'm just wondering if the daytime drops are contributing to mgd by making the eyes sore as well after a long day. Healing is a gentle and sensitive process and with the eyes, it seems to be the small things that matter too.
                          I know. Well I was on refreshe PF and they didnt last long and they made my eyes redder.... I stumbled across THeratears on accident and I haven't really tried anything else....is there something similar to Theratears that I can try? I am a broke college student and I cant really afford to buy drops and if they dont work not end up using it. you know?

                          THe M.A. to my cornea specialist said something about possible bleph...but my doc has never told me to my face....I am going to ask when I go back in middle of september...

                          Im really not sure about anything, I'm just wanting to figure out exactly what is wrong so i can treat it the right way!

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                          • #28
                            my doc has never told me to my face
                            I know how this feels, Vivian... but it's about getting a grip on these docs with a list of questions. What are they paid so much money for. My worry is always that they are not skilled in healing and are trotting out standard eyedrop options just to get through the patients.

                            There's the limited science of medicine, and there's the practice of being a doctor who helps people get better or manage * conditions.

                            Seemingly small regime changes like night-time goggles and wraparounds, and what eyedrops for sensitive eyes, really matter with this and we need help with this detail. Have you got a dry eye optometrist? They would advise on local docs too. Time to put your eyes first and take charge.

                            What's needed is ongoing doc/patient management and healing, so it's worth shopping around for a good ophthalmologist. Cost is a nightmare but I pay for a single consultation sometimes. Also, if they don't listen and discuss, I don't care what their doc status, it's a dump from me.
                            I think it's partly b/c my doctors are not treating me right, but I do know my eyes are very inflamed.
                            Hope you can build a relationship with one of these docs so that they can work with you and support you and you can ask the questions like: whether there's meibomian gland dysfunction, whether there's aqueous insufficiency, what's the condition of the eye surface, what's the tear break-up time.

                            They are supposed to advise you on eyedrops through skill and experience of what works for your condition. What doesn't work for us is random drops to try, including steroids, without guidance on a regime to heal the factors.

                            Msny is right to flag up Poppy's experience again. The docs should give you a proper standard steroid regime to control inflammation, then taper to maintain on your other treatments.

                            I remember your eyes were dry to start with so maybe it's mgd and the nutriceuticals like Theratears fish/flax oil would help with a gentle warm compress - are you trying this too? Are you careful with blink rate on the computer?
                            Last edited by littlemermaid; 19-Aug-2012, 04:29.
                            Paediatric ocular rosacea ~ primum non nocere

                            Comment


                            • #29
                              Originally posted by littlemermaid View Post
                              I know how this feels, Vivian... but it's about getting a grip on these docs with a list of questions. What are they paid so much money for. My worry is always that they are not skilled in healing and are trotting out standard eyedrop options just to get through the patients.

                              There's the limited science of medicine, and there's the practice of being a doctor who helps people get better or manage * conditions.

                              Seemingly small regime changes like night-time goggles and wraparounds, and what eyedrops for sensitive eyes, really matter with this and we need help with this detail. Have you got a dry eye optometrist? They would advise on local docs too. Time to put your eyes first and take charge.

                              What's needed is ongoing doc/patient management and healing, so it's worth shopping around for a good ophthalmologist. Cost is a nightmare but I pay for a single consultation sometimes. Also, if they don't listen and discuss, I don't care what their doc status, it's a dump from me.
                              Hope you can build a relationship with one of these docs so that they can work with you and support you and you can ask the questions like: whether there's meibomian gland dysfunction, whether there's aqueous insufficiency, what's the condition of the eye surface, what's the tear break-up time.

                              They are supposed to advise you on eyedrops through skill and experience of what works for your condition. What doesn't work for us is random drops to try, including steroids, without guidance on a regime to heal the factors.

                              Msny is right to flag up Poppy's experience again. The docs should give you a proper standard steroid regime to control inflammation, then taper to maintain on your other treatments.

                              I remember your eyes were dry to start with so maybe it's mgd and the nutriceuticals like Theratears fish/flax oil would help with a gentle warm compress - are you trying this too? Are you careful with blink rate on the computer?
                              yeah, I wish I could get to a point where i can live a somewhat comfortable life and not be worried about my eyes so much...Steroids help with that. I have noticed the days I do put them in I am not as worried about them and I can live life a bit more.

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                              • #30
                                I used Lotemax yesterday for the first time. It was effective with reducing inflammation, BUT not as effective as Flarex....it also burned for a few hours after instilling.

                                Does anybody have any likes about the differences between these two drops?

                                I was perscribed Lotemax to use (I will still talk to them about setting up a steroid regime and ask them all questions about mgd, my inner eyelid inflammation, etc.) but I may call them to see if I can continue with Flarex instead?

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