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Sure sounds like dry eye, is it?

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  • Sure sounds like dry eye, is it?

    Hi
    I had laser sugery to free me of glasses ( what a joke that is ) a little over a year ago . Despite being told I was an ideal patient with very healthy eyes I am now living with starburts , halo`s and very very light sensitive eyes. My eyes hurt all the time , they are tender , my eyelids swell at the margins , they are worse by the end of the day ,they will not tollerate eyedrops - this makes them worse . My eyes can be painful enough to stop me sleeping and can force me to lie with eyes closed in a darkened room to get relief .. When my eyes are open they hurt.I generally have eyestrain to some extentand have more head aches , my eyes feel like they are being squeezed I presentely have 3 pairs of different sun glasses and reading glasses and use different cobinations to cope with light in diffrent circumstances . My eyes are running my life , the amount of pain etc commands what I can and cannot do , it is an absolute ongoing nightmare . I no longer enjoy reading ( I was previously an avid reader ) and reading was extremely important as I have severe ME and am frequentely housebound or bedbound and so watching stuff or reading is what I do/did most of , I don`t enjoy being outside in my mobility scooter either now because my eyes simply hurt too much , this has had a massive impact on my life. My eyes were fine befor the proceedure ( I didn`t need sunglasses , I rarely had headaches, I had NO EYE PAIN )and despite my M.E. I was told that I had a 1 in 250 chance of having mild and temporary problems , and like a fool I believed them........For the first few months I was prescribed and used eyedrops because my eyes were so dry they would stick and then tair on waking if I tried to open them even if I massaged the eyelids. The last few months I have been until very recentely taking anti-biotic eye ointment as recomended my the Surgeomn who did the treatment , she says I have repeat errosions , the nhs specialist dissagrees and blames the eyes on the M.E. ( which is nonesense--my ey3es were absolutely fine befor the laser traetment. I have also noticed my ability to see in lowere light is not what it was ..... The only obvios thing to seein my eyes is the lid swelling in the evening , they are slightlyred rimmed and can be blood shot and that they look tired and a little saggy.... so . I am getting becomming very unhappy and I need to know what to do next ..and who to believe , one Dr tells me to come back for more laser treatment to have the erossions pinned , the other is dismissive and yet prescribes more antibiotic ointment and steriod eyedrops ( the steriod eyedrops helped to reduce eyelid swelling , but irritated my eyes at the same time,,, I think they were helpful over-all ). Anyone got any ideas and does this sound like dry eye to you. Sice comming off the antibiotic gel my eyelids have on avaerage been less swollen..............I need to find pain relief .. My ability to focus is ok now after initially having double vision for weeks. My eyes are so worn out I struggle to keep them open a lot of the time.....It`s all increadibly frustrating .Please excuse the rant but after a year of patience I have lost faith and I need to let of steam about this mess ........I`ll end on a possitive note , my eyes do not stick togethr anymore overnight .
    Hope you can help ,
    Roger
    Roger

  • #2
    Hi roger, welcome to the dry eye zone, really sorry to hear about the bad experiance from lasik..im afraid i dont know that much about lasik (lots of others do though).

    Can you give us some more info on your symptoms, do you have any dry eye symptoms, do they feal dry, burn, water, you said they stick together.. It does sound like you probally have severe dry eye if you started off having really bad dry eye symptoms after the surgery and then the symptoms persisted..

    Did the NHS doctor say that you have dry eye, what else have they offered you? What type of drops have you been using, preservative free? Many people cant tolerate preservative drops, and they may irriatate the eyes.

    You sound like you might benefit from goggles or sceral lenses-if all else fails.
    I healed my dry eye with nutrition and detoxification. I'm now a Nutritional Therapist at: www.nourishbalanceheal.com . Join my dry eye facebook group: https://www.facebook.com/groups/420821978111328/

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    • #3
      Roger, you mention having severe ME. Can you tell me what you are referring to? Others may know, but I don't. If you said MS, I'd know or MD, I'd know, but ME...is something I don't know about. Cal n=you tell us. If you feel you don't want to, I don't mind. It might help some of us trying to help you. Thanks, Lucy
      Don't trust any refractive surgeon with YOUR eyes.

      The Dry Eye Queen

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      • #4
        Another resource for LASIK patients

        Roger, in case you hadn't already found it, I wanted to mention LaserMyEye, which is the companion site to DryEyeZone, run by the same folks, and dedicated specifically to patients and candidates of laser eye surgery.

        While DryEyeZone is definitely the place to discuss your challenges with dry eyes, if you're needing any information or assistance with more general LASIK-related issues, LaserMyEye is the place. In addition to a comprehensive encyclopedia and FAQs, you'll find another bulletin board, called D'Eyealogues.

        Comment


        • #5
          Hi , Thankyou Lucy , Sazzy and Dez for the replies ,
          Don`t really want to go into what M.E. is in any detail but as you mentioned ms ...symptomatically it overlaps with ms a lot and like ms is classed by the World Health Organisation as a neurological illness. I have limited mobilkity ( a few yards with sticks ) , extreme fatigue ( spend most of my life on a settee or asleep), various cognitive problems , muscle pain etc......anyway back to the eyes.........
          Yes my eyes do feel dry , they itch and they sting , they also water when I am outside , more when it is windy or brighter.They hurt all the time even inside with sunglasses on in a dimly lite room and they are remarkably exhausted , the more painful they are the more swollen the lids are , for the last couple of days I have had a perminant eye strain headache but bizarely I can focus - though only briefly on fine print etc befor it get too much of a strain I have tried a variety of eyedrops , the best ( or least irritating ) were called viscoe-tears and they were the preservative free type but they still caused more swelling .
          The NHS doc did a test with some dye and pronounced that I did not have dry eye but she also said I did`nt have errosions despite another Dr seeing them so I really do not know who to believe and I wonder how reliable these tests are .....
          Your two suggestions , goggles and lenses sound interesting , could you tell me more ???
          I am beginning top think I will have to go and see a specialist for another opinion on just what the flipping things are doing so to anyone reading this post could you tell me if you have seen a specialsist and they were helpful .
          .......... Thankyou for the link to the other site , I will have a look there as well .
          Jack

          Comment


          • #6
            The NHS doc did a test with some dye and pronounced that I did not have dry eye but she also said I did`nt have errosions despite another Dr seeing them so I really do not know who to believe and I wonder how reliable these tests are ....
            You cant really determine whether you have dry eye or not from just using dye, they need to do other tests-(schimmer-to measure your tear production) and really they should do a tear break up time (TBUT test-to count how many seconds your tears take to evaporate off your eyes, a normal result would be over 10 seconds). I have had trouble with the NHS as well, most people with dry eye have, they are not that knowledgable about dry eye (in general).

            When you say you want to go to a specialist i presume you mean a private specialist, becuase you have allready been on the NHS? If so for the best results, i would advise you to go straight to someone who specialises in dry eye- the only specialist i know is Prof Dua:

            http://www.bmihealthcare.co.uk/yourc...sultantid=1333
            unfortuntely he is in nottingham, so you might not want to travel this far.. Others may have limited knowledge and cause more frustration so to limit the amount of money spent he is a good choice.

            Goggles are on this page, more like sunglasses:
            https://secure1.nexternal.com/shared...unt2=663413643

            and info on other goggles here:http://www.dryeyezone.com/talk/forumdisplay.php?f=13

            People have gottan dramatic results fro sceral lenses, they are good for severe dry eye. This is where someone on this site got his sceral lense from, you can email the company, it is located near london. Unfortunately they are very expensive-so i would suggest going to a specialist to see if they can give you anything first:
            http://www.sclerals.com/index1.html

            More info on seceral lenses:

            http://www.dryeyezone.com/talk/forumdisplay.php?f=58

            I have tried a variety of eyedrops , the best ( or least irritating ) were called viscoe-tears and they were the preservative free type but they still caused more swelling .
            systane is good, and blink tears have propeties (HA) that helps healing of corneal surface (unlike other artificial tears) which might be good if you have had lasik. You can find them in boots.

            If you have any other questions i am happy to answer..
            Last edited by sazy123; 06-Apr-2006, 19:04.
            I healed my dry eye with nutrition and detoxification. I'm now a Nutritional Therapist at: www.nourishbalanceheal.com . Join my dry eye facebook group: https://www.facebook.com/groups/420821978111328/

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