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  • Guest's Avatar
    Guest replied
    Originally posted by WellEyes View Post
    HelloJack,

    I have had similar problem in the sense that no eye doctor could really diagnose correctly for more than a year. It looked like a dry eye after my upper blepharoplasty. To cut it short, it seems that I have mild dry eye with the main problem being neuropathic pain. Corneal neuropathy is a disease neither neurologists nor ophthalmologists really know about. It has a very complex working with dry eye. According to some research it might even cause dry eye. If it's the small fibres, also impossible to diagnose with evidence. It is some kind of trigeminal neuropathy. Do you have fibromyalgia?

    I am still struggling with it.

    Many thanks for your comment!

    And very interesting info. I don't have fibromyalgia, no, but I may have what you are describing. In fact, some of the doctors I have seen suggested it might be some sort of nerve damage, but only one of them suggested something I try, which is the anti-depressant Amitriptyline which is often prescribed not for depression but for nerve pain. I did try that, and it might have helped, but I stopped taking it before I could really tell, because I read it becomes addictive over time.

    Leave a comment:


  • WellEyes
    replied
    HelloJack,

    I have had similar problem in the sense that no eye doctor could really diagnose correctly for more than a year. It looked like a dry eye after my upper blepharoplasty. To cut it short, it seems that I have mild dry eye with the main problem being neuropathic pain. Corneal neuropathy is a disease neither neurologists nor ophthalmologists really know about. It has a very complex working with dry eye. According to some research it might even cause dry eye. If it's the small fibres, also impossible to diagnose with evidence. It is some kind of trigeminal neuropathy. Do you have fibromyalgia?

    I am still struggling with it.

    Leave a comment:


  • Jack
    replied
    Originally posted by Rebecca Petris View Post
    Hi Jack, Welcome!


    What kind of doctors and what have they diagnosed you with?........Echoing epicjinx... geographic clues would help with ideas.

    Rebecca and epicjinx many thanks for your reply.

    I have been to see both opthamologists and occuloplastic surgeons, because I believe it was occuloplstic revision surgery that caused my problem.

    Three of them, all located in Los Angeles and all of them from the same medical School (UCLA) said my lower eye lid was being pulled down because it lacks tension, and I should do an operation to fix that. Yet, I believe that it was precisely such an operation to ad laxity that caused the problem in the first place, and so I am suspicious of this dignosis.

    Three other occulopostic surgeons said they have no idea what my diagnosis would be. All of them said I did not have much of a dry eye problem, until 10 days ago, when a repeate visit fo one of the occulopoastic surgeons suggested that I have blepharitis.

    Reading about blepharitis, I can't say I am convinced.

    My symptoms do somewhat sound like dry eye, but they are really only limited to the outer corner of my right eye. Does that count?

    I've run out of ideas, hope, and guidance for what to do next, except for this one thing:

    That outer corner is very very rounded, and exposes much more of my eye than normal. Two doctors have told me I might want to try a small terrsorhaphy because that roundedness might in fact be the cause of my problem.

    Many thanks for any help or comments you can offer.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Rebecca, and epicjinx, and many thanks for your reply. I am a US citizen from Hawaii who lives in Indonesia. Here's some more info:

    My main problem, in fact, is actually getting a diagnosis that makes sense. To wit:

    I had cosmetic surgery on my lower eye lids, and then two surgeries to correct a bad job. Immediately after those revision surgeries I suffered from an troublsome irritation in the outer corner of my right eye, that felt like an eye lash was poking me, along with other strange and uncomfortable sensations.

    It went away after a few weeks, and I then went for 3 years with no probelms at all, and happy.

    Then, about 2 years ago, the irritation came back and got worse, and developed into an even more complicated irritation, still all concentrated in the outer corner of my right eye. Some but not all of the symptoms sound like dry eye from what I have been reading.

    I went to see several occulopoastic surgeons who said my lower eyelid was still too taut, and that I should do an operation to give it more laxity by raising my cheek and inserting a skin graft.
    I thought that was a crazy idea because I feel it was precisely operations to "raise the lower eye lid to remove tautness" that caused the problem in the first place.

    The other doctors I saw - both opthamologists and occuloplastic surgeons - said they had no idea what was causing my problem. I felt that they were more honest. All the doctors I have seen said my eyes were "not that dry" and they determined this by putting a paper strip into my lower eye lid as well as putting drops in my eye and looking at it through their (microscope thing?)

    Last week, I was told I have blepharitis. Maybe. But after reading about this, I am unsure. Perhaps yes, but I don't think that's the entire problem even if so. My irritation is strictly limited to the outer corner of my eye, and seems to be related to scar tissue, or perhaps the tightness the docters referred to.

    Many thanks for any ideas/input you may have.

    Leave a comment:


  • Rebecca Petris
    replied
    Originally posted by epicjinx View Post

    Eye drops dont work because it doesn't treat the main problem only masks symptoms.
    Have to say I disagree with this kind of generalization (although I avoid drops, myself, and I think many people could, who aren't). It depends what you consider the main problem... and also whether the medical issues are actually addressable - because in some situations, they aren't. In patients with severe aqueous deficient dry eye for example, drops aren't used to "mask" symptoms, they're used to keep the corneas safe and comfortable.

    Leave a comment:


  • Rebecca Petris
    replied
    Hi Jack, Welcome!

    I am new here. I can't tell if I have dry eye, even after visits to at least 10 different eye doctors and surgeons. But I very much do have a severe eye problem.
    What kind of doctors and what have they diagnosed you with?

    Corneal specialist ophthalmologist - one that works more with disease than, say, LASIK and cataract - would be the best equipped type of doctor to get you a more detailed diagnosis. However, it's not at all unusual for people with dry eye to get variations in their diagnosis with every specialist that they visit. This is definitely not as simple as going to the world's expert. There's a lot of experts, and some of them are tuned more to one issue than another. Echoing epicjinx... geographic clues would help with ideas.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Jack View Post
    I am new here. I can't tell if I have dry eye, even after visits to at least 10 different eye doctors and surgeons. But I very much do have a severe eye problem.

    I have some of the symptoms of dry eye, to be sure, but only in the outer corner of my right eye. For some time I believed this was not dry eye but the result of revision surgery to correct scleral show from previous cosmetic surgery. Occulopoastic surgeons concurred, but not one of them seedm to know for sure.

    I have tried many different eye drops, none of them make a difference or help. Most seem to sting and do not good at all.

    I wonder who is the world's expert on dry eye, and should I go see him/her? Anybody know?
    First of, where abouts are you? UK/USA etc? Once you are able to say - people maybe be able to help with input. Eye drops dont work because it doesn't treat the main problem only masks symptoms.

    Leave a comment:


  • Jack
    started a topic Depressed and despondent.

    Depressed and despondent.

    I am new here. I can't tell if I have dry eye, even after visits to at least 10 different eye doctors and surgeons. But I very much do have a severe eye problem.

    I have some of the symptoms of dry eye, to be sure, but only in the outer corner of my right eye. For some time I believed this was not dry eye but the result of revision surgery to correct scleral show from previous cosmetic surgery. Occulopoastic surgeons concurred, but not one of them seedm to know for sure.

    I have tried many different eye drops, none of them make a difference or help. Most seem to sting and do not good at all.

    I wonder who is the world's expert on dry eye, and should I go see him/her? Anybody know?

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