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  • #16
    Yes, my daughter now knows the practicalities of taking her somewhere in the car after a certain time of day, and actually so do her friends. In fact I started to say "I can't do that because....", and she finished the sentence off "cos of your eyes, yeah I know"! Sad really, and she's used to it. Bit sad also that will probably be an everlasting memory of her Mum.

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    • #17
      It saddens me that my daughters used to get anxious about me when they were young.

      I spent an awful lot of time at the hospital because of my eyes - leaving them to look after themselves or relying on neighbours but they managed! They had the things that mattered most.

      Kids can be amazingly resilient and accommodating.

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      • #18
        Originally posted by stella View Post
        In my opinion no ophthalmologist or optometrist/optician can really help blepharitis --- not even the best in the world, because there is NO CURE for this condition at this moment in time .So it is a useless waste of energy time and money looking for "the wonderful doctor who has the cure"
        This condition along with many other medical conditions, can at best only be managed
        How we go about managing it is very individual
        We can only keep trying different options until we find a programme of treatment which is best for "me"
        That is where this community is sooo helpful -- sharing experiences and things that help
        Proffessionals can and ought to give us support and encouragement and offer the standard things that are used, like eyelid hygiene lubricants plugs etc but that is all they can do
        Hopefully in the future there will be more options as new research is done

        Then of course some proffessionals are more clued up, and knowledgeable than others, but at the end of it all -- we are left with an incurable condtion which only we can manage
        Thats the conclusion I came to quite a while ago
        We dont get the help because it just does'nt exist
        If it did -- all the ophthalmologists good or bad would soon know about it and be offering it
        I hope I am not being pesimistic -- I would just hate to see people out there spending all their money looking for the Dr with the answer
        Im late on this,

        I have been spending my money on finding a cure or improvement and found hardly anything, i dont seem to be a typical MGD patient tho.

        But i agree with this, people should try to find treatments, go and see a doc here or the UK.. if they have a specific treatment that you can get, i.e azasite is only available in the US... but if they dont the best they will do in the UK is advise you on compresses, give you more drops, and press on them with a q tip if your very lucky.. You can get all the advice on here, going to UK docs for dry eye seems pointless waste of money and i gave up ages ago.. i still spend my money trying new things tho but not through UK docs. Specialist options are very helpful however, but again cant really do anything more or tell you anything else than this site can imo.
        I healed my dry eye with nutrition and detoxification. I'm now a Nutritional Therapist at: www.nourishbalanceheal.com Join my dry eye facebook group: https://www.facebook.com/groups/420821978111328/

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        • #19
          antibiotic ointement

          Dear Stella,

          E 'possible to know the exact name of ointement with chloramphenicol
          you put on the eyelids ?
          Optrex? cloromycetin 0,5%? Ointement without cortisone? You put it every night? Without problems? Gives no bacterial resistance?
          Answer me, please.
          I am looking desperately for a therapy to control my MGD. I think that helps a ointement to put on the eyelids every night.
          thanks
          vanna

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          • #20
            wow

            these posts are really depressing , Rory have u tried the Boston sclerals?

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            • #21
              Hi Vanna
              Sorry
              I only saw your post now
              In reply --I use chloramphenicol(chloramycetin)they are the same thing --1%in soft white parrafin/liquid parrafin
              This ointment is available without perscription in GB
              It is very commonly used for eye infections here,although virtually unheard of in USA
              As to bacterial resistance -I have no doubt that i must be resistant by now as i have used it every night -on lid margins only, for well over a year, and it still works for me !!
              My GP has a theory as to why --
              She says that in a conversation with an ophthalmologist he told her this particular antibiotic ointment had zero effect on bacteria (thats probably why it is available OTC)
              Anyway she believes it is the emmolient effect that works for me ??
              I dont know -- i just know the use of this particular ointment has revolutionized my management of my Bleph/MGD/DE
              If in the future if i got an infection of my eyes (God forbid) I would have to use another antibiotic eg fucidin or azasite or something -- I'll cross that bridge if and when I ever come to it ,meanwhile I just keep the same routine
              I have not come across anyone else so far who claims the success i have had with this,but i keep posting in the hope i may help someone out there

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