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Does anyone here have conjunctival chalasis (CCH)?

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  • TARYN
    replied
    Did you get the corrective cch surgery?Yes I would recommend Dr Tseng for cch corrective surgery. He pioneered the surgery and is an expert at it. Sorry your original surgery wasn't successful.

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  • Guest's Avatar
    Guest replied
    Originally posted by TARYN View Post
    Hi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
    With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing
    Hi!! Would you recommend this Dr for my cch corrective surgery? I already had this surgery and it wasn't successful. I still need it fixed and no Dr in NY wants to help me. Thanks!

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  • Alix
    replied
    Originally posted by Topher3 View Post
    Alix I do believe addressing CCH could definitely possibly reduce the symptoms such as burning and tearing and possibly even some dryness/foreign body sensation. However when it comes to redness a lot of the time redness is caused by irritation to the eye and with low amount of meibomian glands it may be hard to reduce redness permanently. Not saying that itís not possible but I donít want you to be down if that is a symptom that is not fixed from the surgery. A great thing in the mean time there is a drop called lumify which works DIFFERENTLY to normal redness relievers and does not cause a rebound redness effect have a look up on it. It works wonders for people! I need to get myself a bottle as my eyes look absolutely horrible.
    Yes you are right, I agree with you the redness is not likely to be fully resolved unless the other issues are fixed.I wish I could have been seen by a doctor who had picked up on everything wrong with my eyes at the outset and then put me on a coherent treatment plan. Instead Iíve seen about 10 different doctors now since last December each telling me something new/different so Iíve had to put 2 and 2 together myself. Not dismissing the doctors as rubbish, they are eminently qualified but they donít seem to be very interested in anything other than sight threatening conditions.

    As for Lumify I have tried in the past to get hold of it but unfortunately itís not available in the UK and the online stores/pharmacies which sell it donít ship to here either.

    Let us know if it works or not Iíd be interested to find out. I might be going to the States next year so could pick some up then.

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  • Topher3
    replied
    Alix I do believe addressing CCH could definitely possibly reduce the symptoms such as burning and tearing and possibly even some dryness/foreign body sensation. However when it comes to redness a lot of the time redness is caused by irritation to the eye and with low amount of meibomian glands it may be hard to reduce redness permanently. Not saying that itís not possible but I donít want you to be down if that is a symptom that is not fixed from the surgery. A great thing in the mean time there is a drop called lumify which works DIFFERENTLY to normal redness relievers and does not cause a rebound redness effect have a look up on it. It works wonders for people! I need to get myself a bottle as my eyes look absolutely horrible.

    Leave a comment:


  • Alix
    replied
    Originally posted by TARYN View Post
    Hi Alix. Make sure that after they excise the conjunctival folds that they cover the area with amniotic membrane. I think that is key to a successful outcome of having a smooth surface with no scarring and a quicker healing period.
    I will make sure I ask about amniotic membrane as well. Thank you again.

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  • TARYN
    replied
    Hi Alix. Make sure that after they excise the conjunctival folds that they cover the area with amniotic membrane. I think that is key to a successful outcome of having a smooth surface with no scarring and a quicker healing period.

    Leave a comment:


  • Alix
    replied
    Originally posted by Dowork123 View Post

    I understand, but if you treat the problems you know exist, you can start narrowing down the actual causes of the pain. This is the beginning of your road to recovery in my opinion. I think the cch is a huge issue. Iíve read throughout this process that even minor cch can cause huge burning. You may fix the cch and feel perfect regardless of the other issues. Only one way to find out sadly.
    True, the burning sensation is right where the excess folds are. It would be so amazing if a simple surgery could fix the burning but I'll keep my expectations low as usual.
    In the meantime I'll carry on taking the Ikervis, do a trial test of the scleral lens, and try and forget about it all until my next appointment at the hospital in January.

    Leave a comment:


  • Alix
    replied
    Originally posted by TARYN View Post
    Hi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
    With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing
    This is good to know, thank you. If my condition does not improve with the Ikervis, I am going to ask about surgery when I go to Moorfields NHS in January. If they say no, I will go see a consultant at Moorfields private and get a second opinion. My company health insurance will cover the surgery costs so I have nothing to lose.

    Leave a comment:


  • TARYN
    replied
    Before I see him, his assistant does the full range of tests...dyes, TBUT, etc,. Plus he has a very powerful camera so you can see your eye in a very large format and see every detail of the surface of the eye. I could not see the conjunctival folds in real life but he took a video so you could see the folds moving. I could see the pinguecula in real life when I looked into a magnified mirror. It looked like clear bumps.

    Leave a comment:


  • MGD1701
    replied
    Hi Taryn
    How did your doctor detect CCH and pinguecula? with dyes, if so, which one, just curious.

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  • TARYN
    replied
    I forgot to say, when I first started experiencing tearing, I thought i had a blocked tear duct. I went to an oculoplastic doctor and he tested to see if my tear ducts were blocked. The tear ducts were open so I then thought it might be the pinguecula. Since the tearing has stopped after the surgery, it was probably the pinguecula.

    Leave a comment:


  • TARYN
    replied
    Hi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
    With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by Alix View Post

    Possibly yes. The problem is there is an issue with every part of my eye so they are all contributing to the burning pain and redness I am suffering from....
    I understand, but if you treat the problems you know exist, you can start narrowing down the actual causes of the pain. This is the beginning of your road to recovery in my opinion. I think the cch is a huge issue. Iíve read throughout this process that even minor cch can cause huge burning. You may fix the cch and feel perfect regardless of the other issues. Only one way to find out sadly.

    Leave a comment:


  • Alix
    replied
    Originally posted by Dowork123 View Post


    Thanks for coming back and sharing this.

    Alix
    Looks like Ike you have an avenue to peruse. See what some docs say about your CCH. I think youíre onto something here.
    Possibly yes. The problem is there is an issue with every part of my eye so they are all contributing to the burning pain and redness I am suffering from....

    Leave a comment:


  • Alix
    replied
    Originally posted by TARYN View Post
    My CCH was mild also. I tried drops and compresses but nothing helped except the excision of the conjunctival folds and the placement of the amniotic membrane over the area that was operated on. You are right about it causing an unstable tear film which produced the symptoms of inflammation, redness and burning. My tears were not fully covering and lubricating the ocular surface. It was an easy recovery and I felt relief from my symptoms immediately. I would assume it would have gotten worse if I did not take care of it, but I don't know how fast or slow it would have progressed.
    Thank you this is very interesting. I have the same symptoms. The burning is more in the lower corners of my eyes which the doctor attributed to partial blinking/exposed sclera but it could be because I have CCH....the excess folds are there but only one doctor has picked up on it. I am wondering if itís because it developed recently, in which case it wouldnít explain why Iíve had burning pain for a year, or if itís because it is so mild. The folds do not look as bad as the images Iíve seen on google.

    When you had surgery how long did it take and were you able to go back into work the next day?

    Also did the doctors mention anything about how to rid of the folds naturally or with an eye drop or is surgery really the only solution?


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