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Many thanks to Beth @ Boston Foundation for Sight for providing these resources!
Chronic Eye Pain Resources
1. Daily Strength
http://www.dailystrength.org/
Daily Strength is an online support group hub, with links to more than 500 groups and forums. This community of more than 5,700 members includes groups on many eye-related topics, including: dry eyes, blindness and visual impairment, keratoconus, cancers, chronic pain, shingles, scleroderma, and many more.
2. Patients Like Me
www.patientslikeme.com
Patients Like Me is a website with more than 150,000 members dedicated to putting patients first. They do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions. On their website you can:
• Read about patient like you – filter results by age, gender, treatment, symptoms and/or condition
• Explore reports on various treatments, including prescription medications, over the counter medications and supplements
• Learn about symptoms – severity, treatments taken, and what patients have to say about their experiences
• Search by condition – enter your condition for reports, therapies, patient stories and more
3. CarePages
http://www.carepages.com/
To keep family and friends updated during a health challenge, CarePages provides free patient blog websites. These personalized websites can include stories, updates, photos, and messages of support from family and friends. Access to each blog is controlled by the creator to ensure privacy.
Further enhancing the patient support community, CarePages also provides a resource center where you can find inspirational stories, tips for self-care and care giving, and information on health conditions. Discussion forums offer an opportunity to share with others who are experiencing similar health or care giving challenges.
4. CaringBridge
http://www.caringbridge.org/
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. Powered by generous donors, CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most.
5. Pain Research Forum
http://www.painresearchforum.org/
The Pain Research Forum is a joint project of the Harvard NeuroDiscovery Center and MassGeneral Institute for Neurodegenerative Disease Informatics. The site is supported by two anonymous charitable foundations. Launched in May, 2011, the Pain Research Forum (PRF) is an interactive web community dedicated to finding treatments for untreatable pain conditions. Modeled on the highly successful Alzheimer Research Forum and similar sites for schizophrenia and Parkinson’s disease, the PRF aims to build a virtual meeting place for investigators in academia, industry, medicine and other fields who are working to translate basic neurobiology into new treatments for chronic pain.
Resources include papers/research briefs, forums, meetings/events and a member directory with 512 entries of researchers and practitioners- over 70 focus on neuropathy / neuropathic pain.
6. North American Neuro-Ophthalmology Association
http://www.nanosweb.org
Directory of neuro-ophthalmologists: http://www.nanosweb.org/i4a/member_d...90&showTitle=1
7. The American Pain Society
http://www.ampainsoc.org
The American Pain Society is a multidisciplinary community that brings together a diverse group of scientists, clinicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering.
8. Pain Clinician
http://painclinician.com/
Tons of medical resources- papers/publications and guidelines for disease management: http://painclinician.com/resources/c...uropathic_pain.
PAINClinician® is an independently funded forum committed to improving clinician access to high quality pain education. PAINClinician® provides clinicians with an opportunity to share their insights and experience managing patients with debilitating acute and chronic pain disorders. By consolidating resources already available and generating new educational materials tailored to the needs of the community—all identified through ongoing surveys posted throughout the site—this forum will, we believe, facilitate the exchange of ideas, help clinicians practice the art and science of pain medicine, and ultimately improve patient care. Primary care physicians, pain specialists, emergency room clinicians, surgeons, physiatrists, anesthesiologists, neurologists, pharmacists, physician assistants, nurse practitioners, nurses, and the countless other healthcare providers who treat pain are all invited to participate in this global community.
9. The American Chronic Pain Association (ACPA)
http://www.theacpa.org/
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. Mission: To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain. To raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
10. American Pain Foundation and PainAid
http://painaid.painfoundation.org/
11. Pain.com
http://pain.com/
Comprehensive List of Pain Clinics- searchable by demographics
12. American Academy of Pain Management
http://aapainmanage.org/
13. American Academy of Pain Medicine
http://www.painmed.org/
Find a physician by specialty and demo: http://persweb.connect2amc.com/aapm/...7/Default.aspx
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