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http://www.eurordis.org/
http://rarediseases.info.nih.gov/Res...cy_Groups.aspx
http://www.rarediseaseday.org/country/finder
Important to know about worldwide rare disease networks. These organisations are working on research, health service awareness, coordinated treatment provision and developing 'orphan' drugs. They can help us find specialists and research centres and access unusual treatments and management where eye problems are caused by systemic conditions.
http://rarediseases.info.nih.gov/Res...cy_Groups.aspx
http://www.rarediseaseday.org/country/finder
Important to know about worldwide rare disease networks. These organisations are working on research, health service awareness, coordinated treatment provision and developing 'orphan' drugs. They can help us find specialists and research centres and access unusual treatments and management where eye problems are caused by systemic conditions.