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Rare Disease Impact Report http://www.raredisease.org.uk/docume...act-report.pdf Results of UK and US survey 2012 to improve help for people with rare or undiagnosed conditions.
More information on international and national networks for diagnosis, finding treatment and support from
http://www.rarediseases.org/ USA
http://www.raredisease.org.uk/ UK
Orphanet - international portal for rare disorders and drugs
http://www.orpha.net/consor/cgi-bin/index.php
More information on international and national networks for diagnosis, finding treatment and support from
http://www.rarediseases.org/ USA
http://www.raredisease.org.uk/ UK
Orphanet - international portal for rare disorders and drugs
http://www.orpha.net/consor/cgi-bin/index.php