Cornea neuralgia as a result of refractive surgery or corneal trauma.

[insidious988]

ebi1368 yes I left the lasik group pretty quick.

Talking to people who are sure they have neuropathy most either
- Are like me and feel severe pain 24/7 even with their eyes shut. Literally no relief even from drops.
- Or they have some sort of severe burning or feeling of cuts in their eyes despite there being no/little staining that fluctuates in pain level.

Most people with neuropathy are suicidal from their level of pain and may get their dry eye better in terms of lipid layer or tbut but feel no relief.

Overall it's hard to tell when dry eye becomes neuropathy...I don't think anyone can tell you that you have it for sure but it's more a gut feeling. My eyes were dry to start with and that pain was bad but now they feel very different - enough so that I would kill myself if I can't find relief.

Brilliant post. I am at this stage. Years and years I have this disease and only now some doctor suggested that I have neuropathic eye pain.

You are right, I often thought about suicide because no treatment helped and all hope was gone. The pain stayed.

Now I got prescribed Nortriptyline and pharmacies around here don't have it in stock - trrouble with delivery.

when will all this end?

On July 25th I will get confocal miscroscopy

Dowork123 Around the onset of my dry eye I had a two week insomnia. I am sure that did not help. Wish I had a time machine. Does dryness wake you up?

It can, but I don’t think it has in a while because I’ve been taping my eyes. When I had no clue sleep was the problem, I was waking up multiple times per night just completely red and painful eyes. I couldn’t use gel or ointment, so I just put drops in every two hours when I would wake up.

[hopeful_hiker]

Dowork123 Around the onset of my dry eye I had a two week insomnia. I am sure that did not help. Wish I had a time machine. Does dryness wake you up?

[hopeful_hiker]

Dowork123 Around the onset of my dry eye I had a two week insomnia. I am sure that did not help. Wish I had a time machine. Does dryness wake you up?

https://watermark.silverchair.com/sl...-UYSVEg03MJ0TQ


lack of sleep causes inflammation and increased pain. Yeah, tell me about it. I have only slept more than 4 hours maybe a handful of times in this last year.

this further supports the idea that sleep apnea is directly related to floppy eyelid syndrome. Increased MMP inflammatory markers destroy the collagen in the lids and make them elastic (floppy). That’s the idea that’s been proposed, haven’t found any studies with a direct link yet.

I used to skeep 10 hours a day, 8 minimum. I know that if I could sleep, I would feel much better.

No, I wasn’t. My eyes were dry because I had electric heating on constantly and I was using heartburn medication that may have caused mild dryness. In any case, my eyes were on the dryer side and my room’s humidity was probably like 25% at best. So when I slept I started to feel roughness (probably had staining already on cornea at that point). When I placed a pillow on my face it reduced the sensation but in retrospect it was a terrible idea to press dry eyes with something without any lubrication.

You didn’t know at the time, the idea makes sense. I had dry eye for years and had no clue until I look back on it now. I think I saw you took rabeprazole (aciphex correct?)...I took that drug for many years. I stopped taking it and adjusted my diet and thankfully cane off a couple years back. I’m wondering if that played any role in this also? Interesting to hear you say that though.

[hopeful_hiker]

Were you possibly sleeping with your eyes open? Is that why you used the yoga pillow?

No, I wasn’t. My eyes were dry because I had electric heating on constantly and I was using heartburn medication that may have caused mild dryness. In any case, my eyes were on the dryer side and my room’s humidity was probably like 25% at best. So when I slept I started to feel roughness (probably had staining already on cornea at that point). When I placed a pillow on my face it reduced the sensation but in retrospect it was a terrible idea to press dry eyes with something without any lubrication.

https://m.youtube.com/watch?v=mEs5z9BAiGQ&t=0s

Mid way through the video she brings up a couple pictures of eyelids with the meibomium glands imaged. She said something interesting, she said that when she has patients come in complaining about headaches and pressure behind the eyes, it’s most likely a meibomium gland issue.

This is good news I suppose. If I have to get an appt with dr cremers I may do it. I’ll be bringing this up to Jain again the 31st and if I don’t get an answer, I’ll move on to Cremers or someone else.

ebi1368
hopeful_hiker
edmunder

No, but I did have a sudden onset of dry eye. My cornea had damage at the beginning (punctuate keratitis and scratches) which I did not feel (as pain). I slept with a yoga face pillow on my eyes because they bugged me. Also, I stopped using eyedrops because they did not help me. I think this lead to some sort of nerve damage.

Were you possibly sleeping with your eyes open? Is that why you used the yoga pillow?

I bekieve I had corneal desensitization prior to the injury. I think that’s why when the dust hit my eyes, I didn’t really feel it so I kept on working. I believe I had dry eye and slept eyes open for years...maybe even 10 years before this happened. At first, when asked if I had dry eye, I was like, no way. But I think I was wrong.

Looking back, I had minor issues I never realized was dry eye. I thought they were allergies..but I think with my eyes dry and exposed, those irritants were getting to the surface of the eye more easily, causing agitation. I had tearing in the mornings sometimes, but that stopped over 7 years ago. I forgot all these things...

[hopeful_hiker]

I forgot, did you have a sudden onset or s trauma like lasik?

No, but I did have a sudden onset of dry eye. My cornea had damage at the beginning (punctuate keratitis and scratches) which I did not feel (as pain). I slept with a yoga face pillow on my eyes because they bugged me. Also, I stopped using eyedrops because they did not help me. I think this lead to some sort of nerve damage.

That reminds me of when my dry eye began. I could keep my eyes open for a while and nothing would happen. No tearing, no burning, etc.

I forgot, did you have a sudden onset or s trauma like lasik?

[hopeful_hiker]

I remember when I first started taking my serum, my corneas were almost numb.

That reminds me of when my dry eye began. I could keep my eyes open for a while and nothing would happen. No tearing, no burning, etc.

Please update us after because I was suspecting sinusitis as well.

Thanks

He just scoped my sinuses. He sees nothing wrong at the moment. Told me my septum was deviated heavily to the left. Asked if I have a problem breathing from my left nostril. I said no, he closed the right, asked me to breath and said, so odd, you’re breathing so good from that side.

so now he’s going to get films done of my sinus, see if we can dig a bit deeper.

He also said, you have a lot of drainage in your throat, do you notice that? I do not. He thought that was very odd that I had no symptoms based on what he saw.

Again, I’ll update when the films get done. I didn’t think this was my sinuses. But my external disease doc ruled out a blocked tear duct. He did see inflammation and ashes me to up my steroids to twice a day in that eye and it helped A LOT. I think my burning is the conjunctiva being inflamed...possibly from exposure (sleeping eyes open, partial blink) or possibly bacterial. My next step, if the sinuses are good, is to ask for moxafloxacin for the right eye. I haven’t run a proper course of antibiotic in my right eye since this started. It’s just a guess but I believe I have nothing to lose and everything to gain by using the antibiotic.

EDIT: we did a CT scan there’s nothing wrong with my sinuses.

[ebi1368]

Not exactly, but it’s a really really good sign. You could have hyperalgesia, your nerves could be firing for no reason....sadly it’s not cut and dry. But again, it’s a good sign. I remember when I first started taking my serum, my corneas were almost numb. The cold serum would hit my eye and there would be no reaction. Now when the cold drop hits the eye, I feel it. Sometimes my lids close or Ijerk a bit. Especially if it catches me off guard. So I believe my corneal sensitivity is good, maybe too good. Because I’m sensing normal stimulus as noxious.

I could be wrong. This could all just be extreme evaporation and dry eye...but I need to find an answer. That’s why I posted the thread. I may find out this was no big deal...in which case the thread is still very useful for someone in my position, that reads it in the future.

Full discolsure, I write these threads for the people who have yet to have a problem, or those looking for an answer like myself. I’m not doing this to seem smart or cool. I’m not trying to put together medical literature. I’m not qualified to do that. I just want to discuss ideas that may clue someone into to more research. Research that may help them eventually find some help.

im at the ENT right now seeing if my right eye burning/pain/headaches are related to my sinuses. If it is, god I’ll be happy. That’s an easier fix than corneal nerve damage.

Please update us after because I was suspecting sinusitis as well.

Thanks

My Doctor did cornea sensation testing for me yesterday. She told me my cornea sensation is fine. Does it mean, that I do not have cornea neuralgia?

Thanks

Not exactly, but it’s a really really good sign. You could have hyperalgesia, your nerves could be firing for no reason....sadly it’s not cut and dry. But again, it’s a good sign. I remember when I first started taking my serum, my corneas were almost numb. The cold serum would hit my eye and there would be no reaction. Now when the cold drop hits the eye, I feel it. Sometimes my lids close or Ijerk a bit. Especially if it catches me off guard. So I believe my corneal sensitivity is good, maybe too good. Because I’m sensing normal stimulus as noxious.

I could be wrong. This could all just be extreme evaporation and dry eye...but I need to find an answer. That’s why I posted the thread. I may find out this was no big deal...in which case the thread is still very useful for someone in my position, that reads it in the future.

Full discolsure, I write these threads for the people who have yet to have a problem, or those looking for an answer like myself. I’m not doing this to seem smart or cool. I’m not trying to put together medical literature. I’m not qualified to do that. I just want to discuss ideas that may clue someone into to more research. Research that may help them eventually find some help.

im at the ENT right now seeing if my right eye burning/pain/headaches are related to my sinuses. If it is, god I’ll be happy. That’s an easier fix than corneal nerve damage.