could my doctor be wrong about my corneal neuralgia?

[DrHouse911]

the best way to address to neuralgia issue is to see neurologist. The issue you will encounter is that, if it something they dont usually treat like neuralgia caused by diabetes. They won't believe you.

The best neuroligist that's really open minded help me treat my pain issues, which seems simlar to yours is dr norman latov in NYC.

the second issues is some pain meds are off label
things that worked for me is klonpin and cymbalta.

klonpin you need to get from psychaitrist.

cymbalta is approved to treat neuralgia.

if its neuralgia, and the pain meds work. ( this requires experimentation with you and your dr) the pain will go away quickly.

My doctor a dry eye specialist kept telling me I had neuralgia because despite all my treatments I will had stinging and burning but my eyes looking good. The fact of the matter is that I have severe MGD. After a year of trying everything I have been able to eliminate the stinging and burning so no neuralgia just severe MGD. Like the other poster shared this disease is so complex. A neighbour has stage 3 MGD and minimal symptoms. Wears full eye make up and contacts. What are your symptoms and what have you done to treat them? I’m my experience this disease takes a lot of time and effort to get under control.

[LindaDawn]

Hi. I have had my opthmalogist say to me plenty of times that may symptoms don’t match the signs. She says my corneas are reasonable but I am in such discomfort. My lioview was 70 and 100 is normal. I think I must have neuralgia too. 40 is very low but your tear break up time is good. Lots of us on this site are still trying to understand more about these condition.its very complex.

[avocadoeyes]

my ophthamologist, who is a dry eye specialist and very knowledgable, insists that i have corneal neuralgia aka phantom cornea etc. he tells me my eyes are healthy and my symptoms are way out of proportion to what i'm feeling.
can anyone with knowledge on this subject tell me what they think?

-i am positive my symptoms come from taking accutane
-from lipiview test i know that my meibomian glands are all intact, they secrete clear oil, BUT my lipid layer is in the 40s in each eye
-my TBUT varies but has been 8/10 in both eyes (
-main symptoms = terrible light sensitivity, and often redness in the eyes. occasion dryness, fluctuates usually they feel fine in morning and worse later in the day

so, i know accutane somehow caused my glands to make less oil hence my low lipid layer, but my doctor claims this is NOT enough to be causing all my symptoms, he says he has patients with much worse oil and worseTBUT who have less symptoms than me so he is certain i have corneal neuralgia.

could he be wrong? is it possible that the decreased quantity of oil alone causes my light sensitivity and bloodshot eyes? i dont know what to do

thank you so much