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  • RonnieD
    started a topic Mercury/Heavy Metals - new theory after 15 years

    Mercury/Heavy Metals - new theory after 15 years

    Hey, I've posted for years and have tried a lot of crazy programs beyond conventional eye drops, compresses, etc. including detoxes, cleanses and taking extensive probiotics. I've seen eye specialists all across North America, from Vancouver to Miami, Los Angeles to New York, and none could help. I even went through extensive testing at the Mayo Clinic in Scottsdale but all results were normal despite my constant pain.

    My chronic dry eye began back in 1997, two weeks after I received a vaccination for traveling to Western Europe. While in Paris, I caught a cold and from that point onwards, I've had chronic eye pain, joint pain, fatigue, dry skin, digestive issues and brain fog. The biggest problem, by far, has been with my eyes.

    I was recently tested for heavy metal toxicity, via urine analysis, and the results show extremely high levels of mercury. Mercury was the preservative used in the vaccination I received back in 1997, two weeks before catching a cold and having all of my problems start.

    Mercury is a heavy metal that can cause a wide range of problems, including eye pain/dry eye. Urine analysis for mercury is somewhat controversial. Some doctors claim only a blood test is relevant while many other doctors claim that blood tests will produce false negatives as mercury is absorbed by the muscle, bone and neurological tissue, specifically the eyes. I've had extensive blood work conducted by all kinds of doctors over 15 years for a variety of potential issues and all tests have always produced normal results with no indicated problems.

    For me, the mercury explanation is finally something - after 15 years - that makes sense with my situation. I have started the heavy metal chelation (removal) process by taking DMSA (first 25 mg 5x daily, now 50 mg 5x daily) for two days on, five days off. DMSA is a prescription drug that has been used for decades to chelate heavy metals. It pulls out not only mercury and lead from the body but also other essentially vitamins, so the program is to take DMSA 2 days on, 5 days off, while taking a mineral supplement 2x daily on off days. Given my extremely high levels of mercury, I might have to take DMSA for up to 2 years; other, less severe cases might require DMSA for only 6 months. I was told not to expect to see any positive results for many months but I am already starting to feel a little better, after just a month on the DMSA.

    I am based in Canada, and could not get mercury urine testing through the public system so I had to go to a private lab, through a naturopath (I would have preferred to go through a general physician but that is not an option in Canada to get to private labs). I had previously seen a GI specialist in Los Angeles who prescribed a lab req form for urine collection and analysis of heavy metals so this testing might be easier to obtain in the US.

    The cost of the lab analysis in Canada was about $330. Before collecting the urine, it's imperative to take DMSA as a provoking agent for two days (given to me by the naturopath), while avoiding seafood consumption for days before. Over a span of 15 years, I have spent a TONNE of money seeing real doctors and naturopaths and buying antibiotics/supplements, none of which have worked. I do not recommend herbal supplements, detoxes or cleanses, despite what any miracles are promised by naturopaths. I also do not recommend any lubricating eye drops, prescription eye drops (including Restasis, corticosteroid drops, etc.) as none have ever worked for me.

    The form of mercury detection is somewhat controversial (with doctors arguing over the relevance of urine vs. blood testing) but the symptoms of mercury toxicity appear to be more generally accepted. My symptoms are consistent with the list of what can be caused by mercury toxicity and the urine testing indicates mercury is the culprit so I will continue to take the DMSA and provide an update back here in about 6-9 months as I do not frequent the site much. I certainly hope this is the explanation/solution for me and I will check back to let you know of my progress in the summer/fall.

    Mercury can enter the system through a variety of means, including foods (mostly seafood), environmental pollutants, etc. but it is most problematic for some people if introduced through vaccines or dental filings. Most people can chelate (expel) mercury fine and do not experience problems, but a small percentage of people have a genetic predisposition that prevents them from chelating mercury.

    I would be interested to see posts from others who have experience with mercury and eye pain.

    Good luck.

  • RonnieD
    replied
    Hey everyone - I haven't been here for awhile, because I haven't had progress for an extended time. The mercury chelation did provide some improvement, but for a short, unsustainable duration.

    Lately I have been experiencing some improvement on medication to treat SIBO (small intestinal bacteria overgrowth). I - like so many of you - have been desperate for a solution. For a few years, I felt like the mercury chelation was the answer, but it was not, so I will stop posting on this board, and will start a new one with my experience relating to SIBO.

    Good luck to all of us!

    Leave a comment:


  • RonnieD
    replied
    Dude,

    There are various ways to test for heavy metals (I advocate urine analysis as the best method) but I am unaware of a test that connects heavy metals and dry eyes. I wasted 16 years seeing eye specialists, none of whom could do anything other than recommend lubricating eye drops and prescribe corticosteroid eye drops, which cause problems with extended use.

    Also be aware that if mercury is stored in the brain it will never show in any kind of heavy metal testing.

    Leave a comment:


  • eyetoeye
    replied
    Hello,

    Is there any study that makes connection between heavy metal and dry eyes? I could use it to convince my doctor to test me in heavy metals.

    Thank you

    Leave a comment:


  • RonnieD
    replied
    Hey, I'm back for the first time in 14 months to post about my process of mercury chelation, which I'm more than two years into, as a means for trying to solve my chronic eye pain I've had since 1997. The update is bad news, followed by good news.

    First the bad news. 2014 was a tough year for my eyes. I spent the year continuing on the Cutler mercury chelation program. After having had success at the end of 2013, essentially all progress was lost last year. I spent the year on the program of taking DMSA and Alpha Lipoid Acid (ALA) every 4 hours around the clock (yes, even waking up at night) for three days on, four days off. Each time I took 50 mg of DMSA and 100 mg of ALA. I was diligent in this program but did not see positive results, like I had experienced during the Fall of 2013. I definitely felt light years better during Fall 2013 than at any point in 2014.

    In December I thought about the DMSA/ALA program. The Cutler protocol says the first six months of a chelation program should consist of just taking DMSA, to chelate mercury from muscles/bones, and only then ALA should be added because it crosses the blood-brain barrier. Initially only DSMA should be taken to chelate mercury out of muscles/bones because if ALA is initially combined with DMSA, then mercury will be moved from muscles/bones into the brain. So, the steps are: 1. Chelate from muscles/bones. 2. Chelate from the brain.

    Two months ago in December 2014 I thought, maybe I've pulled so much mercury from the brain with the DMSA/ALA that I need to just take DMSA and remove mercury from my muscles/bones. I continued with the cycle of taking 50mg of DMSA every four hours, three days a week, but stopped taking ALA. To my surprise, I felt much better within two weeks! I took only the DMSA for about 6 weeks and over the past 2 weeks have reintroduced the ALA. My eyes - and entire body - are feeling so much better, and comparable to how I felt in Fall 2013. Not only has my eye pain diminished again, but my vision has improved (specifically at night), the redness has decreased, my skin has improved, my digestion is better and I am more energetic. Last year my eyes felt bad and I did not have much energy. Going to the gym was an ordeal. Now, my eyes are feeling better and I can go to the gym and have lots of energy to lift weights for an hour, four times a week.

    Here I am, over 2 years into the Cutler mercury removal protocol, which may take as long as 5 years. You can tell from my posts over the past 2.5 years, this is not an easy path and there has been a lot of turbulence. However, my eyes are the best they have felt since 1997 (when the pain suddenly started after a travel vaccine) and my quality of the life is the best it has been in 20 years.

    I will continue with the Cutler protocol and update my status occasionally. I intend to have some waves where I take both DMSA and ALA (50mg and 100 mg respectively, every four hours, three times a week), followed by periods where I only take the DMSA. For clarity, on the four off-days every week, I replenish my body with the vitamins removed by the DMSA, and take a quality probiotic. The supplements I take on the four off-days every week are:

    *Magnesium 150 mg 2x daily
    *Echinacea/Goldenseal Root (radiance brand) 450mg 2x daily
    *Ginger Root 550mg 2x daily
    *Lutein 6mg 2x daily
    *Flaxseed Oil 1200 mg 2x daily
    *Vitamin D 1,000 UI 2x daily
    *Zinc 50 mg 2x daily
    *Shellfish free Glucosamine 500mg 2x daily
    *Digestive enzymes 200mg 2x daily
    *B100 complex 2x daily
    *Align probiotic 1x daily. This is to repair damage mercury has inflicted on my gut. I have tried an extensive variety of probiotics and find most are a waste of money and/or make me feel worse or the same. I think Align helps me.

    I have also taken vitamin A and E supplements before but ran out months ago and have not had a chance to replenish those supplies. I drink orange juice and eat oranges/kiwis so I do not take vitamin C supplements.

    In addition, I continue to avoid sugar, processed foods and eat mostly chicken, eggs, vegetables, fruits, nuts and rice.

    For clarity, I am not 100% better. I would estimate my eyes are feeling 50% better than 2.5 years ago when I started to program. I did not fall into this easily. This April will represent the 18th anniversary of my eye pain. I'm not saying this is right for anyone else, but this is my journey and I am improving. I will post back at some time in the future.

    Good luck!

    Leave a comment:


  • sazy123
    replied
    Hi Ronnie,

    Thanks for your update. I have just posted in the triumphs section. I have been detoxing heavy metals (mercury maybe and others) for 1 year now, it's still going but my eyes are ALOT better! Also do is my generally health.

    I did not do chelation but I did it through diet, supplments and saunas and baths to sweat toxins out. I agree that it doesn't come out at a reasonable rate, some times (ussualy if I overdid the bath or something else it would come out to fast and I got healing crisis.

    I did lethargic, thirsty, tired and other symptoms which were manageable the majority of the time. Did you get much comming out in sweat, did it smell metallic? I got droves of it comming out in sweat!!


    Sazy

    Leave a comment:


  • RonnieD
    replied
    Okay, from the last time I posted two months ago, I didn't follow my own advice. My eyes were feeling so good on the mercury removal program that I thought "if some mercury removal agent is good, more is better." Big mistake. I reduced the frequency of taking DMSA/ALA from every 4 hours to every 3 hours, essentially a 33% increase; that resulted in moving too much mercury and all of my symptoms, including my eye pain, got way worse. I even ended up with horrible stomach problems for the first time. I have subsequently reverted back to my previous frequency of DMSA/ALA every 4 hours, and the positive results have returned. All of my symptoms, including eye pain have diminished.

    What is remarkable is that with my eyes less irritated, the vision has also improved. I used to have really bad peripheral vision and needed glasses with a slight prescription (-0.5/-0.75) for long distance vision. Now, my peripheral vision is excellent and my distance vision has improved and I do not need the glasses.

    I am now 12 months into the mercury removal program and it is making a big difference for my eyes. I have wasted a lot of money seeing naturopaths who gave horrible advice - specifically with respect to DMPS IV's - which should never be taken. The success I have realized has come from following the book "Amalgam Illness: Diagnosis and Treatement" by Andy Cutler which I picked up for $40 on Amazon. The book is a fraction of the cost that a naturopath will charge for multiple visits, but it provides the template that has been providing me with relief. A word of caution: Dr. Cutler says mercury does not come out at a reasonable rate and I completely concur. I was on the mercury chelation program for 10 long months until I really saw a meaningful improvement in my eyes.

    For those who may not be reading this thread from the start, all of my problems, including eye pain started 16 years ago after receiving a standard travel vaccine that contained thimerosal (mercury) as a preservative.

    I will try and post an update again within the next few months.

    Good luck.

    Leave a comment:


  • Jade
    replied
    On this subject of mercury, the new compact fluorescent light bulbs are full of mercury gas. I read a study that claims that since they're bent, most have little cracks in them which makes them much less safe than regular fluorescent bulbs in terms of the mercury and UV.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Slow and gradual. Makes sense. Mine was supposed to be slowish - and since I was doing it at home I could control the frequency. Still, it was too much. Thanks. This is helpful.

    Leave a comment:


  • RonnieD
    replied
    NotADryEye, thanks for your suggestion. Sorry to hear about your bad experience. According to the Cutler protocol, a chelating IV should never be taken because it redistributes mercury into the most vulnerable parts of the body and makes symptoms worse. The strategy for proper chelation is a long, slow gradual removal.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    RonnieD,
    Please do be careful as chelation can be very hard on the meibomian glands. You secrete whatever you release into your eyes via your meibomian glands. When I was on chelation (a DMSA suppository) I ended up with the worst case of saponification imaginable. My tears became very frothy. It was like having dish soap poured into the eyes 100% of the time. Just awful. Keeping them opened or keeping them closed, it was terrible. It has taken something like 9 months to subside and I have vowed that I will never go on chelation again no matter who suggests it.

    But if it is helping you that is great. Just proceed with caution.

    Leave a comment:


  • RonnieD
    replied
    Hey, here's an update on my status. I am now following mercury chelation as per the Cutler protocol, which I discovered a few months ago. I am on week 10 of taking both DMSA (50mg, every 3-4 hours, including during the night, 3x weekly) and ALA (100 mg at the same time as the DMSA). I knew introducing ALA to DMSA would make the program hard. The first 8 weeks were bad. My brain fog was intense and my eyes were painful. I didn't go out on weekends because I felt so lousy. I suspect that the dosage consumed was too high to start off with. However, for the past two weeks, my brain congestion has subsided, my voice has become less hoarse, I can breathe out of both nostrils simultaneously (extremely rare for me) and my eyes are feeling better.

    The ALA/DMSA combo was so tough at first that I nearly stopped it but I am glad I persevered and intend to stay on it for at least the next 6-9 months. I expect bad periods along the way, but also that the general trend will be positive. I will try and wait a few months until posting again.

    Leave a comment:


  • LaDiva
    replied
    Thank you for the update Ronnie, and happy to hear you are feeling better. Fingers crossed for your eyes!

    Leave a comment:


  • RonnieD
    replied
    Hey, it's been nearly 5 months since I've posted so here's an update on my status.

    I've been taking DMSA now for 8 months and have seen a huge improvement in my body. My eyes are better but not nearly to the same extent as my body so I conducted more research and found a mercury chelation protocol developed by Princeton-educated Dr. Andrew Cutler. DMSA is successful at removing mercury from the body but does not cross the blood-brain barrier. After taking DMSA for six months, he recommends taking a chelating agent like DMSA with Alpha Lipoic Acid (ALA), which does cross the blood-brain barrier. The intent is to take a chelating agent like DMSA for an extended period first so that once ALA is taken with DMSA, the combination does not take mercury from the body into the brain but rather can focus on chelating mercury from the brain/eyes. I started taking ALA this week so hopefully I will see improvement over the coming months.

    I feel like I'm on the right path with DMSA because my eye pain started immediately, simultaneously with other problems, many of which have improved substantially since starting DMSA 8 months ago. My chronic sweating has stopped, my body does not get fatigued after eating healthy food, I have more energy and my joint pain is gone. The next hope is to see more material improvement with my eyes.

    Leave a comment:


  • bakunin
    replied
    Originally posted by RonnieD View Post
    Hey, it's been a month since I last posted so I thought I would provide another update. I keep taking the DMSA and keep feeling better. I had lunch with a long time pal today who interrupted me and said "Dude, why aren't your eyes red?"

    Since starting the DMSA, my chronic joint pain and fatigue has disappeared. I am feeling so much better that I am able to go to the gym 4x a week to lift weights for an hour per session. The weightlifting heightens my appetite which poses a problem for my eyes as a lot of foods irritate my eyes within minutes of consumption (ranging from pork to cereal to raisins to refined sugars). I am eating a greater quantity of food, including foods that still irritates my eyes, but the irritation is significantly lower now, and lingers for a much shorter duration.

    My eyes used to be extremely sensitive to contact with water (from the shower or washing my face) and I used to have severe anxiety but both issues have also disappeared with the DMSA.

    My eyes still have irritation, and I still have progress to make, but since starting the DMSA 4 months ago, my eye pain has gradually diminished and I would estimate that the irritation has reduced by about 30-40%.
    Thanks for the updating Ronnie.

    About pork, I saw one doctor saying it is the "food" that should be firstly avoided by people with autoimmune diseases or such systemic problems. Pork meat is very similar to human meat, then human immune system gets easly confused when people eat pork.

    Leave a comment:

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