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Sjorgens---need advice!!

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  • Sjorgens---need advice!!

    Hey everyone,

    I know im a little young to have sjorgens but the doctors said I should be checked out. I went to the hospital with severe facial pain. It turns out I have Trigeminal neuralgia which apparently is associated with sjorgens. I do not have a dry mouth but I have not been able to taste food in a long time. Anyone else experience these symptoms? thank you!

  • #2
    How old?

    I serve as a moderator for one of our sister forums. www.sjogrensworld.org

    We have members as young as 9 years old. You don't say how old you are.

    Billye

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    • #3
      I do not have a dry mouth but I have not been able to taste food in a long time. Anyone else experience these symptoms? thank you!
      Short answer is I have trigeminal neuralgia brought on by lasik surgery 7 years ago. It also brought on dry eyes. Fast forward 6 years and I have not only dry eyes, but dry mouth, parched lips and other systemic symptoms. Was diagnosed with Sjogrens last year. My dry mouth only came on within the last two years. If you want to ask anything else, you can PM me.

      Lucy
      Don't trust any refractive surgeon with YOUR eyes.

      The Dry Eye Queen

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