Hi everyone,
I just thought I'd share with all of you my dry eye experiment I am about to begin. First, a little history about me.
- I'm 23 years old.
- I've been suffering from dry eyes since I was 20.
- I have perfect 20/20 vision, but I'm always in constant pain unless my eyes are closed or I'm in the shower.
- I've seen 3 different ophthalmologists, none of which have cured me.
- I've tried lots and lots of dry eye drops for the stores, but none of them work.
- I am currently using 0.05% cyclosporine (also known as retasis).
- I wear swimming goggles around the house, which makes me look silly, but they help protect my eyes. If I take the goggles off, my eyes dry out rather quickly, sometimes they can't even last 5 minutes. I got this idea from "moisture chambers".
- If I go out the house, for example to university, then I have two choices... wear swimming goggles to class and be in light pain, or don't wear the goggles and be in extreme pain. It's a tough choice, but I opt for the extreme pain because I just don't want to be that weird guy with the goggles. It sucks though. I'm embarrassed by my problem.
- My whole life I've been a social person, but with this pain, I'm unable to be who I am, and I do very little socializing these days.
Ok that's enough for the history. I think you guys get the point.
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The Experiment:
Is it possible that the only thing that's wrong with me is that my eyes don't shut properly when I sleep at night? Imagine, for 4 years straight, having your eyes never close all the way when you sleep, and imagine how dry they would become.
I know for a fact that my eyes don't close all the way when I sleep. I have a laptop next to my bed, and sometimes when I'm trying to sleep at night I can see the little blue lights on the laptop cover (just below the mouse buttons).
One of my eyes is worse at closing than the other, although I know that both don't shut perfectly. Also, for my entire life, I've only been capable of winking with one eye. I am only capable of closing either both eyes at the same time, or just my left eye. My right eye cannot wink.
Here is the outline of what I am going to try do before I go back to university this September:
- Tape one of my eyes closed every moment of every day (the worse of the two eyes),
- Tape the other eye when I sleep at night.
- Continue to use my cyclosporine eye drop twice a day.
- I will remove the tape over the permanently closed eye twice a day for 30 minutes for two reasons.
- #1, to put the cyclosporine in.
- #2, to exercise the eye, because I don't want it to become lazy or something since I'm not using it 23 out of 24 hours a day.
- I will wear goggles at all times in addition to the tape, including when I sleep.
- I will try to keep my eyes closed for as much of the day as possible when I'm awake.
- I will try to keep the computer and TV time down to a minimum. Instead I will try to listen to audio tapes and the radio for my entertainment with my eyes closed.
- I will not leave the house, thank god I live at home with my family right now. This might sound extreme, but I don't care. I have to try this now because I won't have 2 weeks off until Christmas once September 7th comes around.
I will update you guys every day on how things are going. Feel free to leave feed back, or give support, or just say hi to me. Thanks for reading, I hope this works for me and I am able to get my life back that I've lost for the past 4 years. Also, I hope this helps someone else, even if it doesn't help me.
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By the way, in case anyone was wondering, I'm going to use band-aids as my tape. I will cut the band-aids in half, and use three half pieces per eye.
- One piece of band-aid will be placed near the corner of my eye closest to my nose, but sort of in the middle of the eye lid too. It will be placed between the corner of the eye, and the middle of the eye. This piece will pull the eye lid down.
- The second piece will be placed in the corner of my eye closest to my nose, to ensure that this portion of the eye is completely shut off. Before putting this piece on, I will make sure that my eyelid is closing this part of my eye.
- The third piece will be placed slightly to the side of the first piece, so as to help seal the other portion of my eye (furthest away from my nose).
- The far corner of my eye (furthest away from my nose) will not have any band-aid over it, but this is okay since this part of my eye closes properly without help.
- If you make an "O" shape with your pinky finger and your thumb, and extend your other 3 fingers, and pull the 3 fingers tight together, then the 3 fingers is essentially what my band-aid patch looks like on my eye.
Update:
Day 1 - Eyes feel pretty good today! They felt pretty dry first thing in the morning, but after putting the cyclosporine in they feel pretty good! Of course this is only one day, which means nothing in the long run. Lets hope this keeps up.
I just thought I'd share with all of you my dry eye experiment I am about to begin. First, a little history about me.
- I'm 23 years old.
- I've been suffering from dry eyes since I was 20.
- I have perfect 20/20 vision, but I'm always in constant pain unless my eyes are closed or I'm in the shower.
- I've seen 3 different ophthalmologists, none of which have cured me.
- I've tried lots and lots of dry eye drops for the stores, but none of them work.
- I am currently using 0.05% cyclosporine (also known as retasis).
- I wear swimming goggles around the house, which makes me look silly, but they help protect my eyes. If I take the goggles off, my eyes dry out rather quickly, sometimes they can't even last 5 minutes. I got this idea from "moisture chambers".
- If I go out the house, for example to university, then I have two choices... wear swimming goggles to class and be in light pain, or don't wear the goggles and be in extreme pain. It's a tough choice, but I opt for the extreme pain because I just don't want to be that weird guy with the goggles. It sucks though. I'm embarrassed by my problem.
- My whole life I've been a social person, but with this pain, I'm unable to be who I am, and I do very little socializing these days.
Ok that's enough for the history. I think you guys get the point.
---------------------------------------------------
---------------------------------------------------
---------------------------------------------------
The Experiment:
Is it possible that the only thing that's wrong with me is that my eyes don't shut properly when I sleep at night? Imagine, for 4 years straight, having your eyes never close all the way when you sleep, and imagine how dry they would become.
I know for a fact that my eyes don't close all the way when I sleep. I have a laptop next to my bed, and sometimes when I'm trying to sleep at night I can see the little blue lights on the laptop cover (just below the mouse buttons).
One of my eyes is worse at closing than the other, although I know that both don't shut perfectly. Also, for my entire life, I've only been capable of winking with one eye. I am only capable of closing either both eyes at the same time, or just my left eye. My right eye cannot wink.
Here is the outline of what I am going to try do before I go back to university this September:
- Tape one of my eyes closed every moment of every day (the worse of the two eyes),
- Tape the other eye when I sleep at night.
- Continue to use my cyclosporine eye drop twice a day.
- I will remove the tape over the permanently closed eye twice a day for 30 minutes for two reasons.
- #1, to put the cyclosporine in.
- #2, to exercise the eye, because I don't want it to become lazy or something since I'm not using it 23 out of 24 hours a day.
- I will wear goggles at all times in addition to the tape, including when I sleep.
- I will try to keep my eyes closed for as much of the day as possible when I'm awake.
- I will try to keep the computer and TV time down to a minimum. Instead I will try to listen to audio tapes and the radio for my entertainment with my eyes closed.
- I will not leave the house, thank god I live at home with my family right now. This might sound extreme, but I don't care. I have to try this now because I won't have 2 weeks off until Christmas once September 7th comes around.
I will update you guys every day on how things are going. Feel free to leave feed back, or give support, or just say hi to me. Thanks for reading, I hope this works for me and I am able to get my life back that I've lost for the past 4 years. Also, I hope this helps someone else, even if it doesn't help me.
---------------------------------------------------
---------------------------------------------------
---------------------------------------------------
By the way, in case anyone was wondering, I'm going to use band-aids as my tape. I will cut the band-aids in half, and use three half pieces per eye.
- One piece of band-aid will be placed near the corner of my eye closest to my nose, but sort of in the middle of the eye lid too. It will be placed between the corner of the eye, and the middle of the eye. This piece will pull the eye lid down.
- The second piece will be placed in the corner of my eye closest to my nose, to ensure that this portion of the eye is completely shut off. Before putting this piece on, I will make sure that my eyelid is closing this part of my eye.
- The third piece will be placed slightly to the side of the first piece, so as to help seal the other portion of my eye (furthest away from my nose).
- The far corner of my eye (furthest away from my nose) will not have any band-aid over it, but this is okay since this part of my eye closes properly without help.
- If you make an "O" shape with your pinky finger and your thumb, and extend your other 3 fingers, and pull the 3 fingers tight together, then the 3 fingers is essentially what my band-aid patch looks like on my eye.
Update:
Day 1 - Eyes feel pretty good today! They felt pretty dry first thing in the morning, but after putting the cyclosporine in they feel pretty good! Of course this is only one day, which means nothing in the long run. Lets hope this keeps up.
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