Seborrheic blephartis

[Russ77]

Hi all,

I've just been diagnosed with seborrheic blephartis (mainly posterior) and was wondering if there's anyone suffering the same who could share their experiences or tips on how to manage this.

The opthamologist I saw was very dismissive and said it cannot be cured. But I did my research beforehand and requested he prescribe me Azyter and doxycycline. I hope I will see some results as I have this for more than a year without realizing what it was. Thanks for sharing

[Faith1989]

hello. I also have Blepharitis (I think I have both kinds anterior and posterior) I have also been to docs who were dismissive because its so common most don't think it's a big deal. (Don't get me wrong I do not agree) Blepharitis cannot be cured but it CAN be put into a remission where you won't see any symptoms. This can be a difficult place to get to and took me over a year to learn how to control it. Just some advice from my experience, 1. Keep your eyelids clean as possible and actually do the compresses and gland expressions. Adopt this into your daily routine. 2. Take your antibiotics. These have made a big difference for me. 3. Be careful which brand of artificial tears you use, some I have found aggregate my lids. 4. I have found the dry eye drug Restasis to help keep my lids from being inflamed (Restasis is not made for blepharitis but I have found it helpful because its an anti inflammatory) 5. Take Omega 3supplements (buy the good ones) and take them daily. 6. Steriods do work if nothing else will but you cannot rely on them long term, so it's annoying lol I hope this helps you!!! Oh and p.s. the doxy took MONTHS to work so hang in there!!

[Russ77]

Thank u so much!

It is heartening to hear that it can be controlled. My eyes are perpetually red everyday and I am trying to wean myself off the steroid eye drops. I will definitely hang in there!

[Evan1]

I got Seb Bleph too

I was diagnosed with seborrheic blepharitis a few days ago. I'm afraid I don't have much advise at this point, but I'm also interested in sharing experiences. I'm unsure about things and have a few questions if anybody happens to have answers.

The short version of my story starts with getting sebhorriec dermatitis (not the eyes) about 2 years ago. Then, about a year ago, I started getting eye pain when working at the computer. I also got headaches when using computers. I couldn't work much more 1 hour per day. My eyes were not red, or itchy, and did not feel dry. I thought it was CVS and tried all the recommended things for that. But later, an opthamologist told me I had dry eyes, without a more detailed cause or diagnosis. I started using artificial tears, and that helped a bit. After a while, I noticed that my eyes were really dry when waking up, in the wind, and aircon. I guess I had dry eyes the whole time, but I only noticed the pain, and not the dryness.

After about 10 visits to 4 opthamologists, I finally started getting close to a useful diagnosis, and was told I have sebhorriec blepharitis. They took a lash to examine under a microscope. I don't see any eyelash dandruff, but the doctor said I have it, and something about a sleeve around my eyelash. Also that the mebomian glands in my top eyelids aren't producing much oil, and it's a bit thicker than normal. My Tear Breakup Time is 5 seconds. I got 20 mm on a Schirmer's test.

Other symptoms are fatigue, joint pain, and gut issues.

Treatment I'm on is eye lid scrubs, endura lubricant drops, vitalux plus vitamins, and fish oil.

The main thing I want to know is about treatment. If sebhorriece blepharitis can really be treated like other kinds of blepharitis, since the cause seems to be different. Also how to put it in remission.

I also want to know if anyone with blepharitis also gets way more pain when using computers than when just doing other stuff?

I also wonder if I got the right diagnosis, as my symptoms don't seem to match other people's.

BTW, Faith, thanks for sharing your story. I definitely find it helpful.

BTW, Russ, is it getting any better? Do you have sebhorriec dermatitis symptoms as well (dry flaking skin on face or scalp)?

[Russ77]

Hihi,

Sorry for the late reply as I was just too preoccupied with finding the right treatment.

So I have realized I cannot take doxy as I have a bad reaction to it (headache and skin sensitivity). So what I'm doing now: Azasite once a night (been on it for 1 week and it seems to have helped but I need to do it for 4 weeks), Lotemax (1x a day), Restasis (1x a day) + Omega 3 supplements.

I will say the symptoms have subsided quite a bit although the lid margins are still red.

I am seeing another specialist recommended to me by a US expert in MGD/blepharitis and will updata again on my progress.

And no, I don't really exhibit any sebborheic dermatitis signs now on my scalp and face. Although i am quite certain it is linked to my eye condition.

[LyndaT]

Dear Faith,

My friend and myself were able to kill Blepharitis. My friend's Blepharits moved up onto her eyelids so she tried an antibacterial facial scrub with Benzethonium Chloride in it. She killed it. When I got it I tried to find that product and could not find it for sale any longer so I looked on line to see what other products had Benzethonium Chloride in it. I ended up using WET ONES, antibacterial hand wipes, in the red box.
I tore each one into 8 sections and used 2 on each eyelash area 4 times a day for a week and a half. I then went down to 3 times a day (as eyes felt so much better) for a month. I then went down to 2 times a day for several months. Once or twice it itched after that and I jumped on it with the wipes for a day or two and all gone.
Three doctors looked into my eyes and could not find the Blepharitis, including the Dr. who diagnosed it. They said it would come back. I said it has been 4-5 months. It is now almost a year and still gone.
There is a way to wear mascara and shadow and not re-infect your eyes. It involves throw away wands (bought on line) and cosmetic applicators (from the drug store). Buy new mascara and makeup. Never put a used anything into the new stuff. You use 2 wands for mascara each time you put it on. I used dark eye shadow for eyeliner (using cosmetic applicators-sharp end).
I used 2 washrags to wash my face. I used 1 for each eye (white ones to put in the bleach load).
I hope this information helps you. Please remember that 2 people using 2 different products both with Benzethonium Chloride in it killed it.
LyndaT