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As you guys know, I've been struggling a lot with this ongoing flare up, as I try to claw my way back out of it. My eyes are improving... /big sigh of relief ... but from personal experience I know that the mental black hole you may find yourself in when your eyes royally suck (to put it mildly) is such a hard place to be. So... with that in mind, here are some resources that have helped me, and it's my hope that you may also get comfort from them:
1. Headspace: https://www.headspace.com/
2. To feel less alone, this blog: http://princessinthetower.org/the-tower/ - it comforted me to read her posts since the chronic nature of her disease causes all the same kinds of issues that chronic, severe dry eye and corneal pain can cause. If you get comfort from this, read it... if it makes you feel worse, then skip it. I suspect everyone will differ in terms of how they react.
Anyways, if anyone else has any recommendations for books/audiobooks, and other tools to help manage the mental side of dealing with this disease, please add them to this thread so that others can benefit, too. :-)
1. Headspace: https://www.headspace.com/
2. To feel less alone, this blog: http://princessinthetower.org/the-tower/ - it comforted me to read her posts since the chronic nature of her disease causes all the same kinds of issues that chronic, severe dry eye and corneal pain can cause. If you get comfort from this, read it... if it makes you feel worse, then skip it. I suspect everyone will differ in terms of how they react.
Anyways, if anyone else has any recommendations for books/audiobooks, and other tools to help manage the mental side of dealing with this disease, please add them to this thread so that others can benefit, too. :-)
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