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  • Two years in-Update

    Hi Everybody: I've been relatively quiet over he past few months but waned to provide an update to how I am doing. Since getting back from the pain management clinic in Arizona things have been going well. I am back to working full time in NYC (43 hrs per wk) and living in the city. My job involves using the computer all day but so far my eyes have faired well. I am using regular contacts instead of my sclerals since the sclerals felt uncomfortable, large piece of plastic in eye. The people at work have no idea of my Sjogrens since I don't have to use eye drops during the day for what I do at work and drinking plenty of water seems to fit in with what everyone else does there. So far I like my job and it is in the same field that I was in prior to my illiness. Being able to return to that field of work has been a great boost for me.

    I am still on antidepressants but the dose has been cut down due to my progress. I get out of the house fairly often other than work such as traveling, dinner, etc. I also lost a lot of the weight I gained and am back to wearing a lot of my old clothes.

    My family is quite proud of the turn around and I am pretty excited as well. I still have my illiness, extremely dry eyes, mouth, neuropathic pain, and Raynauds but I have moved on with my life despite the pain. The only thing I have yet to tackle is dating but figure I will eventually meet the rigt guy who will look past my illiness. I figure I will start dating when I am ready and am ok with waiting. I don't want to put any unnecessary pressure on myself right now.

    Just the other day I "celebrated" my two yr anniversary. It was a bit sad but I wasn't devastated. I consider myself to be in a good spot in life. I don't let my eyes dictate what I do. I just make adjustments based on my needs but all and all I consider myself capable of doing almost anything given the right accomodation.

    I appreciate all the support I have received over the last 2 yrs and want to say to all the newbies that it is possible to have a good quality life despite the dryness. I feel that my eyes have improved and my mental state has defintely gotten better.

    Thanks again!

    Kim
    If life is a bowl of cherries, then why I am I stuck in the pits!

  • #2
    That's so great

    Hi -

    I have read so many of your past posts and this one is my favorite. This is just awesome news. It is great that you are back to work and back in NYC.

    I am amazed that you are in your early 20's and so wise. You and your family should be really proud.

    Warm Regards,
    Gretchen

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    • #3
      Hi Kim,
      I'm so happy to see this wonderful post from you!!

      From seeing your old posts about eyes, your eyes seemed to have improved a lot...to the point of wearing regular contacts. Congrats! Do you know what helped your eyes improve or was it just a combination of time (seems like a number of people on DEZ improve with time for unknown reasons) and mental improvement?

      Thanks!

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      • #4
        Kim,
        I am thrilled to hear about your progress and really appreciate your taking the time to share it here.
        Rebecca Petris
        The Dry Eye Foundation
        dryeyefoundation.org
        800-484-0244

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        • #5
          Dear Kim,

          I'm so happy you finally feel better.
          How do you manage to wear contacts and don't use drops when you are at work? I remember posts from you saying that you cannot even watch a movie etc. Please share your experience how you managed to get to this state. I'd love to be able to work normally and I don't even dare to think of contacts.
          Are you seeing Dr. Latkany in NY?

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          • #6
            Hi, Kim.

            Thanks for the great news. I hope that your new strategies continue to work as well as they are now or even better!

            --Liz

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            • #7
              Thanks everyone

              Sorry for my late reply. I've been busy at work and just learned that i have been audited by the irs for the medical expenses I have claimed. Ouch!

              Got my eyes plugged in January, quadraplugged, and I believe that has helped. Also re-started restasis.

              Not sure how my eyes tolerate contacts but they do and they seem to help and so far no staining. Don't try this at home without seeing a MD first about the contacts.


              As far as the movies I learned that sitting far away from the screen helps. Less staring I believe and larger visual surface.

              Thanks again everyone

              Kim
              If life is a bowl of cherries, then why I am I stuck in the pits!

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              • #8
                hello

                Good to see things have turned around for you - Wish you all the best

                Comment


                • #9
                  wonderfull
                  just keep swimming...

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