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Ugh, I forgot, yes, I'm on Restasis twice a day. For a while I used compounded stuff because I became sensitive to the mineral oil but that seems to have subsided since I've had such success with serum and now, while not super comfortable, the Restasis doesn't cause the redness and irritation it did. It's still not a favorite but I'm afraid to stop because what if I were to actually become worse? I stopped years ago after improvement and ended up getting worse and I often wonder if I had just stayed on the Restasis permanently, instead of thinking I was well, would I be in the state I am in now? Of course, that's conjecture and it's not really healthy to "what if" since I can't go back but it does play into my reluctance to stop the Restasis.
You might consider trying compounded cyclosporine to see if that is better for you. Keep in mind, you'll need to plan ahead to use all of your drops before you put in your sclerals. Restasis, 15 minutes or so, serum, 15 minutes or so... that way you won't un-do the medication when you add your next step. I can't remember how long my doctor told me to wait but I try to give myself a 1/2 hour to be safe (I think it was 15 minutes and I've always added to it).
My first scleral fitting, my doctor had me wear them around for a couple of hours and the next day, we tried nearly 8 hours. The goal is to be able to wear them long term, even though I don't use them that way. If you find they are uncomfortable, call your doctor immediately. It is my understanding that there's some sort of warranty or something that should enable you to exchange / replace them in a certain time period. Don't quote me on that, and of course, it would depend on the maker (mine are Boston) but you'll want to communicate with your doctor as much as possible so that you can get the right fit if the fit you have isn't correct. They aren't like wearing cashmere gloves but they should be comfortable enough that you are good wearing them 8 hours at a time, with drops, if necessary.
You might consider trying compounded cyclosporine to see if that is better for you. Keep in mind, you'll need to plan ahead to use all of your drops before you put in your sclerals. Restasis, 15 minutes or so, serum, 15 minutes or so... that way you won't un-do the medication when you add your next step. I can't remember how long my doctor told me to wait but I try to give myself a 1/2 hour to be safe (I think it was 15 minutes and I've always added to it).
My first scleral fitting, my doctor had me wear them around for a couple of hours and the next day, we tried nearly 8 hours. The goal is to be able to wear them long term, even though I don't use them that way. If you find they are uncomfortable, call your doctor immediately. It is my understanding that there's some sort of warranty or something that should enable you to exchange / replace them in a certain time period. Don't quote me on that, and of course, it would depend on the maker (mine are Boston) but you'll want to communicate with your doctor as much as possible so that you can get the right fit if the fit you have isn't correct. They aren't like wearing cashmere gloves but they should be comfortable enough that you are good wearing them 8 hours at a time, with drops, if necessary.
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