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    Iíve been hesitant to write this message for a long time because I donít feel I have fair proof of my progress, and donít want to give false hope to anyone. Still, I have seen some improvement and wanted to share. I have been using blood serum drops since the week of Easter. Iíve not done the math on how long that is exactly, but itís a couple months or more. My original supply of drops was to last eight weeks.

    Since then, my eyes have been more manageable. I still struggle and have continued hot compresses and goggle wearing. My days go better, though I do still have some amount of burning and irritation. Iím far from perfect and do continue to struggle a great deal in bright light. It is still disappointing that I have so much tearing and burning when I am outside. I am excited, however, that I rarely need drops in the middle of the night. Until recently I had been using them at least three times. I would even set my alarm to wake me in the wee hours so as to not allow my eyes to get too painfully dry. I even seem to be more tolerant of stores and places where I am stuck in a room a ceiling fan and moving air.

    There have been an awful lot of factors at play since I started using the drops. I was in pretty bad shape when I started: a lot of dryness, burning and strain. These were my main complaints, and still are to some degree. For the last 2.5 years I really struggled with these sensations day and night. I am extremely sensitive to light and moving air, and wouldnít dream of going out without a visor on and my Panoptx goggles securely in place. My meibomian glands are rarely clogged, but I do hot compresses religiously twice a day and feel really good after having done it. I theorize that they arenít prone to being clogged, but perhaps are not doing a good job of sending forth a good, quality oily protective film for my eyes.

    Over the years Iíve heard many, many diagnoses. I donít entirely blame the doctors for failing to accurately diagnosing me. I think our issues are all pretty unique. My eyes are teary and weepy and yet they feel dry, are poorly lubricated and burn almost all the time. I am cauterized in all four punctae which causes this overflow of tears. Unfortunately, in this excess I am still very uncomfortable.

    So late March I finally tried the blood serum drops. There are a lot of studies on the internet, mostly done on people with severely traumatized corneas. There were no post-lasik patients in the studies, nor were there any whose situation was even remotely similar to mine. Mysteriously, I donít show any corneal staining in my eyes and upon examination, appear to have very healthy eyes. But, Iíve decided in my travels that everything is worth trying Ė even blood serum.

    I was told to use the drops four times and day for the first couple weeks and then drop back to two times a day. The drops must be kept in the freezer/refrigerator and each bottle cannot be used for more than two weeks. The serum is highly susceptible to contamination and must be respected. In the studies Iíd read, it was not uncommon for several people in the study to experience infection from the drops. The infections were easily solved and certainly outweighed the benefits of the treatment. I have been fortunate and have not had an infection with the serum.

    I did not notice any immediate benefit with the drops. It was a shame that almost immediately after getting them I developed a case of the flu (or something similar) that put me on the couch for at least 5 days. During this time it was a struggle to stick to using the drops as directed. Whatís more is that my eyes suffered even more as upper respiratory issues tend to make my eyes water even more. The excessive watering on top of my already excessive watering was brutal. I burned so badly I nearly went insane. It took well over a week after my illness to even return to my normal miserable self.

    Not sure how to rate the serum drops in this early phase. Perhaps my eyes would have been worse without them. Had I started them a solid week or two before getting sick, maybe I wouldíve fared a lot better. Who knows.

    After this rough start, I rather reluctantly got back into a pattern of using the serum drops again. Iíd paid for them after all. Little by little I did notice that I was doing better. Itís so much harder to determine definite progress when things happen slowly. But, I am convinced that something is playing a role in my comfort. Hereís where it gets tricky.

    After that flu that I ďjust couldnít shakeĒ, I found out I was pregnant. This was very good news to us, but brought with it a lot of new concerns regarding eye pain and discomfort on top of all the other typical discomforts of pregnancy.

    The fact that I am pregnant is the one reason I want to cautiously recommend blood serum drops. I have no way of knowing whether or not the hormones of pregnancy could be doing me some favors right now. One thing I must mention is that along with the intense nausea I always get with a pregnancy, I do tend to salivate a great deal. Itís really a disgusting trick nature plays on mothers. My stomach is flip-flopping all day long and Iíve got all this excess saliva to swallow. Iíve read that this salivationÖcalled ptyalismÖis common in pregnancy. Still, I havenít talked to very many women who have experienced it.

    The reason I mention the saliva thing is not to drum up sympathy or gross anybody out. I just cannot help but note that many of us have admitted that when we eat our eyes feel better. There seems to be a parallel between the excitement of our salivary glands and those of our eyes. And so, I canít help but wonder if the cause of my excess salivation is working on my eyes as well. Still, Iím obviously rooting for the serum drops. A perpetual state of pregnancy is not in the cards for me, and constant nausea is not a fair trade for improved eye comfort.

    I appreciate your letting me be wordy in this post. (If you think I type a lot, you should hear me talk!) If youíve hung in there this long, I thank you. I also hope you will consider trying serum drops if your condition warrants it and even if your doctor doesnít think itís the right course for you. I've heard so many theories on what is causing my problems, for example, that I cannot accept when a doctor pooh-poohs a treatment I request. And I did struggle with more than one doctor to get the serum drops.

    Everything is worth trying. Just be sure to share with us your experiences. I will continue these serum drops indefinitely, but will keep praying for all of us and for something better to come alongÖya know like Rebamipide. There is a lot of room for improvement, but I am most grateful for the manageability I have at present. It was good timing for a break.

    Diana
    Never play leapfrog with a unicorn.

  • #2
    Congrats!

    First off, congratulations on your pregnancy. I know how much you enjoy your children. And thanks for the update on the blood serum. Do you continue with the blood serum? Does it ever taper off or do you stop using it?
    Keep us posted on your progress.

    Comment


    • #3
      More....

      I was in a hurry when I sent that last post. Dianat - I am so glad to hear you have experienced some improvement. I have been following your story for quite some time now......very puzzling. I give you a lot of credit for hanging in there and getting on with your life in spite of the constant pain. Not to mention the battle you went through to try the serum drops. Hopefully there will be more things to try down the road....I agree with you....sometimes we just have to keep trying different things until we hit on something that works for us, but I realize that is very difficult for some people.

      Comment


      • #4
        Thank you jcorbett. We are very excited to have another member of our family on the way. It'll be the best Christmas gift ever.

        I can honestly say that I have no idea what to expect of that blood serum. I don't even really know why it works or the theories behind it. Rebecca might be able to shed a little light. I know she's been interested in serum drops as a treatment for dry eye for some time now.

        I do not anticipate discontinuing use of the drops any time soon. My guess is with just about any treatment, it will need to be continued indefinitely. Maybe frequency of use could be reduced.
        Never play leapfrog with a unicorn.

        Comment


        • #5
          serum drops

          I was wondering if you are still experiencing relief from the serum drops. There have been a number of articles stating that the serum drops are beneficial. What is the process for getting the serum drops. does your opthamologist write a prescription and than you have to go to a hospital or lab to have the blood drawn? Would the lab than compound the serum or do you have to take the blood to a special pharmacy who makes the serum. Also what is the cost for a typical one-month supply and would insurance cover any of it? did a regular ophthamoligist write it or was it Dr. ******? thanks.

          Comment


          • #6
            I used the serum drops, and have not noticed any improvement in my eyes. I started using them the beginning of march and used them for a couple months, four times a day, with no change. my opthalmologist told me that I could go on and quit using them, but since I still have a large amount in my freezer, I figured I should go on and use the rest. I guess I'm secretly hoping that they will magically start working all of a sudden, but so far, no help.

            I actually found the serum drops to make me somewhat discouraged. When I went to the doctor who was creating them, he seemed to think there was a 100% chance it would make me better. He explained that out of everyone who had come to him and had tried them, they had only failed to work for one person, a man who had a condition where his eyelashes were growing in backwards. When I went back to him with no change to my eyes, it was upsetting to find that the man and I were the only ones the serum drops hadn't worked for. I guess it was worth the try, but it was kind of depressing when I was expecting such great results, and didn't get those results at all.
            -Amy

            Comment


            • #7
              Originally posted by dianat
              Iíve been hesitant to write this message for a long time because I donít feel I have fair proof of my progress, and donít want to give false hope to anyone. Still, I have seen some improvement and wanted to share. I have been using blood serum drops since the week of Easter. Iíve not done the math on how long that is exactly, but itís a couple months or more. My original supply of drops was to last eight weeks.

              Since then, my eyes have been more manageable. I still struggle and have continued hot compresses and goggle wearing. My days go better, though I do still have some amount of burning and irritation. Iím far from perfect and do continue to struggle a great deal in bright light. It is still disappointing that I have so much tearing and burning when I am outside. I am excited, however, that I rarely need drops in the middle of the night. Until recently I had been using them at least three times. I would even set my alarm to wake me in the wee hours so as to not allow my eyes to get too painfully dry. I even seem to be more tolerant of stores and places where I am stuck in a room a ceiling fan and moving air.

              There have been an awful lot of factors at play since I started using the drops. I was in pretty bad shape when I started: a lot of dryness, burning and strain. These were my main complaints, and still are to some degree. For the last 2.5 years I really struggled with these sensations day and night. I am extremely sensitive to light and moving air, and wouldnít dream of going out without a visor on and my Panoptx goggles securely in place. My meibomian glands are rarely clogged, but I do hot compresses religiously twice a day and feel really good after having done it. I theorize that they arenít prone to being clogged, but perhaps are not doing a good job of sending forth a good, quality oily protective film for my eyes.

              Over the years Iíve heard many, many diagnoses. I donít entirely blame the doctors for failing to accurately diagnosing me. I think our issues are all pretty unique. My eyes are teary and weepy and yet they feel dry, are poorly lubricated and burn almost all the time. I am cauterized in all four punctae which causes this overflow of tears. Unfortunately, in this excess I am still very uncomfortable.

              So late March I finally tried the blood serum drops. There are a lot of studies on the internet, mostly done on people with severely traumatized corneas. There were no post-lasik patients in the studies, nor were there any whose situation was even remotely similar to mine. Mysteriously, I donít show any corneal staining in my eyes and upon examination, appear to have very healthy eyes. But, Iíve decided in my travels that everything is worth trying Ė even blood serum.

              I was told to use the drops four times and day for the first couple weeks and then drop back to two times a day. The drops must be kept in the freezer/refrigerator and each bottle cannot be used for more than two weeks. The serum is highly susceptible to contamination and must be respected. In the studies Iíd read, it was not uncommon for several people in the study to experience infection from the drops. The infections were easily solved and certainly outweighed the benefits of the treatment. I have been fortunate and have not had an infection with the serum.

              I did not notice any immediate benefit with the drops. It was a shame that almost immediately after getting them I developed a case of the flu (or something similar) that put me on the couch for at least 5 days. During this time it was a struggle to stick to using the drops as directed. Whatís more is that my eyes suffered even more as upper respiratory issues tend to make my eyes water even more. The excessive watering on top of my already excessive watering was brutal. I burned so badly I nearly went insane. It took well over a week after my illness to even return to my normal miserable self.

              Not sure how to rate the serum drops in this early phase. Perhaps my eyes would have been worse without them. Had I started them a solid week or two before getting sick, maybe I wouldíve fared a lot better. Who knows.

              After this rough start, I rather reluctantly got back into a pattern of using the serum drops again. Iíd paid for them after all. Little by little I did notice that I was doing better. Itís so much harder to determine definite progress when things happen slowly. But, I am convinced that something is playing a role in my comfort. Hereís where it gets tricky.

              After that flu that I ďjust couldnít shakeĒ, I found out I was pregnant. This was very good news to us, but brought with it a lot of new concerns regarding eye pain and discomfort on top of all the other typical discomforts of pregnancy.

              The fact that I am pregnant is the one reason I want to cautiously recommend blood serum drops. I have no way of knowing whether or not the hormones of pregnancy could be doing me some favors right now. One thing I must mention is that along with the intense nausea I always get with a pregnancy, I do tend to salivate a great deal. Itís really a disgusting trick nature plays on mothers. My stomach is flip-flopping all day long and Iíve got all this excess saliva to swallow. Iíve read that this salivationÖcalled ptyalismÖis common in pregnancy. Still, I havenít talked to very many women who have experienced it.

              The reason I mention the saliva thing is not to drum up sympathy or gross anybody out. I just cannot help but note that many of us have admitted that when we eat our eyes feel better. There seems to be a parallel between the excitement of our salivary glands and those of our eyes. And so, I canít help but wonder if the cause of my excess salivation is working on my eyes as well. Still, Iím obviously rooting for the serum drops. A perpetual state of pregnancy is not in the cards for me, and constant nausea is not a fair trade for improved eye comfort.

              I appreciate your letting me be wordy in this post. (If you think I type a lot, you should hear me talk!) If youíve hung in there this long, I thank you. I also hope you will consider trying serum drops if your condition warrants it and even if your doctor doesnít think itís the right course for you. I've heard so many theories on what is causing my problems, for example, that I cannot accept when a doctor pooh-poohs a treatment I request. And I did struggle with more than one doctor to get the serum drops.

              Everything is worth trying. Just be sure to share with us your experiences. I will continue these serum drops indefinitely, but will keep praying for all of us and for something better to come alongÖya know like Rebamipide. There is a lot of room for improvement, but I am most grateful for the manageability I have at present. It was good timing for a break.

              Diana
              Hi Diana, I have had dry eyes for 4 years and it started with erosions on my cornea. I have since been through so much pain, burning and just generally uncomfortable. I literally lay on my bed and cry profusely some times and that does not even help me. I work at a computer and some days I just cannot look at the computer without polarized sun glasses. I cannot tolerate light either, I pray for cloudy days. and then I sometimes need sun glasses. I would never go out without them. glad to hear you have some relief. I am being screened now at the Wills Eye Hospital Corneal Associates for the clinical trial with Novartus. The product is supposed to be the equivalent to Restasis without the burning. I surely hope I qualify, keep in touch. Annie.

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