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**Gaye** · 24-Jul-2005, 14:25

Restasis

You are very lucky you do not have burning with the Restasis. At least you will be able to keep up with it and maybe find that it does help you. I had burning immediately and never had a time when it didn't burn. My eyes burned all day long with it and then all night long after the evening dose. I just couldn't stand it. I lasted 1 and 1/2 month, and my doctor said I would probably have noticed some results in another few weeks. I just couldn't do it. Every once in a while I try it again, but it is never any different.

Good Luck!

**Amy09** · 24-Jul-2005, 15:24

I'm an eighteen year old w/ bad dry eye who has been using Restasis since October. A lot of people complain about how much it burns, but I've hardly ever had any problems with burning and I have to use twice the recommended dosage. It usually just makes my eyes feel more refreshed and moisturized for a while. If it hasn't been burning you so far, I don't see why it would start burning you all of a sudden. I started feeling results from using Restasis a few months after taking it. Good luck with it!

**Rebecca Petris** · 24-Jul-2005, 16:09

According to Allergan's website, 17% experienced burning in the clinical trials. While that's a pretty large percentage, it still means that a large majority should NOT experience burning.

It's natural that this board has a disproportionate number of Restasis "burnees" because, well, for the most part the people on the internet looking for more solutions are the ones for whom the frequently-prescribed solutions don't work.

**jcorbett** · 24-Jul-2005, 20:03

When I use restasis, for the first few days my eyes feel fine. I never experience any burning when putting the drops in. However, after a week or so, my eyes will start becoming irritated. I have tried it several times....it does appear to be the restasis. Darn.

**halfmoonbaygal** · 09-Aug-2005, 12:12

Restasis question

I 'm back from Baja, CA and man oh man--it's hard to have dry eyes and work on adapting to my RGP lenses in that heat, in and out of the ocean, etc. I feel like I'm starting all over. Ugh.
Thanks for sharing your Restasis experiences. I haven't seen a change yet after 2 weeks. Thank heavens for insurance--$114 for 32 units!!! This would be an expensive condition if one didn't have prescription insurance and vision care of some type. I must admit that although they say they are single use, I pop a fresh one in the morning and put in the prescribed amount, then there is so much left that I prop up the little vial where nothing is touching the tip and use the rest in the evening. I've already poured quite a bit of money down the drain in drops, cleaning systems, lenses, etc. etc. etc., so every little bit helps.
I'm still doing the compresses and my question is (and guess I should ask my doctor, too) is using the compressses with the Restasis. I put the drops in, wait 15 or 20 minutes, then start the compresses. I'm wondering if that's smart? Will that heat affect how the drops work? Cause more irritation?
Take care everybody,
Andrea

**theHawke** · 21-Aug-2005, 21:32

My doc told me I could get a sterilized eyedropper bottle and squeeze the vials into that if I want.

As far as burning, I have some for like an hour or so then I am usually good to go. Especially if I follow up with some Systane.

**halfmoonbaygal** · 22-Aug-2005, 10:56

Good tip

Thanks theHawke,
I'm still not having any burning from the Restasis, but haven't really noticed any changes yet--eyes still drying out after about 2 hours. Someone recommended Soothe drops (mineral and castor oil)--those little suckers sting! I've never had any burning with anything else. The stinging does produce tears, then the stuff in Soothe is supposed to stabile the lipid layer and keep the tears from evaporating, I guess.

Good to know that that all those drops left in the single use vials don't have to be thrown out right away. There are about 2-3 doses per vial, it seems like. I'm only using 1 drop in ea. eye at this point. I guess if you follow the directions to the letter, you will be buying a whole lot of product that gets thrown away. Hmmmm--more money for the pharmeceutical company??? Nah, they wouldn't do that.....

**theHawke** · 22-Aug-2005, 12:34

HAH! Don't get me started on the pharma companies. Today was the first day since I started last friday that I had no stinging whatsoever with the restasis. In fact, I don't even feel any need to follow up with my systane.

**Cindy** · 22-Aug-2005, 17:26

originally posted by theHawke:

My doc told me I could get a sterilized eyedropper bottle and squeeze the vials into that if I want.

Yeeps. I would not recommend fiddling around with the Restasis single-use vials like that. I agree that it seems like a waste to discard the extra product left in the vial after one use BUT...it's best to follow the recommendations of the manufacturer. Use it once and toss the remainder.

**clc** · 22-Aug-2005, 17:43

Restasis

I have been on restasis for about a year in a half, I get some stinging and I find little relief, but continue to use it. I have also used the unused portion in the evening........dammed if you do, dammed if you don't.
A recently tried "soothe" for the first time and it felt great for a few hours, but like every other product i have used, (theratears, systane, refresh, genteal, stimulate (a natural product), and refresh PM in the eve, ect......I have yet to find a product that works good on a regular basis!
My right eye is usually in a constant state of slightly swollen and in pain. I'm always open to suggestions. I also find my eyes more irritated after a warm compress, does anyone else experience this??
For all you women (I'm 48) is it true estrogen is a good source for the oil glands???

**Rebecca Petris** · 22-Aug-2005, 19:20

Originally posted by clc

like every other product i have used......I have yet to find a product that works good on a regular basis!

Hi clc,

Can I ask how long you try a new product for, and whether you try it exclusively for awhile? Obviously you've given Restasis a long time but I'm wondering about the artificial tear products. Sometimes it can take a little while to adjust and get the full benefit even of an artificial tear. I know that was the case with me.

Personally I don't rely on just one drop. But when mixing products I think it's best to stick with products that are similarly formulated. So for example with me, I rotate between Dwelle, Dakrina and NutraTear depending how my eyes feel.

I also find my eyes more irritated after a warm compress, does anyone else experience this??

I don't, but I know other people who do. What are you doing the compress with? How hot, how long?

Are you taking any nutritional supplements ? are you plugged or cauterized?

**Kyle** · 22-Aug-2005, 20:05

Restasis use

I am on about my 8th doctor now, trying to find a "cure" or at least a bearable solution to our problem. I do know that every single doctor has told me that it is okay to use the Restasis more than once. They tell me to open a vial and use one drop in each eye, then stand the vial upright in something like a shot glass (where the tip doesn't touch anything else), keep it in a cool, dry place and it's good to use for as long as you need it. I've been doing that for months now and have had no problems. I also don't have any stinging or burning when I use the Restasis either..so I guess I'm one of the lucky ones. I'm not sure if it's actually helping me produce anymore tears, but I'm willing to keep using it until they take me off of it.

You are one of the first people that has mentioned their eyes being swollen in the morning. My eyes are so swollen, they are almost shut. It usually takes an hour or so for the swelling to subsidize for me to even leave the house. Other than a good hot shower and hot compresses, do you have any tips that help you with your swelling? Let me know.
Thanks!

**jcorbett** · 22-Aug-2005, 21:13

Have you tried COLD compresses? I find those do wonders at times...for swelling, irritation and when things just don't 'feel' right.
I still do the warm compresses faithfully, but the cold ones do help at times.
I have a cold gel pack I keep in the frig.

**Amy09** · 09-Sep-2005, 09:17

Surgery that helped with swollen Eyelids

I, too, have very bad problems with swollen eyelids. Sometimes there is an underlying cause that might be causing it- not just irritation from dry eye. My eyes were permanently swollen from about last fall until last January when I finally was able to see an excellent dry eye specialist. They were so swollen that my upper eye lids formed folds and became almost two layers of upper eyelids (that probably is impossible for anyone to visualize, but that is how they were). My eyelids were very swollen, not only from dry eye, but from something the doctor discovered called SLK. SLK, or Superior Limbic Keratoconjunctivitis causes engorging of the vessels near the top of the eye, underneath the eyelid.

I had cauterization done underneath my upper eylids in January and it SIGNIFICANTLY brought the swelling down in both my eyelids, especially my right eye. In March, I also had botox injections in my upper eyelids. This might be another thing you'd want to consider. It pulls your eyelids up off your eyes kind of, so it is not rubbing against the irritated eyes as much, and gives yours eyes and eyelids a chance to heal. This didn't work effectively for me as cauterization, but my doctors said it did dramatically help some people.

I still have bad problems with swollen eyelids, but not as much as I did about a year ago. I have to take a hot shower and do a warm compress in the shower for a long time if I want to be able to open my eyes in the morning. Restasis seems to help me with the swelling also. My eyes also get a little more swollen as the day progresses, especially if i've been using my eyes a lot during the day. I find that Ibeprophen helps some also. Anyways, I thought the info on the surgery techniques might help others experiencing bad problems with swelling. By the way, as a last note, does anyone know if cold or wam compresses helps more for swelling?

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