Boston Scleral lens

[Vickir]

My son was fitted for sceral lens by Dr. Rosenthal last December. They worked great for the first three months or so and then his vision changed. Also he sometimes had problems removing them and seem to hurt his eye. Has anyone experienced the vision change or hurt their eye when removing the lens?
Thanks,
Vicki

[neil0502]

Hi, Vicki...

I'm working on getting a January appointment with BFS right now.

Do you have any additional information about the "vision change" or the "hurt" to your son's eye?

Was he seen by an eye doctor after these things happened? If so, what did they say happened, exactly--both with the vision and with the "hurt" to his eye(s)?

If the vision changed, did you return to BFS for a revised prescription? If not, why not?

Were the lenses chronically difficult to remove? Did you talk with BFS for advice about how to better/more readily remove them?

I'd be grateful for some further details....

Thanks,
Neil

[Rebecca Petris]

How old is your son?

If one's prescription changes, I think that it's possible to simply re-order a lens without going back to BFS, assuming you're under the care of a local eye doctor.

I am a Boston scleral wearer. If I were having any problems with removal, I'd call Dr. Johns to discuss it. Also, I got some good tips from another user here who described a way of giving a slight twist to the 'plunger' (slight clockwise rotation) during removal that really helped me. But the biggest hurdle with removal is making sure you're holding your lids open wide enough.

[Vickir]

My son

Hi, Vicki...

I'm working on getting a January appointment with BFS right now.

Do you have any additional information about the "vision change" or the "hurt" to your son's eye?

Was he seen by an eye doctor after these things happened? If so, what did they say happened, exactly--both with the vision and with the "hurt" to his eye(s)?

If the vision changed, did you return to BFS for a revised prescription? If not, why not?

Were the lenses chronically difficult to remove? Did you talk with BFS for advice about how to better/more readily remove them?

I'd be grateful for some further details....

Thanks,
Neil

Hi Neil,

My son has an eye condition that doctors can not explain. He has autoimmune conditions which they think may have something to do with it, but are not sure. His vision seems to change, with just about any contacts he has used, but we were hoping with BSL would be different. His eyes are very sensitive. He sees an cornea specialist on a regular basis. She suggested maybe the saline solution used with the lens needs to be changed more often than once a day.

He wore bandage contacts for a while, and had problems removing them also. He went back to these contacts, though, after the three months with the BSL because his vision was better.
BSC helped my son 's eyes feel more comfortable, so we haven't given up yet. We are planning to see Dr. Rosenthal again in March to have them re-evaluated.
I think practice inserting and removing the BSL become easier as times goes on. The staff at BSL work with you on that for several days before you leave Boston until you are comfortable. They were all great, and made you feel like family. I think my son's problems were not the norm and would highly recommend BSL to anyone.
Good Luck, and if you have any other questions, let me know.
Vicki

[Vickir]

How old is your son?

If one's prescription changes, I think that it's possible to simply re-order a lens without going back to BFS, assuming you're under the care of a local eye doctor.

I am a Boston scleral wearer. If I were having any problems with removal, I'd call Dr. Johns to discuss it. Also, I got some good tips from another user here who described a way of giving a slight twist to the 'plunger' (slight clockwise rotation) during removal that really helped me. But the biggest hurdle with removal is making sure you're holding your lids open wide enough.

Hi Rebecca,

My son is 23yrs old. His eyes are not the norm so I believe we would need to see Dr. Rosenthal again at BFS. We are planning on seeing him again in March.
We were told recently a doctor here in Houston is training to fit BSL in patients in the near future. I will tell my son about the tip for removing the lens. What was your eye problem? How long have you had your BSL?
Thanks for your suggestions,
Vicki

[neil0502]

Thank you, Vicki. This is very helpful information.

It's good to hear that--whether or not the BFS lens is the "magic bullet" for your son--that you have faith in the lens and confidence in the people who make and dispense it.

Also--on a slightly unrelated note--it's very good to have you here. As a loved one to the actual patient, you represent an UNDER-represented perspective around here. I hope you'll continue to contribute ... and I wish all the best for your son's situation.

Neil

[Rebecca Petris]

What was your eye problem? How long have you had your BSL?
Thanks for your suggestions,
Vicki

My central corneas were damaged by LASIK so I can't see well with glasses or soft contacts. I also have dry eyes, which makes it very difficult for me to wear the specialized gas permeable lenses that I need in order to see properly. So for me, sclerals were a combination vision and dry eye treatment. I have had them since June.

[neil0502]

Couldn't let the rest of you have ALL the fun.

I'm booked. Second week in January. Two weeks of fun, thrills, and ocular adventure ... at Dr. Rosenthal's House of Sclerals.

[Vickir]

Thank you, Vicki. This is very helpful information.

It's good to hear that--whether or not the BFS lens is the "magic bullet" for your son--that you have faith in the lens and confidence in the people who make and dispense it.

Also--on a slightly unrelated note--it's very good to have you here. As a loved one to the actual patient, you represent an UNDER-represented perspective around here. I hope you'll continue to contribute ... and I wish all the best for your son's situation.

Neil

Thanks, Neil, for the kind words. I am glad I could be helpful. I do believe in the BSL and know Dr. Rosenthal and his staff are there to help as many people as possible. They are truly wonderful and caring people, and will go out of their way to make you comfortable. We just wish all of our son's doctors were the same. We met so many patients from all over the world at the Boston Foundation for Sight who had regained their vision with BSL. It was such a wonderful experience. I hope things go well for you.
Take care, Vicki