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Rebecca, if you'd like to move this to another category, please do. I saw a couple that could be appropriate.
I went to Boston in July for a one day consult at the Boston Foundation for Sight. This was to see if it may be a possibility for me. With specific expectations written out, I decided that I'd come back in a few months for the final fittings. I had only planned on the one day stay and had to catch a flight out the next morning.
We drove 900+ miles to Boston. Well, my husband drove it all. The clinic is in a little town about 20 miles west of Boston. It's Needham. I had an appointment for a Monday morning in October. I went through several days of fittings, re-fittings, trial wearing times etc. My problems are very difficult as they include bad lasik outcome, one bad cataract surgery outcome (missed calculation), trigeminal neuralgia, dry eyes and a host of stuff. My next step would be a cornea transplant in OS. Then, I'd have my doubts about that because everything in that eye goes south.
I've only had the lens a couple of weeks. I have worn them from 2 hours to 10 hours a day. I am not going for any marathons. A few days, I was sick and didn't even bother with them. The lens are easy to care for. They cover the whole "eye area" and you can just see the rim of the lens on the inside corner of my eye. They fit up under the lids, so there appears to be no lid rubbing. My vision is definitely better. Mostly, I have the weirdness of anisometropia much less wearing the lens. I need reading glasses, of course. That's a whole other thing. But, I can cope with that.
My major, major problem was pain in OS which is the trigeminal neuralgia that has about floored me this past year. I could tell the few days at the clinic after wearing the lens that the pain level was much lower after (and while) wearing the lens. I believe keeping my corneas covered with the liquid "bandage" is imperative to stop the pain, or at least keep it within reasonable levels. The cost is what we've all heard. This will be submitted to my insurance (which is Blue Cross) and hopefully, they'll pay some at least. That part is unknown at this time. The insurance company would not commit to "one red cent" until I went and actually acquired the lens. How's that for a gamble? I had to take the chance.
It will take another month or even more to see how well I can tolerate the lens. So far, the pain decrease has made a big, wonderful difference to me. I drove one night and my vision was much better than with glasses. I have to do that a bit more before I know if *all* the starburst etc are cleared up.
I will write again in a few weeks or month to comment on my progress. I have to be careful that I don't give others a false sense of well-being, but I want to be honest and say how I'm really doing. Remember: we are all different. For me, there was nothing more I could do. I cannot work anymore and spend much of my time with (as my husband says) "an icebag over your face." He commented the other day that he had not seen much of that lately. If you want to PM me off the board, please do so.
Lucy
I went to Boston in July for a one day consult at the Boston Foundation for Sight. This was to see if it may be a possibility for me. With specific expectations written out, I decided that I'd come back in a few months for the final fittings. I had only planned on the one day stay and had to catch a flight out the next morning.
We drove 900+ miles to Boston. Well, my husband drove it all. The clinic is in a little town about 20 miles west of Boston. It's Needham. I had an appointment for a Monday morning in October. I went through several days of fittings, re-fittings, trial wearing times etc. My problems are very difficult as they include bad lasik outcome, one bad cataract surgery outcome (missed calculation), trigeminal neuralgia, dry eyes and a host of stuff. My next step would be a cornea transplant in OS. Then, I'd have my doubts about that because everything in that eye goes south.
I've only had the lens a couple of weeks. I have worn them from 2 hours to 10 hours a day. I am not going for any marathons. A few days, I was sick and didn't even bother with them. The lens are easy to care for. They cover the whole "eye area" and you can just see the rim of the lens on the inside corner of my eye. They fit up under the lids, so there appears to be no lid rubbing. My vision is definitely better. Mostly, I have the weirdness of anisometropia much less wearing the lens. I need reading glasses, of course. That's a whole other thing. But, I can cope with that.
My major, major problem was pain in OS which is the trigeminal neuralgia that has about floored me this past year. I could tell the few days at the clinic after wearing the lens that the pain level was much lower after (and while) wearing the lens. I believe keeping my corneas covered with the liquid "bandage" is imperative to stop the pain, or at least keep it within reasonable levels. The cost is what we've all heard. This will be submitted to my insurance (which is Blue Cross) and hopefully, they'll pay some at least. That part is unknown at this time. The insurance company would not commit to "one red cent" until I went and actually acquired the lens. How's that for a gamble? I had to take the chance.
It will take another month or even more to see how well I can tolerate the lens. So far, the pain decrease has made a big, wonderful difference to me. I drove one night and my vision was much better than with glasses. I have to do that a bit more before I know if *all* the starburst etc are cleared up.
I will write again in a few weeks or month to comment on my progress. I have to be careful that I don't give others a false sense of well-being, but I want to be honest and say how I'm really doing. Remember: we are all different. For me, there was nothing more I could do. I cannot work anymore and spend much of my time with (as my husband says) "an icebag over your face." He commented the other day that he had not seen much of that lately. If you want to PM me off the board, please do so.
Lucy
) please consider doing your part to help support these organizations which are doing such good work in the field of dry eye. You can donate to BSF on their website. We also collect donations for BSF and the Sjogrens Syndrome foundation in our shop at 
but am not wedded to it as I have been. I know it's early and I almost hate to say too much and keep my expectations reasonable. My expectations were: NONE. So, I am pleased.
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