Blinking pain misery - please help

[hopeful_hiker]

Meibum Ian they do look like they move slower but, perhaps, I am making it up. Visually everything looks exactly the same to me and to doctors. However, I think they are missing something.
If I lift my eyebrows up a bit more and blink that way, it makes the pain or discomfort less pronounced. When I intentionally fully relax eyebrow muscles, the blinks are most unpleasant.

[Meibum Ian]

Meibum Ian hmmm, hard to tell. In my case it is like the upper lid edge (where I imagine lid wiper is located) hurts my eye but only when blinking. Closed eye is ok. But when I blink during flare ups my eyelid does not glide, it kind of drags and touches my eye too much. It is a searing sensation.

Interesting. Do you see (in the mirror) eyelids turn inwards too much, and move too slowly over / stick to the eye?

[hopeful_hiker]

Meibum Ian hmmm, hard to tell. In my case it is like the upper lid edge (where I imagine lid wiper is located) hurts my eye but only when blinking. Closed eye is ok. But when I blink during flare ups my eyelid does not glide, it kind of drags and touches my eye too much. It is a searing sensation.

[Meibum Ian]

hopeful_hiker

Hi, Do you see any similarity with the blinking pain I describe in http://forum.dryeyezone.com/forum/dr...meibum-probing ?

[MGD1701]

Dr Toyos' video

Sorry, hopeful_hiker,
I am still curoius so watch the video again, Dr Toyos actually meant conjuncativa issue NOT CCH (from 2:30)
Most people think it is LWE though.Curious to know the trigger too, please let us know if you find out the answer.

https://www.youtube.com/watch?v=oBvHsivmPvE

Thank you! I don’t have CCH or at least not to the extent they are talking about. I think it is something to do with the lid wiper maybe.

I know the cause of my blinking pain was the papilae and concretions that formed due to the FES. As the eyelid becomes less inflamed and those papilae slowly heal, my ability to fully blink has come back. I don’t feel all that pressure and paralyzarion in the eyelids. So it could be the lid wiper, it could be s lot of things. I hope you find the cause soon.

[hopeful_hiker]

''Listen as Dr. Rolando and Melissa Toyos describe how they utilize the Keratograph® 5M daily for dry eye diagnosis and management. Filmed at ESCRS 2018 in Vienna.'' Nov. 13 2018
https://www.youtube.com/watch?v=oBvHsivmPvE

Thank you! I don’t have CCH or at least not to the extent they are talking about. I think it is something to do with the lid wiper maybe.

[MGD1701]

Hi hopful_hiker
Just found this vidro, Dr Toyos mentioned about blinking pain, something new which I have never heard of.
Seems Keratograph® 5M can detect such issue. His wife even mentioned a new drug to tackle this.
Do you think that CCH is your issue? Hope it helps.

''Listen as Dr. Rolando and Melissa Toyos describe how they utilize the Keratograph® 5M daily for dry eye diagnosis and management. Filmed at ESCRS 2018 in Vienna.'' Nov. 13 2018
https://www.youtube.com/watch?v=oBvHsivmPvE

[farmgirl]

Apparently Oxy is easy compared to hydrocodine and fentanol, don't EVER go there his life has been HELL.

I just read about Xanax addiction OMG who prescribes this stuff. Hang in there and detox slowly so that you don't get rebound symptoms that make you go back to the drug. Don't be in too big a hurry that could backfire on you. My son is being weened off of prescription opioids which have really screwed up his life and the first thing the doc did was to move him over to Suboxone which is difficult to abuse. When he was stable on that for 2-3 months he started the taper at 20% every month, you shouldn't make the jumps too big and should give yourself time to adjust to the lowered dose.....just saying

Oh trust me I learned from my first drop I did a 33% drop from 4.5mg to 3 and wow...I can't even explain the pain involved with that. But I stabilized there and started 10% cuts a week. I'm now at 1.625mg a day. I'm holding here because I'm going to visit a friend in Vegas.once I'm back though I'm cutting again and starting to get down more. You're right the key is going slow. You can literally cause brain damage or die if you go too fast.

Let me also say I was suicidal, I was very much ready to die when my eyes were were at their worst. So I don't know if it was the right decision, but at least I'm alive to deal with it. I'm sorry about your son. I took vicodin for my eyes for 5 months and came off in 14 days no problem. I was taking on some days my vicodin dose 60mg and a 40mg oxy the pain was so bad. I was lucky that opiates were easy for me to walk away from. Not the case for everyone. Hope he's doing well.

[farmgirl]

I just read about Xanax addiction OMG who prescribes this stuff. Hang in there and detox slowly so that you don't get rebound symptoms that make you go back to the drug. Don't be in too big a hurry that could backfire on you. My son is being weened off of prescription opioids which have really screwed up his life and the first thing the doc did was to move him over to Suboxone which is difficult to abuse. When he was stable on that for 2-3 months he started the taper at 20% every month, you shouldn't make the jumps too big and should give yourself time to adjust to the lowered dose.....just saying

Thank you for sharing your story! I am sure you will be able to get of Xanax because although it is a physical/psychological issue, dependency is still something you can eventually control. I don't think you can go cold turkey so be careful.

I was on Ativan for a few months to control panic attacks thanks to my dry eye and tinnitus. I think these drugs are invaluable when you are losing your mind and becoming suicidal. Antidepressants really messed me up (tried them for two weeks in a row, plus a few trials here and there). I found benzos better because I only used them when I needed them.

I was just reading through your thread again and wanted to update my progress on my mental state.

Started feeling better so i so I pulled the xanax 30% and oh my god...tinnitus out of control, bp was 190/100, felt like I was going to die. Stabilized at that dose 3mg then started dropping .25mg a week which is actually considered fast but I did it. I went from 3mg to 1.75 in a month so I exceeded my goal. So now I'm here this month doing 10% drops, my last one was rough...it's only going to get harder.

I agree with you, I chose xanax because antidepressants really mess me up. However, I had no clue how addictive xanax was. This is like heroin withdrawal. I will NOT give up...but I have a long road ahead. I though my eyes were an issue...this is equally as hard, just different. I just want my life and personality back.

Hope youre doing well!

[MGD1701]

Thanks for the update.

[hopeful_hiker]

Updated the main post.

[hopeful_hiker]

MGD1701, thank you for taking the time to post this! I don’t have this issue but it is good to raise awareness about this complication.

A bit of an update:
I was in a lot of distress and went to the optometrist. My tear meniscus height was low that day - 0.15mm. A week before that it was 0.45mm. Crazy how it fluctuates!

I got lower punctual plugs and they took the edge off the pain. I also got a second opinion that day. The second optometrist said that my signs a better than my symptoms. I suspect I may have corneal neuropathy, perhaps, a mild case.

Also, I think that my eyelid anatomy contributes to my pain. Doctors always have issues flipping my upper eyelid due to its tightness. I imagine that a tight eyelid combined with a moderate dry make the symptoms worse especially on my aqueous deficient days.

I researched all all of the posts mentioning blinking on this website (around 30 pages). I found 3-4 posts that related to blinking pain and some of them came from LASIK patients. The majority of posts focus on blinking exercises or mention blinking as a temporary solution to discomfort. In other words, people blink a lot because they feel dryness or irritattation and blinking makes them feel better. My case is somewhat unique, unfortunately.