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SJS survivor...
My condition might be a bit different, a bit more harsh I believe and it is shameful but I have to share it with you guys.
It all started on March 06 when i attempted to commit suicide by taking loads of different kinds of drugs *mostly tablets*, before that I had fever so my parents gave me an antibiotic that I discovered later that my mom is allergic to it too!. I told nobody that I tried to kill myself and I thanked God that I'm still alive so I didn't see a poisoning specialist *I was 16 back then*, and because nothing bad has happened for the next 2 weeks I thought that everything was alright. But in the third week, I started to feel that my eyes were itchy, some vesicles inside my mouth and burn-like bullaes on my skin.
I was misdiagnosed first because we truely lack good hospitals here in my country, the doctor gave me an antibiotic and said that it was an infection which made the whole condition worse and even when i stopped the antibiotic it became worse every hour later. After five days of struggling and thinking that I'm reaching the end of my life, a dermatologist at last diagnosed my condition and assured that it was Steven Johnson Syndrome and said that I should take corticosteroids, I couldn't eat or drink because of the vesicles were so much and they were really painful, so I took the cortisone throught the veins.
That time I could barely see, my eyes were full of mucous and there were bullaes on the eyelids *which makes my eyelids look tired and dark now*. I can't certainly remember what drops did I use for my eyes but I guess cortisone was one of them. After 2 weeks from diagnosing, I started to feel that my eyes are so much itchy so I saw another ophthalmologist and he prescribed Oflox antibiotic, Pred-forte, a corticosteroid ointment and artificial tears w/ preservative. I had to close my eyes for a while and that was the hardest part, I did that for one and a half months *the good part of it is I had nothing to do except thinking of the messes of the past* and I always thought that I lost my vision, that was very hard for me to think of and the doctors told me nothing, they weren't sure about what was happening to me and they always said that what is happening to me is very rare and hard... And then because I felt that the artificial tears are discomforting, my doctor prescribed another local preservative-free eyedrops that really helped me and I stopped the antibiotic then the corticosteroid eyedrop and ointment..
I thought that I was doing everything that i should be doing; using tears substitutes, cleaning my eyes and taking the omega tablets...but when I found the forum I knew that the options of having a better pair of eyes is just endless. Thank you all for posting your experiences here, thank God I'm still here and that I found this forum *my heaven on earth*. Stay active!
Regards,
Reham.
It all started on March 06 when i attempted to commit suicide by taking loads of different kinds of drugs *mostly tablets*, before that I had fever so my parents gave me an antibiotic that I discovered later that my mom is allergic to it too!. I told nobody that I tried to kill myself and I thanked God that I'm still alive so I didn't see a poisoning specialist *I was 16 back then*, and because nothing bad has happened for the next 2 weeks I thought that everything was alright. But in the third week, I started to feel that my eyes were itchy, some vesicles inside my mouth and burn-like bullaes on my skin.
I was misdiagnosed first because we truely lack good hospitals here in my country, the doctor gave me an antibiotic and said that it was an infection which made the whole condition worse and even when i stopped the antibiotic it became worse every hour later. After five days of struggling and thinking that I'm reaching the end of my life, a dermatologist at last diagnosed my condition and assured that it was Steven Johnson Syndrome and said that I should take corticosteroids, I couldn't eat or drink because of the vesicles were so much and they were really painful, so I took the cortisone throught the veins.
That time I could barely see, my eyes were full of mucous and there were bullaes on the eyelids *which makes my eyelids look tired and dark now*. I can't certainly remember what drops did I use for my eyes but I guess cortisone was one of them. After 2 weeks from diagnosing, I started to feel that my eyes are so much itchy so I saw another ophthalmologist and he prescribed Oflox antibiotic, Pred-forte, a corticosteroid ointment and artificial tears w/ preservative. I had to close my eyes for a while and that was the hardest part, I did that for one and a half months *the good part of it is I had nothing to do except thinking of the messes of the past* and I always thought that I lost my vision, that was very hard for me to think of and the doctors told me nothing, they weren't sure about what was happening to me and they always said that what is happening to me is very rare and hard... And then because I felt that the artificial tears are discomforting, my doctor prescribed another local preservative-free eyedrops that really helped me and I stopped the antibiotic then the corticosteroid eyedrop and ointment..
I thought that I was doing everything that i should be doing; using tears substitutes, cleaning my eyes and taking the omega tablets...but when I found the forum I knew that the options of having a better pair of eyes is just endless. Thank you all for posting your experiences here, thank God I'm still here and that I found this forum *my heaven on earth*. Stay active!
Regards,
Reham.