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  • #16
    Hi thanks everyone,

    gretchin, yes it is was always a mystery to me why it happens (i have posted about it many times, i havent heard from anyone too similar, making me think noone has the same prob causing there dry eye, which makes me think theres no chance in anything helping me).

    Bascially i figured out what it is happening, its very logical actually. My blood vessels (innereyelids) are enlarged, inflammed etc (just like blood vessles in rosacea). The chrnoic inflammation is a reaction from the body to try to heal something (but the the vessles cant be healed because they are damaged- from contact lense wear im pretty sure), But when another acute problem is happening in the body, the natural reaction of the body is to leave the chronic problem and concentrate most efforts on the acute problem, therefore inflammation goes away for the time being (but always returns).

    There apears the be nothing else in the body causing it etc, the damaged vessles appear to be seperate... I have tried many options of diet, acupuncture, strict diets for MONTHs avoiding anything remotely bad helped IBS symptoms, but as soon as those symptoms subsided, my eyes felt awful again. So it really is help one and live with another.


    Micheal, thankyou for the suggestion..The pain meds.. antidepressants is an option, however around the time my eyes went dry i was on this (although more likely cause was something else), so im afraid ever since to go on antidepressants. The tryicalics are supposed to be more drying as well? What is the situation with your eyes, what are symptoms and how do you find antid's help with them?
    Medical majarunia takes pain away but makes dryness worse

    Thankyou irish eyes and odynous for the kind words its good to hear from you both If i hadnt met him i would have been very depressed about the IPL, so im glad something good came of the trip.
    I healed my dry eye with nutrition and detoxification. I'm now a Nutritional Therapist at: www.nourishbalanceheal.com Join my dry eye facebook group: https://www.facebook.com/groups/420821978111328/

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    • #17
      Sazy, I have similar symptoms to those of Gretchen and autumnn, I think I have ocular rosacea causing my MGD problems. The pain is constant in the left eye but comes and goes in the right.

      This all happened overnight, after a pretty bad facial sunburn triggered a dormant ocular rosacea (or so i think) and then I couldnt wear contacts anymore and then even without the contacts in my eyes felt dry and painful.

      I'm doing IPL, also. Two treatments in, only slight but noticeable changes.

      I was suggesting a pain management center because medicines affect people very differently, so good pain clinics should be able to find a suitable medicine for you. For example, I was given vicadin and ambien in an emergency situation. Vicadin did nothing to cut out the pain, but ironically, ambien made my eyes feel completely normal and painless, so I take it twice during the day to let me function as I would have before DE. I dont know if it has a drying effect, but it gives me back some portion of my quality of life.

      There are some antidepressants that are used to target pain, including fibromyalgia, and might be useful. That's something you should speak to the pain clinician about. Some suggest anti depressants, others suggest benzos, etc. One thing you have to keep in mind in some of these medicines may have a drying effect, but it might be worth it if the pain is getting in the way of your life. Personally, I'm planning to see another pain specialist because I want a medicine that has the effects of ambien without the side effects.

      But if you're interested you should definitely check into pain specialists...even though you havent yet found a cure, you dont need to suffer in pain. If you're coming out to LA, I have a few doctors referred to me for their pain speciality and I'd be happy to pass them on to you. Just lemme know!

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      • #18
        thankyou,

        ambien, what are the side effects.?

        Yes please pass on the info about the pain specialists you see, send me a pm if you can

        I hope to move to LA, but it wont be for a while, my fiance is currently in PA, so i will be living there for abit before we move back there. And i have to finish school another year and 1/2 to go.

        I wonder if you can get that in the UK pain clinic, probably not it would prob be hard convincing them dry eye is painful also
        I healed my dry eye with nutrition and detoxification. I'm now a Nutritional Therapist at: www.nourishbalanceheal.com Join my dry eye facebook group: https://www.facebook.com/groups/420821978111328/

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        • #19
          How long does it last?

          Originally posted by Gretchen View Post
          In short, my life is back to normal in many ways and I cannot begin to tell you all how good I feel. I waited so long to post this because I wanted to make sure that the results were lasting. I received my first treatment at the end of June 2009 and my last treatment was at the end of October. So we will see how long I can go before I have to go back to be retreated.
          Hi Gretchen,

          I realise this post was a long time ago now and wondering if you're still using the site?

          I recently finished a course of four IPL sessions here in the UK and I have seen amazing results! Completely changed my world from being in constant annoyance (especially in my air-conditioned office) to feeling like I did before having dry eyes at all!

          I wanted to know how long symptoms took to come back and how often I will expect to have treatments?

          So glad you seem to have had as much success with this as me!

          Many thanks,

          Gaz

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          • #20
            I feel happy for you Gretchen! Most important of all, your story makes many of us believe that we will get better one day.

            By the way I had tried Lipiflow and felt no improvement at all, and doctors tell me that this method was the best available. This say, would you consider IPL a more effective method than Lipiflow if i were to try it? and what's the price of IPL treatments? Thanks and enjoy your new life ;D

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            • #21
              Hi Sazy, im not sure if you still come on this site, but I really feel like my dry eye cause is similar to yours. I dont suffer from having the thick toothpaste like secretions, my glands just dont produce enough oil and I found out this week that many of the glands in my lower lid have atrophied from all the chronic inflammation which saddened me greatly. When my lids thicken I can tell because the oil has trouble getting out, do you notice this correlation? My only option left is ipl now, but I have to be off the doxy for two weeks before I can have it done, hope to hear back from you. Im hoping the ipl will cut off the the abnormal blood vessels that have grown and are causing all the inflammation.

              Cath xx

              Originally posted by sazy123 View Post
              thankyou,

              ambien, what are the side effects.?

              Yes please pass on the info about the pain specialists you see, send me a pm if you can

              I hope to move to LA, but it wont be for a while, my fiance is currently in PA, so i will be living there for abit before we move back there. And i have to finish school another year and 1/2 to go.

              I wonder if you can get that in the UK pain clinic, probably not it would prob be hard convincing them dry eye is painful also
              27, pinguecula, dry eye, Wirral, UK

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