I don't have much time right now, but quickly I will tell you that I was a "bag lady" -- I was so light sensitive I had to wear a black bag over my head even though I was on 20 prescription pills (including high doses of Lyrica (300mg), Carbomezipine(600 mg), Gabapentin (2400 mg), Baclofen(40 mg), and Hydrocodone (3 times a day) a day to try to control the pain. Contact Boston Foundation for sight. I was helped through them -- Scleral lenses helped some, but new machine called scrambler therapy helped a lot - I am off all pills and no longer a "bag lady". there is better chance for success with early treatment, but i heard of patients helped also who had the disorder a long time. They will decide what treatment is right for each individual patient. These treatments are for severe light-sensitivity and pain caused by corneal neuralgia. (Actually, the scleral lens treats many disorders, the scrambler therapy treats corneal neuralgia specifically -- they used the scleral lens on me first, and then when I was still going downhill even though I had the scleral lens, they gave me scrambler treatment.) Most opthomologists have not even heard of this disorder, but the Boston Foundation for Sight knows it and treats it. When I get time, I will have to share my whole story, but for mean-time, I only have time to get out this word for whoever may be out there and may need help fast.
Because of God leading me to them
eyecansee
Because of God leading me to them
eyecansee
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