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  • Getting my Life Back

    Hello All,

    I have followed the board for some time now, but this is my first posting. A little over a year ago, after sudden onset, an Opthamologist diagnosised me with dry eye syndrome. Fast forward to May of this year and the diagnosis became dry eye desease with low shermer’s scores, MGD, only 2 second tear film and possible ocular rosacea. Then the deep socket eye pain began and almost daily ocular migraines; most painful & miserable.

    The Long and short of it is that I have fought my way back, through considerable trial & error to a nearly normal life. If something didn’t work, I was on to researching & trying the next thing.

    Confirmed by recent eye dr appts, I now have working oil glands, a normal 10 second tear film and no pain. While reluctant to post, this is what working for me after considerable trial and error. I’’m not saying it will work for anyone else & I have no financial gain in any way from mentioning what has worked for me. So here goes:

    * without fail ... Twice daily ... morning & night: dry heat application, followed by Avenova, facial cleanser whipes from Trader Joe’s, one drop each eye of Regener-eyes which has kept Coronas smooth without abrasions. Eye docs were amazed that when my eyes were at worst corneas were healthy & smooth.

    * one capsule daily: cbd hemp oil (medical marijuana) for inflammation control. After trying Doxy, Restasis & xiidra (the later of which made me ill from various side effects)), I knew there must be a way to treat inflammation naturally & without side effects. Thanks to products like Charlotte’s Web CBD & Green Mountain CBD, I no longer have eye or head pain as I no longer have inflammation. Hemp oil is legal in all 50 states since contains 27 parts cbd to only 1 part thc. Like product profiled on 60 minutes to halp children overcome chronic seizures.

    * Retaine moisturizing drops ... down to about twice daily from many times per day earlier on. Found Refresh (even the newer one with flax oil) made my eyes worse. Seem to be allergic to an ingredient in Refresh, but not Retaine.

    * IPL treatments ... 4 since June to open oil/ membobian glands. Also, CBD has helped to keep inflammation at bay which also helps to keep oil flowing.

    in Dec will have lipiflow as doc says since I no longer have much inflammation I am now candidate for procedure. Eye doc says often patients have lipiflow procedure while they have inflammation and that’s why doesn't’ always work.

    IPL & CBD have been biggest game changer for me.

    Please don’’t hesitate to post or message with questions. I too have greatly suffered from this treatable condition.

    Lauren48
    Last edited by Lauren48; 18-Oct-2017, 22:07.

  • #2
    Hi Lauren
    Congratulations! Thanks for sharing.

    Would you mind telling us your glands/secretion status, such as
    thick, toothpaste-like, clogged glands, how many glands were functional?

    Hemp oil: to thin the oil as well, or just for the inflammation? How long has you taken it (to see the results)?
    I just searched a bit and found this hemp oil has both Omega 3 & 6(GLA) which is more effective than omega 3 alone, what I have read recently.

    LipiFlow: if your oil glands are working and you feel great, what LipiFlow will help you further?

    Thanks!


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    • #3
      Congrats on finding a treatment plan that works for you! I'm happy that you have found control of your life again. Quick question about the CBD oil. Do you know if it will make you test positive for THC on uring drug test? My job (physician) has zero tolerance for drug use and there are random urine drug tests Otherwise, I would totally love to try it out.

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      • #4
        GREAT MOTIVATING POST FROM A FELLOW SUFFERER FROM ENGLAND NEARLY IDENTICAL TO YOURSELF. DON'T KNOW WHETHER SOME PROCEDURES AVAILABLE IN UK AND WHETHER PODUCTS CAN BE BOUGHT ON LINE. I HAVE ACQUEOS DEFICIENT DRY EYE AND MILD POSTERIOR BLETHARITIS WHICH I BELIEVE IS THE MOST DIFFICULT TO TREAT. TOGETHER PREVENTING ME FROM SLEEPING ALONG WITH THE ANXIETY AND DEPRESSION CAUSE SOLELY BY THIS DISEASE. thanks from brendan in Manchester uk

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        • #5
          Ps . Nice that someone shares a success story. This site is similar to a dating site. Once you meet someone who stop using the site. IE THOSE WHO GET WELL MANY STOP USING THE SITE.

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          • #6
            Sorry typo error....you stop using the site

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            • #7
              Hello mgd1701, hosanna13, et al. Thank you for your responses to my post. At this point oil consistency is thin and most glands working. Like I mentioned, my dry began a little over a year ago & then rapidly got worse and worse. I felt a race against the clock to not
              wait too long and let memobian glands atrophy and stop producing oil altogether. Then the absence of oil began the absence of tear film, inflammation and lots of pain. It led me thru a couple of dry eye docs to find one to get oil flowing again &’then I knew I had to reduce inflammation to eliminate pain &to keep oil flowing since inflammation becomes a key component to pain & keeping everything all
              stopped up. Fortunately in my state, both medical & recreational marijuana are legal. I began to research the heck out of medical marijuana. Since I didn’t want the thc component that gives the munchies & high, I began to explore hemp which eliminates pain by eliminating inflammation without unwanted side effects because it contains very little thc. Hemp cbd pure plant oil extract has only 1 part thc to 27 parts cbd. As mentioned, 60 mins did a program about a like hemp product given to children to help control seizures. Not sure why lipiflow procedure recommended in Dec, but dry eye doc says will help my healing process now that inflammation is controlled. Also do my daily blinking exercises to strengthen muscles & this also helps generate tear film. Also take daily multivitamin, Omaha & flax oil, probiotic & 2000mg D3. Lauren

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              • #8
                Thanks for sharing...F/G

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                • #9
                  Hi any one out there manage to get a decent nights sleep with dry eye please

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                  • #10
                    Try moisture goggles and/or thick gel at night.

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