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Hi my name is Shane, I am Tom's wife. I have been meaning to get back to this forum for some time.
Tom has not been on this site since 2013 - I am very sorry about that. It is difficult for him to read the posts, brings back some bad memories. So I am posting on his behalf - because I want to make sure people know things can get better for you (hopefully all of you)!
When Tom was on this site - he was in so much pain and so down - and thought life would never be enjoyable again. He gave up hope at one point - but thank goodness things didn't go as he planned - and he is still with us!!
Fast forward to today and Tom is out of pain and enjoying life to the fullest. He has recently taken up downhill biking & trail biking. Tom would have never thought this possible in 2013.
But it was a long road to get where he is today. It took over a year post surgery for Tom to get the correct diagnosis and care.
Tom ended up with cornea neuralgia post lasik, MGD and dry eye.
He feels what helped him most was doing the following:
1) Plugs for tear ducts; Tom ended up getting all 4 cauterized, bc plugs would fall out
2) Serum drops (20%) 8 times/day - he's still on them 5years going - and they got him 30% of his nerves back (have plateaued since then, but need the drops to keep what he has)
3) Get MGD diagnosis; if suffer do probing. Tom has had all 4 lids probed twice. First by Dr. ****** in July 2013 and then Hamrah in Sept 2016
4) Most recently after 2016 probing Tom gets manual eyelids expressions done by Dr Nau of Korb & Assoc
5) Due to dry eye, MGD, & nerve damage Tom wears chamber glasses all waking hours. Need to make sure you get a good fit. He has a petite face - so he wears Wiley X climate control glasses- the Airrage frame - and Tom wears sunglass lenses, so he always has that "cool" factor going
; Tom has 4 pairs of these glasses (dark mirrored, blue/green, lighter shade and clear).
6) He also takes flax-oil daily (3K mgs), scrubs his lids at night with mineral oil, does heated mask 6-7 /week, uses refresh pm at night and uses Lotemax twice a week
Please just try to keep your hope - it takes time for your nerves to grow & heal - but it was possible for Tom. And I hope its possible for you!!!
Sincerely - Shane
Tom has not been on this site since 2013 - I am very sorry about that. It is difficult for him to read the posts, brings back some bad memories. So I am posting on his behalf - because I want to make sure people know things can get better for you (hopefully all of you)!
When Tom was on this site - he was in so much pain and so down - and thought life would never be enjoyable again. He gave up hope at one point - but thank goodness things didn't go as he planned - and he is still with us!!
Fast forward to today and Tom is out of pain and enjoying life to the fullest. He has recently taken up downhill biking & trail biking. Tom would have never thought this possible in 2013.
But it was a long road to get where he is today. It took over a year post surgery for Tom to get the correct diagnosis and care.
Tom ended up with cornea neuralgia post lasik, MGD and dry eye.
He feels what helped him most was doing the following:
1) Plugs for tear ducts; Tom ended up getting all 4 cauterized, bc plugs would fall out
2) Serum drops (20%) 8 times/day - he's still on them 5years going - and they got him 30% of his nerves back (have plateaued since then, but need the drops to keep what he has)
3) Get MGD diagnosis; if suffer do probing. Tom has had all 4 lids probed twice. First by Dr. ****** in July 2013 and then Hamrah in Sept 2016
4) Most recently after 2016 probing Tom gets manual eyelids expressions done by Dr Nau of Korb & Assoc
5) Due to dry eye, MGD, & nerve damage Tom wears chamber glasses all waking hours. Need to make sure you get a good fit. He has a petite face - so he wears Wiley X climate control glasses- the Airrage frame - and Tom wears sunglass lenses, so he always has that "cool" factor going
; Tom has 4 pairs of these glasses (dark mirrored, blue/green, lighter shade and clear).6) He also takes flax-oil daily (3K mgs), scrubs his lids at night with mineral oil, does heated mask 6-7 /week, uses refresh pm at night and uses Lotemax twice a week
Please just try to keep your hope - it takes time for your nerves to grow & heal - but it was possible for Tom. And I hope its possible for you!!!
Sincerely - Shane
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