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Specialist Dry Eye Clinic - Sydney AUSTRALIA

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  • Specialist Dry Eye Clinic - Sydney AUSTRALIA

    Dr Colin Chan
    MBBS, FRANZCO
    Ophthalmic Surgeon

    Vision Eye Institute
    Level 2, 75 Grafton St
    Bondi Junction NSW 2022
    Tel (02) 9387-4355 Fax (02) 9387-5573

    The clinic at this address is devoted to the monitoring and treatment of dry eye. When I started treatment with Dr Chan, I had been in a miserable state for 6 months with post-surgical dry eye - constant burning, and maddening foreign body. The ocular surface showed moderate to severe staining, and normal environmental conditions such as breeze or air conditioning were a nightmare. I could not do my job properly and had no life at all. I had been told that I had a 'chronic' condition, and to 'use drops' and live with it - which was effectively to say that my life was over.

    After some 8 months of treatment with Dr Chan, I'm now almost completely normal, and have no pain at all. I can tolerate howling gales, air conditioning, protracted computer work and even swimming in salt water! After about 4 months there was no surface staining!

    Dr has no magic wands, just the conventional treatments consistently applied and monitored. His basic approach is that of inflammation control to get the eyes into a state where they can begin to heal, combined with all the usual supporting measures such as dietary supplements, drops, compresses etc if the patient finds them useful.

    A letter of referral from an Optometrist or General Practitioner is needed for Medicare/Health Care Fund claims. As I write the initial consult is about $300 with $200 for subsequent monthly visits. The clinic could probably give more info about rebates as I haven't put mine in yet.

    Firstly a through examination of the eyes is done to check for other health issues, intra-ocular pressure, and the quality of vision. Most of these tests are repeated at each visit.

    Dry eye specific tests:
    --------------------------
    Tearlab Osmolarity machine - tests 'saltiness' of tear film, a good proxy for dryness
    Schirmers strips with numbing drops - tests quality of the aqueous layer
    TBUT (tear break up time) - on the dye used, 7secs = good.

    With each visit a questionaire of symptoms and current treatments is filled out.

    In general, treatment starts with the basics of drugs for inflammation control, with an escalating range of options:

    Inflammation and infection control: steroids, (eg Minims Pred), Restasis, doxy etc.
    Pain relief: various antidepressants which work by raising the pain threshold.
    Omega3 dietary supplements.
    Punctal plugging.
    25% Autologous serum drops (from the Red Cross blood bank in Clarence St).
    Plus drops, hot compresses, eyelid hygiene etc if helpful.

    Dr is very approachable and will give a straight answer to the many questions self-taught dry eye sufferers ask. He thinks the key to success is to proceed methodically giving each treatment a fair trial, rather than throwing in the kitchen sink all at once. Patience and strict adherence to the regimes over many months is also required.

    I think the last point is critical. Sometimes the steroids sting like crazy, or the tests and subjective symptoms go discouragingly backwards. The eyes can be very sore after a visit due to the drops and tests. It takes the ocular surface about 3 months to regenerate after the healing process gets underway, and it's very easy to feel that little progress is being made. Or it may be that some non-obvious factor like air pollution or atmospheric humidity causes a setback. There are no guarantees, but I'm convinced that staying the distance will give the best possible hope of cure.

    It is very reassuring to have the whole process correctly monitored so any side effects or problems can be quickly identified. Dr is also with his patients for the long haul and will stagger out follow-up visits over as many months as needed; after initial distrust based on my earlier bad experiences, I felt I was in caring, professional hands. Since Dr has a particular interest in dry eye, which he thinks is a neglected area (and so say all of us!) he is well placed to introduce the latest reputable treatments.

    My own dryness was caused by essential surgery, with no history of contact lens wear, or any prior problems. I want to offer others hope without implying that one size fits all.

    If anyone wants more info, email me via this website and I'll try to assist.

    Regards to all fellow sufferers,
    Simpson Desert
    Last edited by SimpsonDesert; 02-Feb-2011, 21:43. Reason: messy formatting

  • #2
    After reading this thread, I made an appointment with Dr Chan and told them I am from Melbourne. A day later, I received this email -

    Hi Khaled,
     
    I have spoken to Dr Colin Chan and he has recommended that you see either Dr Laurie Sullivan or Dr Grant Snibson who are both ophthalmologist in Melbourne. Best to try these two doctors if you haven’t done so instead of flying up and down to Sydney.
     
    Let me know if you require further help.
     
     
     
    Kind regards,
     

    Michael Nguyen| Orthoptist, Bondi Junction
    I will be making an appointment with one of the 2 tomorrow.

    Comment


    • #3
      Hi Khaled,

      So pleased to hear you were referred to someone in Melbourne. Could you please add to this thread with a description of your particular problem, what you were advised, and how it went? You might want to wait a couple of months to evaluate the treatments.

      My motive in starting this thread was to give people in Australia a strand of hope and a point of departure. The more specialists who can sensibly deal with dry eye the better. Keep us posted.

      Regards, Simpson Desert

      Comment


      • #4
        Hi Simpson Desert,

        My DES is causes from Chronic GVHD from a bone marrow transplant, 2 corneal grafts and 2 cataract surgeries.

        My appointment with Dr Sullivan is in 2 weeks but I also have an appointment next week with Dr Anthony Hall who was recommended to me by my oncologist as someone who has many cancer patients. I have barred my current opthamalogist. I've spent over $35,000 on him in the past 11 years and the only recommendation he can give me for my dry eyes is "use eye drops".

        Ironically enough, Dr Sullivan's office is in the same building and on the dame floor as my current opthamalogist.

        I will keep everyone updated with my appointments.

        Comment


        • #5
          Interesting. I'm currently being treated for dry eye in Melbourne by an occuloplastic surgeon and will definately keep Sullivan and Snibson in mind

          Comment


          • #6
            Originally posted by DCRdryeye View Post
            Interesting. I'm currently being treated for dry eye in Melbourne by an occuloplastic surgeon and will definately keep Sullivan and Snibson in mind
            Hi DCRdryeye,

            Who are you see in?

            I had my appointment with Dr Hall today and I couldn't be more pleased with how it went. He already had a letter from my oncologist explaining to him my circumstances, which made explaining the whole leukemia, bone marrow transplant story easier to tell. He did a simple test where he squished some liquid where my punctual cords had been supposedly blocked (twice) and realized that they were still open. He made me an appointment next Tuesday to have them resealed. He also made me an appointment on Monday with the blood bank to have some serum drops made! Am extremely excited about this! He also said that he might even put me on Restssis if I wasn't getting results from the serum drops. Praying for the best!

            I've since cancelled my appointment with Dr Sullivan. Not working so hard to pay 2 specialists at the same time.

            Comment


            • #7
              I finally decided to make the journey to see Dr Chan after the only "advice" offered by the last doc I saw was "you need to do lid hygiene 4x a day not twice"!!! Surprisingly Dr Chan's waiting list is not that long - I am used to waiting 3-6 months for a new patient.

              I said I hoped I might be able to see him for a diagnosis and treatment plan that I could hopefully take to one of the eye docs back home for follow up. I will see how that works out.

              The fact that Dr Chan did not come back and suggest an eye doc in Canberra that I could see (like he did for Melbourne) kind of indicates there aren't any dry eye competent eye docs in Canberra.

              Comment


              • #8
                Poppy: Really hope Dr Chan comes through for you with a decent assessment. I do feel you're doing the right thing, pursuing better advice.

                He should do better than Prednisolone 4/day for 5m, check out the side effects. I understand your dx was MGD, but no assessment on tear film and aqueous production? No advice on maintaining tear film apart from lid hygiene and blitzing inflammation with high-dose steroid?

                LM has been up and down on FML for 3y - in LM's case this is to protect the corneas from vascularising on flareup, we have no other option. If we are successfully maintaining tear film, we reduce steroid to minimum.

                Keep us posted
                Paediatric ocular rosacea ~ primum non nocere

                Comment


                • #9
                  I'd like to add my own Dr Chan experience to the thread.

                  I made the trip to Sydney recently to see him and feel it was worth the time and cost. Not to mention his waiting list was much less than I'd wait to see a new doctor in Canberra.

                  Just to add to simpson desert's info, the medicare rebate according to the reception staff is the standard rebate which for an initial consult with a specialist is about $70-80. This does leave quite a high out of pocket cost but you do spend quite a lot of time with the orthoptist doing tests and with Dr Chan and I think that unfortunately medicare just does not cater to long specialist appointments.

                  Dr Chan was able to give me a specific diagnosis of severe ocular rosacea and mgd. Although other docs have suggested rosacea, they only did so after asking about skin symptoms like flushing (I do get attacks of embarrassing face redness although my skin is generally good). Dr Chan made his diagnosis of rosacea by examining my eyes without asking about skin issues which gives me more confidence that his diagnosis is based on the clinical signs not just on the fact my cheeks sometimes go red

                  Dr Chan thinks that restasis may help me. Restasis is hard to get in Australia. Dr Chan has faxed the restasis prescription to a compounding pharmacy in NSW who I am eagerly awaiting a call from. The pharmacy will send me the restasis via post. The cost of the restasis is going to be about $60 a month.

                  Dr Chan suggests that if the restasis isn't helping after several months I should consider coming back as he now offers probing which he thought might help me. He was also willing to do plugs (something which has never been offered to me by all the other docs), although he said that wasn't the ideal solution for my type of dry eye.

                  The best thing that Dr Chan said to me: He acknowledged that eyes as severe as mine, needed to be treated from a medical point of view as things would get much worse in years to come. I really appreciated that acknowledgement, as even though I already knew this myself, all the other eye docs made me feel like I didn't need to be there and my eyes didn't warrant treatment.

                  Dr Chan agreed to send me a letter to take to the eye clinic I attend back home, in the hope that they may be able to continue my treatment without having to go to Sydney regularly.

                  I really hope the restasis is helpful and hope the pharmacy calls me soon. At the moment I'm on pred 4x a day and it keeps my eyes managable (just), but I can't continue on steroids forever. If the restasis can provide a substitute for steroids to control inflammation, then that will be a huge help. Dr Chan says I still have plenty of inflammation, and that's after months of steroids so like simpson desert says I think controlling inflammation is the key for me.

                  Comment


                  • #10
                    Hi Khaled, sorry for the late reply. It's difficult to keep track of everything at times! I 'was' seeing Dr. Maryla Stelmach but recently she has declared she can't do anything more for me since her area is surgery. I'm currently seeing a mini-scleral lens specialist at Richard Lindsay and Associates for a trial (Melbourne).
                    I don't think I've heard of Dr. Hall, where is he?

                    Comment


                    • #11
                      POPPY: That's so fascinating to hear. Dr. Chan sounds incredible! it's certainly a far cry from the "use artificial tears" echoes we hear everywhere. Please do keep us informed how the Restasis goes, in fact, I thought it would be more than $60 a month! And to know he does probing too? He's probably one of the best 'switched on' and 'only' dry eye doc in Australia.

                      Comment


                      • #12
                        Thanks for this info. I'm struggling to find a competent dry eye specialist in Melbourne. I wrote to Dr Chan (found his details elsewhere on the internet) and got two names from him. Also chanced across this forum. All very useful. I've compiled all relevant info here: http://eyestrain.sabhlokcity.com/201...e-specialists/ and will keep updating it. I've booked an appmt with an optometrist (Mark Roth) who has TearLab system to test for osmolarity and will try to get a referral to Laurie Sullivan.

                        I can vouch for the frustration experienced by a few of the contributors here. I've written about my pathetic experience here: http://eyestrain.sabhlokcity.com/2011/09/second-eye-specialist-proves-equally-disappointing/

                        Comment


                        • #13
                          Just a brief note to those looking for a DES dr. down under: Sometimes watching the medical literature for interesting pieces coming from Australia (example) and then tracking down the authors can be helpful. (Emphasis on the "sometimes".)
                          Rebecca Petris
                          The Dry Eye Foundation
                          dryeyefoundation.org
                          800-484-0244

                          Comment


                          • #14
                            An update on the cyclosporin ("restasis") - after 6 weeks doesn't seem to be helping much but I'll give it a bit longer. I'm not having any significant burning or side effects.

                            I have been told I can get repeats of the cyclosporin from my local public hospital pharmacy. This will actually be a fair bit cheaper I think, because they only charge a flat fee of about $30 for each prescription.

                            Comment


                            • #15
                              Sanjeev, you've done a lot studying and if we don't do it...who else will? I read with interest and thank-you for the resources, they will save those who find this post living in or near Melbourne a lot of money and time spent on useless eye doctors. It's not unusual an eye doctor will ask if you drink enough water or tried artificial tears, it's insane.

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