Hello All
Well been turned down on NHS for Autologous Serum, despite my optholmology requesting it. The Drugs and Theraputics committee have turned me down flat, based on "its an expensive treatment with NO proven results".
So, now I must start the long and very hard process of appealing the decision. Firstly I have to ask the committee to actually put it before the PCT as of yet it has not gone that far. But I am sure that they will certainly say no. I am not actually allowed to submit an appeal as it has not gone before the actul PCT, what a bloody waste of time as they are probably going to say no and I then have to start to argue....... My consultant's secretary has told me that I have to write to my consultant telling him why I need the medication and he has to submit the new request letter asking the PCT to look at it! Despite him writing to me having told me that he has submitted as much evidence as he could. He is probably as annoyed as I am.
I have spent literally thousands of pounds out of my own pocket in the last few years on various doctors and tests so I do not feel guilty asking the NHS to help me out here as I have managed to drain most of my resources trying to help my other symptoms.
So does anybody in the UK have experience of AS on the NHS????? Or if they know of PCT's who have granted permission???? I will write to the Health Service to see if they can list the relevant PCT's whom have prescribed this. THe NHS do provide a leaflet and I know of at least one member on here who is in the UK and has had some luck. The blood service might be able to help I guess.
I need to get a breakdown of the cost which I had heard did not appear to be much more than the cost of some of the more expensive eye drops, when you take into account the cost of the personal delivery by courier to your door of the blood product. (a lot cheaper than some "unessesary" treatment currently provided on the NHS, sorry for rant)
I believe that this may provide me with a better quality of life as does my consultant, and it should at least be given a go to not only myself but to the scores of sufferer's who after years of trying so much, have little to lose.
Can anyone add anything else to this?
Much appreciation.
Lulu
Well been turned down on NHS for Autologous Serum, despite my optholmology requesting it. The Drugs and Theraputics committee have turned me down flat, based on "its an expensive treatment with NO proven results".
So, now I must start the long and very hard process of appealing the decision. Firstly I have to ask the committee to actually put it before the PCT as of yet it has not gone that far. But I am sure that they will certainly say no. I am not actually allowed to submit an appeal as it has not gone before the actul PCT, what a bloody waste of time as they are probably going to say no and I then have to start to argue....... My consultant's secretary has told me that I have to write to my consultant telling him why I need the medication and he has to submit the new request letter asking the PCT to look at it! Despite him writing to me having told me that he has submitted as much evidence as he could. He is probably as annoyed as I am.
I have spent literally thousands of pounds out of my own pocket in the last few years on various doctors and tests so I do not feel guilty asking the NHS to help me out here as I have managed to drain most of my resources trying to help my other symptoms.
So does anybody in the UK have experience of AS on the NHS????? Or if they know of PCT's who have granted permission???? I will write to the Health Service to see if they can list the relevant PCT's whom have prescribed this. THe NHS do provide a leaflet and I know of at least one member on here who is in the UK and has had some luck. The blood service might be able to help I guess.
I need to get a breakdown of the cost which I had heard did not appear to be much more than the cost of some of the more expensive eye drops, when you take into account the cost of the personal delivery by courier to your door of the blood product. (a lot cheaper than some "unessesary" treatment currently provided on the NHS, sorry for rant)
I believe that this may provide me with a better quality of life as does my consultant, and it should at least be given a go to not only myself but to the scores of sufferer's who after years of trying so much, have little to lose.
Can anyone add anything else to this?
Much appreciation.
Lulu
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