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Hi,
Just wanted to bring attention to folks whom may be struggling with other diseases -- that aren't recognized -- Feb 28th is Rare disease day.
Here's a link to it:
https://events-support.com/events/Rare_Disease_Day
you can watch a videocast live --
Description:
On February 28, and March 1, 2013, the National Institutes of Health (NIH) will celebrate the sixth annual Rare Disease Day with a 2-day-long celebration and recognition of the various rare diseases research activities supported by the Office of Rare Diseases Research - National Center for Advancing Translational Sciences (NCATS), the NIH Clinical Center, other NIH Institutes and Centers; the Food and Drug Administration’s Office of Orphan Product Development; other Federal Government agencies; the National Organization for Rare Disorders; and the Genetic Alliance.
Nikki
Just wanted to bring attention to folks whom may be struggling with other diseases -- that aren't recognized -- Feb 28th is Rare disease day.
Here's a link to it:
https://events-support.com/events/Rare_Disease_Day
you can watch a videocast live --
Description:
On February 28, and March 1, 2013, the National Institutes of Health (NIH) will celebrate the sixth annual Rare Disease Day with a 2-day-long celebration and recognition of the various rare diseases research activities supported by the Office of Rare Diseases Research - National Center for Advancing Translational Sciences (NCATS), the NIH Clinical Center, other NIH Institutes and Centers; the Food and Drug Administration’s Office of Orphan Product Development; other Federal Government agencies; the National Organization for Rare Disorders; and the Genetic Alliance.
Nikki