Puget Sound support group

[Rebecca Petris]

Anybody in or near Puget Sound that would be interested in having a regional support group?

Feel free to post here or email me.

[kitty]

Yeppers here. Any way we could tap into the local Sjogren's folks for their input as well?

[Pinky]

support group

I'm from Vancouver BC and would love to do a little cross border travelling to take part in a DES support group.

[lynnie5510]

dry eye support group puget sound

hi Rebecca - sounds like a great idea. I know of another person who really has had her dry eye trouble. She was referred to me by my dry eye doc to give me support when I was first diagnosed with ocular rosacea so she might be intested as well. And, if a local dry eye doc is requested for a gathering, I could contact Dr. Laukaitis in Kirkland to see if he would be interested in taking part. I haven't been to see him for about 2 years now as I have been very stable, but I do need a new restasis rx so will need to contact him in the next month or so anyway. keep me posted and let me know if I can help. :-) Lynnie

[Rebecca Petris]

Hi Lynnie - sorry it took forever for me to respond!! I would love to have Dr. Laukitis involved in a meeting. I am hoping to get some possible dates lined up soon & I'll let you know!

[sally]

Support Group

I would be interested in participating in a support group if it's not too far for me to drive. My ideal location would be Bellingham and if you need a place to have a meeting, St. Joe's Hospital has a community center where they let groups use meeting rooms and I think it's free.

[Hangus]

I would love to go to the Puget sound support group and if I win the lottery this week I will be there! If nothing else this site has expanded my knowledge as I had not previously heard of Puget Sound but Wikipedia came to my rescue. It sounds lovely.

[Rebecca Petris]

Seattle meeting Sept 15th - save the date!

All,

I have not yet managed to schedule a DryEyeZone meeting. HOWEVER, I've just recently made contact with the local Sjogrens group leader, who is very nice and working hard for local patients.

They have a meeting scheduled for:

SATURDAY SEPTEMBER 15th
10:30 am to 12:30 pm
in Lake City (Seattle)

and have kindly extended the invitation to anyone at DEZ who would like to come. (That includes you, hangus, if the lottery comes through for you - then we'll get to see whether you live up to that pic! ) Guest speaker is... yours truly and as you may imagine it will be a dry eye focused meeting.

I will post details shortly in a separate thread including RSVP information.

[regina]

puget sound meetings

Just found this post...back in 2007...I guess not enough interest? Laukatis? Really...I found his office not very well informed of the whole dry eye thing. I asked him so sign a form for work so I can take a day off of work...my eye were just too fried! And the doc looked at me and said I had never heard of someone going on disability from this...really? Another friend had surgery with him and she said he is rude and some other problems with him...cant remember what they were..but we were both complaining about him...

But anyway....would love to see how the support groups went....

[kitty]

Just found this post...back in 2007...I guess not enough interest? Laukatis? Really...I found his office not very well informed of the whole dry eye thing. I asked him so sign a form for work so I can take a day off of work...my eye were just too fried! And the doc looked at me and said I had never heard of someone going on disability from this...really? Another friend had surgery with him and she said he is rude and some other problems with him...cant remember what they were..but we were both complaining about him...

But anyway....would love to see how the support groups went....

I had a consult (referred by another doctor) with Dr. Laukitis for my migrated/lost plugs. He was very nice, well informed and diagnosed me with ocular rosacea which no other doc had done. His practice now is limited to mostly cosmetic plastic surgery but he does do some oculoplastics.

[regina]

well thats part of the prob

I was also sent there from my optometrist since he was supposed to be a dry eye specialist...and like you said it was cosmetic plastic surgery office...and he dumped me on another doc in the office to help me with diagnosing dry eye...he was worthless. Maybe if it was him doing the check up ...it would have been a better outcome...

I had a consult (referred by another doctor) with Dr. Laukitis for my migrated/lost plugs. He was very nice, well informed and diagnosed me with ocular rosacea which no other doc had done. His practice now is limited to mostly cosmetic plastic surgery but he does do some oculoplastics.

[Bomag]

2011 - Puget Sound support group interest?

I notice these replies are all pretty old and I'm new to the forum. I'd love to find a support group in Western Washington/Puget Sound. Any current interest?

[Margaret]

I'm in the Tacoma area, havent heard of a support group.... Rebecca is also from the Puget Sound, maybe she will shed some light!

[Rebecca Petris]

I went to the Sjogrens meeting several years ago over in Seattle and it was great but I find it difficult to get to Seattle these days so I haven't been since. I tried to do something at my place once a couple of years ago but there wasn't really any interest at the time. Maybe it's time to try again? Sure seem to be seeing/hearing from a lot of folks in the area lately. I would love to find a way for us all to get together.

Maybe one get-together and then talk about whether it's practical to do something more regularly? Could do something here at our place (in Poulsbo). For those east of the Sound, we're about 12 minutes from the Kingston ferry terminal and 25 minutes from the Bainbridge terminal. Or if anyone has other ideas about locations do speak up! Libraries are often a good place to try to get a room for free that we can use.

[Margaret]

I would definitely be interested and your area is fine with me! Thanks Rebecca!