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Hello, I signed up for this forum last year after being dubbed the "chalazion queen" by an eye doctor. That's always a ringing endorsement. For years and years I would experience sudden stinging, tearing attacks in my eyes, then reactive tearing that would go into my nose and look really attractive. Particulates were a definite culprit. As time went by I started getting chalazia in different places on both lids, usually one at a time in the summer. Each time I went to the doctor about it, I was told to live with it after being given a cursory exam where a doctor's aide would try to jam a Fluoroscein strip under my eyelid. I have a very pronounced flight / go into fetal position reflex where my eyes are concerned. Along the way I picked up the general rigamarole for doing warm compresses and developed a system but I only did it when I actively had a chalazion. I now know that was not enough.
Last year, when I was dubbed the chalazion queen, I had insurance INCLUDING vision. I was laid off, lost the insurance, and within about 14 months of my last insured eye consultation I started noticing fairly conspicuous ghosting of things at a certain distance (I totally hate signage now). Obviously I was convinced I had a tumor, aneurysm, whatever, so I took my uninsured self to one optometrist. He couldn't correct my vision and suspected the problem to be my corneas and said I could possibly have keratoconus, but his clinic didn't have fancy enough equipment to see for sure. A friend who really DOES have keratoconus referred me to another place where the prevailing theory is that in addition to meibomitis and blepharitis, I have some kind of epithelial or anterior corneal dystrophy.
I have no history of contact use, no refractive surgeries, over a decade of dry eye attacks, and yet my corneal topography looks like a hurricane.
Sometimes a picture is better than a wordy treatise.
The eye doctor I've seen twice now is consulting with a corneal specialist because it's so hard to even do the vision correction exam and my underlying lid dysfunction is such a factor. I came here today looking for any links to video of how to really express the meibomian glands and found that you have a whole corner for people with corneal dystrophy. As I like to say, I live in a corneal dystopia.
Last year, when I was dubbed the chalazion queen, I had insurance INCLUDING vision. I was laid off, lost the insurance, and within about 14 months of my last insured eye consultation I started noticing fairly conspicuous ghosting of things at a certain distance (I totally hate signage now). Obviously I was convinced I had a tumor, aneurysm, whatever, so I took my uninsured self to one optometrist. He couldn't correct my vision and suspected the problem to be my corneas and said I could possibly have keratoconus, but his clinic didn't have fancy enough equipment to see for sure. A friend who really DOES have keratoconus referred me to another place where the prevailing theory is that in addition to meibomitis and blepharitis, I have some kind of epithelial or anterior corneal dystrophy.
I have no history of contact use, no refractive surgeries, over a decade of dry eye attacks, and yet my corneal topography looks like a hurricane.
Sometimes a picture is better than a wordy treatise.
The eye doctor I've seen twice now is consulting with a corneal specialist because it's so hard to even do the vision correction exam and my underlying lid dysfunction is such a factor. I came here today looking for any links to video of how to really express the meibomian glands and found that you have a whole corner for people with corneal dystrophy. As I like to say, I live in a corneal dystopia.
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