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Hi all, I only found this site yesterday and cannot believe the similarities to my symptoms. I sure wish I could have found you about 5 yrs ago when my RCE was at its worst and I couldn't find any info about my problem, until a good eye doctor told me what the condition was called.
I can certainly empathize with you all as far as the excruciating pain thats caused by an erosion when waking up.
I don't have a clue what started my erosions but it was a gradual increase in occurances in one eye and then started also in the other. I dealt with the pain until it got too much and too often and eventually broke down and visited my local eye doctor (which was when I found out what was actually wrong).
Fortunately I now believe from some research that I happened to luck into one of the best cornea surgeons in the U.S.A who immediately booked me in for PTK surgery. From reading here though I think I had several treatments in one go.
I had them scraped, then the PTK laser, and also the needle all around the eye. Oh, and BTW I had both eyes done at the same time! The surgery probably took about 10-15 mins each eye, which was pretty much pain free..........the recovery was a different story because I had both done together. With the pain killers I think I slept for 2 days after. The headaches and vision with the contact bandages were the main problem but I think it would have been easier to do one eye at a time.
I never had a dry eye problem until after the surgery for erosions. I've only had one bad erosion and a few minor episodes since the surgery, but I believe these are due to the dry eye that I now have. My only problem now is releasing my eye lid from my eye ball in the morning which seems to come and go and not all the time. I don't use any drops during the day because I don't suffer the dry eyes like some people here during the day.....it's just when I sleep at night (or should I say wake in the morning).
This is where you guys come in, as I ordered some Dwelle from you yesterday and hopefully stop the glued eyeball thing!
At the beginning I used Muro 128 drops and ointment which seemed to help the healing of the erosions. For those interested there is a generic version of Muro 128 ointment that is only about $5 per 3.5g tube and I think it's made by Akorn (Sodium Chloride Opthalmic Ointment USP, 5%). I think I purchased it from a Winn-Dixie pharmacy.
For those with RCE I would highly recommend the surgery I had because I believe it has cured my RCE problem. I just need to sort out the morning dry eyes now.
I hope my story helps others to get through because reading your stories helped me realize I wasn't unique with the problems I had and also now have.
P.S. If I'm allowed to mention my surgeon, it was Dr Peter Zloty in Dothan Alabama.
I can certainly empathize with you all as far as the excruciating pain thats caused by an erosion when waking up.
I don't have a clue what started my erosions but it was a gradual increase in occurances in one eye and then started also in the other. I dealt with the pain until it got too much and too often and eventually broke down and visited my local eye doctor (which was when I found out what was actually wrong).
Fortunately I now believe from some research that I happened to luck into one of the best cornea surgeons in the U.S.A who immediately booked me in for PTK surgery. From reading here though I think I had several treatments in one go.
I had them scraped, then the PTK laser, and also the needle all around the eye. Oh, and BTW I had both eyes done at the same time! The surgery probably took about 10-15 mins each eye, which was pretty much pain free..........the recovery was a different story because I had both done together. With the pain killers I think I slept for 2 days after. The headaches and vision with the contact bandages were the main problem but I think it would have been easier to do one eye at a time.
I never had a dry eye problem until after the surgery for erosions. I've only had one bad erosion and a few minor episodes since the surgery, but I believe these are due to the dry eye that I now have. My only problem now is releasing my eye lid from my eye ball in the morning which seems to come and go and not all the time. I don't use any drops during the day because I don't suffer the dry eyes like some people here during the day.....it's just when I sleep at night (or should I say wake in the morning).
This is where you guys come in, as I ordered some Dwelle from you yesterday and hopefully stop the glued eyeball thing!
At the beginning I used Muro 128 drops and ointment which seemed to help the healing of the erosions. For those interested there is a generic version of Muro 128 ointment that is only about $5 per 3.5g tube and I think it's made by Akorn (Sodium Chloride Opthalmic Ointment USP, 5%). I think I purchased it from a Winn-Dixie pharmacy.
For those with RCE I would highly recommend the surgery I had because I believe it has cured my RCE problem. I just need to sort out the morning dry eyes now.
I hope my story helps others to get through because reading your stories helped me realize I wasn't unique with the problems I had and also now have.
P.S. If I'm allowed to mention my surgeon, it was Dr Peter Zloty in Dothan Alabama.
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