hi everyone,I am your asia friend

[makerit]

hi everyone
I come from china ,and my english is not good ,so please forgive me that maybe I can not express myself correctly.

I was diagnosed as dry eye for two years ,and before that ,I just got my master degree and work in a consulting firm ,because some problem with my immune system and too much time working in front of my computer ,I got this disease,and the doctor here in china ,too ,can not help me .

So I have to give up my career as a profesional ,then leave the city i worked,and to go back to my hometown ,and fortunately I got a job as a teacher here, this job enables me to control the time that use the computer,and I can remember the teaching material with the help of audio book.

but thesedays,my eyes got worse and worse ,i am graified that i can find this site ,and really hope to communicate with you .

maker

[littlemermaid]

So happy to welcome you but so sorry to hear about your eyes and lupus. Hope you find some hope, comfort and progress.

http://www.apao2010beijing.org/enews...tter_apr10.htm

World class inflammation specialists are heading your way so make sure your ophthalmologist attends, or gets information to help you, or maybe find a way to access help yourself. Would you feel able to approach a regional expert for advice on getting better treatment, or at least alleviation of symptoms and stopping the worsening?

In case this is useful: there is an ORBIS Cyber Sight telemedicine programme (see link about Shanxi Eye Hospital) to access international specialists who volunteer through ORBIS http://www.orbis.org/Default.aspx?cid=4867&lang=1 http://www.eurotimes.org/09March/NewsmakerInterview.pdf. I wonder if you could access the right person to advise you.

Best wishes for some progress.

[makerit]

thank you very much for telling me the Cyber Sight telemedicine programme information and the ORBIS website,I will keep it and regularly browse this site to get useful information.





Actually ,for the dry eye have troubled me these years and gradually take away my ability to work ,I have try my best to ajust my attitude to it and I think I have prepared for any worse situation and never lose my hope.

[chelvis7]

Hi makerit,

i am from malaysia and i can speak chinese.
I am a student that is currently studying in Germany and got my dry eyes, which is due to MGD here.

Well, you mentioned that you have dry eyes due to immune system problems.

Well I visited a chinese doctor in Germany before i have dry eye. And i just asked him about my health status. He took my hand and said that i have immune system problem. I didn't pay much attention and after a few weeks i was diagnosed with dry eye.

And what immune system you have exactly?

[makerit]

hi chelvis7 ,very glad to meet you here.
I have MGD too,and I do not know exactly what the immune system problem is ,but the test show that some of my immune system index is a little abnormal ,and doctor prescribed some chinese medicine to me.

I've had acpunture for a period of time ,and I think it do some help to dry eye ,I think maybe you can try it .

[chelvis7]

By the way, whats your current treatment?

[makerit]

a chinese medicine named "Total glucosides of paeonia",now the immune system index is normal now ,but DES is the same .

[frankzhang]

Another Asian friend

Hey Makerit,
I am very surprised knowing there is another chinese on this forum, I do believe there are outstanding armount of people in china have dry eye problem, but I have no idea where they look for support or place like here for discussion.
I had my dry eye problem after did lasik surgeon in DC where my friends claim one of the best eye doc........... I thought the dry eye problem will go away after around 1 year, however, it has been one year and it never goes away. I came back to china last Summer and start working in shanghai. dry eye problem bother me everyday, it does make me feel kinda of angry, disappointed, and finally hopless. and my career is an architect, just like what you did before, i have to work with computer all the time.
I would like to get know your contact info. as i believe everyeone's case is different and everyone has own way to manager the problem and also, more importantly, the psychological truma. Plus there is very limited medicine or good eye docs in china.
I will post more detail stuff here later and I appreicate anyone in this community giving any kinda of help. thanks in advance.

[makerit]

Hey Makerit,
I am very surprised knowing there is another chinese on this forum, I do believe there are outstanding armount of people in china have dry eye problem, but I have no idea where they look for support or place like here for discussion.
.

HI ZHANG

I have sent you a private message with my contact information ,maybe we can have a talk with the MSN or something .

[painintheeye]

hi there!

Hi,

I've been on DES for over 3 years now and I am from Taiwan. I've been suffering from dry eyes due to autoimmune disease called Sjogren's. Typically Sjogren's causes both dry eyes and dry mouth and eventually dries up all the mucus secretion glands within the body too.

Do you know if that is what you have? I actually visited the Shanghai Chinese Medicine Hospital 'Long Hwa" and gotten some chinese meds before but that did not help much. But since then, I've managed to get my symptoms under control via other means that work for me. Therefore, if you have confirmation that your problem is somewhat related to auto-immune, then maybe I can suggest something.

BTW, have you ever tried Restasis? I did it for 7 months but it didn't work at the time because I didn't know that my dry eyes was auto-immune related.

Never give up. I've seen many people gotten over dry eyes eventually or finally figureing out a regimen that works specifically for him/her.

Best, Chris