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Progesterone & Testosterone eye drops

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  • CC00
    replied
    Yoyobee: How did the testosterone cream work for you?


    Originally posted by Yoyobee View Post
    It is actually Testosterone cream used for low libido. So no, it will not be applied near my eyes. I apply on my inner arms or inner thighs. None of the docs I've talked to have heard of the eye cream. It is a really low dose as to avoid the negative side effects. 1 milligram/milliliter (if I am reading it correctly) Both my OBGYN and the pharmacist said it is just enough to replace the testosterone I am missing since I no longer have ovaries. I'm going to give it two months. It is really hard to be optimistic but I'm trying.

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  • LiliS
    replied
    hello.,i,m Lili ...i have also severe dry eyes,dry nose ,si uses,mouth ,ears...due to Sogren,they say,but i,m sure menopause done that to me too...i had Lipiflow in march,i am sorry i did that( i live in Romaniai,ve done it in Italy,costed a lot of money ...and for nothing). I also used autolougous serum drops,which helped a lot with the cornea,i advise all the people with corneal ulcers and erosions to make an effort and have them prepared...but for me they are not working anymore...it,s obvious that i need a treatment for the lacrimal glands and eye lids,not for the eyes and i think that is the case with many of us...we have to find something who could restore their tear procuction or mat least,stop their destruction...hormones are definetely involved,i read a lot of studies(in medical journals,not on the net) and i wished i had HRT 5 years afo...anyway i started with estrogen patches and a little bit of testosteron gel....about the testoseron eye cream,there is a doctor in Florida ( Waxler) who peecribes it succesfully,i changed mails with his office bcs i wanted to buy that cream and i found out it,s done in a compound pharmacy...

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  • heyjude0701
    replied
    Sorry about the reduced vision, Gram. I know that the cornea accounts for some non-trivial proportion of refraction, so maybe new glasses would help. I have a friend who had meibomian gland probing; it didn't help at all.

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  • Gram
    replied
    Tried Lipiflow called MIBo in Mt. Dora Fl

    Originally posted by heyjude0701 View Post
    Yes ,we are spending enormous amounts of money I gave up on the warm compresses; I had been doing them for a few years and I don't see any difference. The warmth used to feel good on my eyelids, and I would relax and listen to music, but it doesn't feel good anymore so I gave it up. Now cool feels better, so I put the cool AloeMoist cream on them and massage it in. I'm just marking time until I can get another PROSE scleral lens made for my right eye. The clinic in San Francisco isn't open yet. I haven't decided if I should wait until it opens or go back to the tried and true doctor who fitted my PROSE lenses at Weill Cornell in NY a few years ago. That will cost big time because I'm on Medicare now, and Medicare doesn't pay for sclerals. I am also thinking about going to one of the concierge doctors in Carmel, CA ($$$$$$$) who was recommended by a friend. The friend doesn't have dry eyes, but she gets a hormone mix from this doctor for other problems. Since I have no circulating testosterone, maybe this doctor would give me some estrogen/testosterone mix? I am so afraid to mess with hormones. But I think testosterone might help my dry eyes. Maybe if it is a low dose like you are taking, I would not be afraid to try systemic testosterone. I was so hoping that the testosterone eye drops would help, but they burned so badly I couldn't tolerate them. The concierge doctor who I might be able to get testosterone from costs so much money. You have to pay a yearly fee to belong to her "network" and then pay an additional amount for each visit. And of course, she practices medicine completely outside the insurance network, so insurance would cover none of it. There is one eye clinic in Monterey that does Lipiflow. Would it make any difference if I knew whether my meibomian glands are producing any oil or not? Would there be a difference in treatment options depending on the results? It would be interesting to know, but if it wouldn't make a difference (I'm not going to do Lipiflow and I'm not going to have my meibomian glands probed, so I'm not sure it would make a difference if I knew or not). I doubt they are producing oil; I have no ear wax anymore either.
    I have had an amniotic tissue sutured to left eye for dry eye symptoms of scratched cornea. Do not know if the "smoothing" over that cornea will be helpful or not, do know my eye has reduced vision with that implant. Stephen ******, in Tampa, was ready to schedule surgery on right eye the following week. I declined, would not have been able to drive from Orlando. His response, by e-mail was to have a new script for my "spectacles".
    Wonder if meibomian probe may encourage production of oil, as of now his "machine" shows atrophied glands. Doc has poor bedside manner, what to do? Wonder if unforeseen results of probing could surface? Am told "no problems with the procedure.??

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  • LiliS
    replied
    Thank you! Actually testosteron eye cream ( as well as estrogen or DHEA eye creams) can be made in compounding pharmacies...there is a doctor in The US - Brian Boxer Wachler who prescribes testosteron eye cream to his dry eyes patients,i changed mails with his office bcs i wanted that cream,they said a pharmacy is doing the cream for their clinic...i can,t go to Florida ,unfortunately,but maybe you can...

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  • heyjude0701
    replied
    Yes ,we are spending enormous amounts of money I gave up on the warm compresses; I had been doing them for a few years and I don't see any difference. The warmth used to feel good on my eyelids, and I would relax and listen to music, but it doesn't feel good anymore so I gave it up. Now cool feels better, so I put the cool AloeMoist cream on them and massage it in. I'm just marking time until I can get another PROSE scleral lens made for my right eye. The clinic in San Francisco isn't open yet. I haven't decided if I should wait until it opens or go back to the tried and true doctor who fitted my PROSE lenses at Weill Cornell in NY a few years ago. That will cost big time because I'm on Medicare now, and Medicare doesn't pay for sclerals. I am also thinking about going to one of the concierge doctors in Carmel, CA ($$$$$$$) who was recommended by a friend. The friend doesn't have dry eyes, but she gets a hormone mix from this doctor for other problems. Since I have no circulating testosterone, maybe this doctor would give me some estrogen/testosterone mix? I am so afraid to mess with hormones. But I think testosterone might help my dry eyes. Maybe if it is a low dose like you are taking, I would not be afraid to try systemic testosterone. I was so hoping that the testosterone eye drops would help, but they burned so badly I couldn't tolerate them. The concierge doctor who I might be able to get testosterone from costs so much money. You have to pay a yearly fee to belong to her "network" and then pay an additional amount for each visit. And of course, she practices medicine completely outside the insurance network, so insurance would cover none of it. There is one eye clinic in Monterey that does Lipiflow. Would it make any difference if I knew whether my meibomian glands are producing any oil or not? Would there be a difference in treatment options depending on the results? It would be interesting to know, but if it wouldn't make a difference (I'm not going to do Lipiflow and I'm not going to have my meibomian glands probed, so I'm not sure it would make a difference if I knew or not). I doubt they are producing oil; I have no ear wax anymore either.

    Leave a comment:


  • Yoyobee
    replied
    Heyjude, I wasn't too impressed with the Lipiflow. I was impressed with the exam though. They flipped my lids and took pictures of my glands. Turns out I have many atrophied and truncated glands which will never produce oil. The functioning glands aren't clogged....they just don't produce oil. I did purchase a really nice warm compress mask that I just microwave for 20 seconds. It only stays warm for 5 mins so I have to remicrowave for an extra 10 seconds each time. It fits nice and is washable. It's made by a company called Bruder. They sell it online for about $35-40. the exam also recorded my blinking. I was not closing my eyes all the way so being aware of that and fully blinking has helped with the tears.....not the oil.
    So I give Lipiflow two thumbs down . You could just do the exam for about $200. It did motivate me to take really good care of my eyes......using the night ointment and tranquileyes
    Gosh, we are all so desperate that we are spending enormous amounts of money.........sigh

    Leave a comment:


  • Yoyobee
    replied
    It is actually Testosterone cream used for low libido. So no, it will not be applied near my eyes. I apply on my inner arms or inner thighs. None of the docs I've talked to have heard of the eye cream. It is a really low dose as to avoid the negative side effects. 1 milligram/milliliter (if I am reading it correctly) Both my OBGYN and the pharmacist said it is just enough to replace the testosterone I am missing since I no longer have ovaries. I'm going to give it two months. It is really hard to be optimistic but I'm trying.

    Leave a comment:


  • LiliS
    replied
    hi,is it an eye testosteron cream or a regular one to apply on your skin? and what is the concentration of testosterone ? i spoke with apharmacist here ( i livein Romania) and she said she doesn,t know how to make a testosteron eye cream / never done that! We can find testosteron gels in Europe ,but they are not good for the eyes area...please keep us posted

    Leave a comment:


  • heyjude0701
    replied
    Originally posted by Yoyobee View Post
    I just picked up some compounded testosterone that my OBGYN prescribed. It's a low low dose so I am not expecting any of the bad side effects. I'll let you know how it goes. I am also I the process of having the serum eye drops made. I'll let you know how that goes too. Has anyone noticed any improvement by taking doxycycline?
    Good luck with the testosterone and serum eye drops, Yoyobee. Please keep us posted! Doxycycline didn't help me. I took Oracea for a few weeks but all it did was to upset my stomach and I didn't notice any difference in my dry eyes.

    Leave a comment:


  • Yoyobee
    replied
    I just picked up some compounded testosterone that my OBGYN prescribed. It's a low low dose so I am not expecting any of the bad side effects. I'll let you know how it goes. I am also I the process of having the serum eye drops made. I'll let you know how that goes too. Has anyone noticed any improvement by taking doxycycline?

    Leave a comment:


  • LiliS
    replied
    yes,it,s worthing...the serum drops can actually heal the corneal ulcers.. they stopped my pains and healed my corneal abrasionts...rhey don,t sting,either...my only problem was with the nose ( i have dry nose too and everything i put in my eyes goes ther and acts like a glue // had to wqsh it with saline solution )) (i had mine done in 20% dilution( there are some who make them until50% / more is dangerous ,because rhe proteins from the serum may precipitate in the eye and make deposits there/ . the ASD are the obly " natural" eye drops for dry eye...all the rest are chemicals... i had to go 800 miles in order to hwve them done,even if i live in the cwpital of Romania,there is noone here to make ASd,had to go in another city,the drops weren,t expensive,but with the whole journey & hotel they cost me 500$ ...... about the testosteron...i couldn,t find here a pharmacy able to do an eye crewm with testosteron...i will try with a transdermal gel / small amount,of course,but i,m a little scared because of the possible side effects.... wish you luck

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  • Yoyobee
    replied
    Lil, thanks for replying. I am in the process of trying to get the serum drops. Do you think they are worth it? He estimated $300 a month plus the cost of the blood draw. If it worked, I would do it in a heart beat. I'm miserable.
    Have you had any negative side effects from the testosterone? I've read it can cause your hairline to recede and acne.

    Leave a comment:


  • Yoyobee
    replied
    Heyjude, I am sorry to hear your eyes have gotten so bad that driving is limiting. I can see how that could be. Isn't it nice to have a place where others understand the seriousness of this issue?
    My ophthalmologist hadn't heard of testosterone as a treatment but e-mailed three of his colleagues in New York. I will keep you posted. I have an appointment with my gynecologist on Monday. Lots and lots of doctors appointments.
    One new thing that I am doing is wearing my wind protective sunglasses in the house. They came with a clear pair of lenses. I look like a dweeb but it does seem to help. I also purchased a nice cool air humidifier for the bedroom. All this stuff is costing a small fortune!$$$$. Thanks for replying.

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  • LiliS
    replied
    Hello,my name is Lili and i live in Romania ..li have severe dry eyes due to Sogren,but definetely aggravated by menopause ....which i didn,t helped with HRT ( big mistake!) ,now i began Climara patches( estradiol) and want to try some testosteron gel once a week ( a very little amount,the size of a pea ) ...i found a very smart gynecologist who worked in Germany and he said he did that kind of hormonal replacement for many women with dry eyes and it worked. The great problem is to find the right balance between estrogens/ testosteron/ progesteron ( though it seems the progesteron is not involved in dry eyes pathology/// the testosteron is!!abd the estrogens too,) .It,s very important to check the blood level of the sex hormones and see what,s missing...The testosteron gel can be found in Europe,in Japan too ...i took mine from a pharmacy online .About an eye cream with testosteron,this is more complicated,have to find a pharmacy able to do that,but you have in the US some doctors who make it ( dr Connor was the first,dr Jeffrey Dach too ) .Anyway the hormones enter the blood stream ,so if it is a lack somewhere,eventually it will be corrected...but this takes time ...so i don,t think you did good quitting HRT ,maybe it was not well chosen...( there are many different concentrations of estrogen/ progesteron and in Europe doctors use estrogen / testosterone combinations when needed,,,...) . As for me,i,m having big issues with artificial tears,they all harm my eyes ( and nose too,because they stick there somehow and i already have a dry nose too) . I did Lipi Flow // didn,t helped...in fact i think the contrary! i tried Restasis too,can,t bear it...the only thing it helped me were the autolougous serum drops,but only for a short time ( ,they healed my cornea,it,s true) ,but i have togo 800 miles to havethem done and it,s very complicated and expensive ..,

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