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Denise from Michigan

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  • Denise from Michigan

    Hi

    I've had dry eyes ever since I can remember. I guess when I was little they didn't know that much about it (I'm 54). My parents took me to an opthamologist for exams, but he didn't say anything about how dry my eyes were. On Halloween when we went to the homes of our aunts and uncles, they could always spot me through my mask right away among the throngs of kids, because I blinked so much. Nonstop blinking in a child is pretty noticeable.

    I had RAI for Grave's Disease about 12 years ago, and subsequently have extremely dry eyes, worse than ever before, protuding left eye with retracted lid, and slightly droopy right lid. My optometrist sent me to an opthamologist last year to discuss surgery. He didn't think surgery was necessary yet, and I really don't want it if I can avoid it. Sometimes I'm self conscious about the protruding eye, but it isn't too bad yet, and I'm living with it. I know it will likely get worse. My left eye doesn't close when I blink or when I sleep.

    I've been using Systane Ultra for a couple years, before that I just Visine. I know ~ yikes! The Systane gave some relief, but my eyes were still always very red, and quite dry. I wore contact lenses from 19 - 20 something, and gave them up because I always felt like I needed to rip them out. When I started needing bifocals, I went for the monovision contact idea. Lens in my right eye for distance, no lens in my left eye which had really good near vision. A few weeks ago I had a contact lens emergency, and have seen my optomotrist 5 times in 3 weeks. She thinks my eye is healed enough now that I don't have to go back for 6 months, unless I have problems. I have pretty major scarring and reduced vision in my right eye as a result, but it could have been worse. At my last evaporation test (Friday), my optometrist actually jumped and said "Whoa!" The tears evaporated immediately. Obviously worse than the last few years. That explains why I can't be outside when it's windy. Sometimes when I'm driving, I have to pull off the road because my eyes hurt so much I can't drive. I wear the darkest sunglasses I could find.

    Since my recent visits to my eye doctor, I've switched from Systane Ultra to Systane presertative free, and from Refresh PM ointment to Genteal gel at night. I also use Occusoft+ wipes on my eyelids at night. Since switching to the Systane pf and Genteal, my eyes are the whitest they've been in my adult life. Not really white, but better. Yesterday I ordered Dwelle and Tranquileyes. I'm going to get prescription goggles (probably 7Eye Briza) in a couple weeks. I tried them at my last visit to my optometrist Friday, and I like them. But the optician wants me to wait a week or so, so she can get a few more models in for me to try.

    There's more, but I've pretty much written a novel already.

    It's nice to be among people here who understand my life with my eyes. I've never had that before.

    Denise

  • #2
    Hi Denise,

    My dry eye problems started after an injury to the cornea (from gardening, of all things). The right eye was just awful, so dry I was using drops all day long, with Genteal gel and Tranquileyes at night. I would still wake up with my lid stuck to my eyeball, so would have to put drops onto the closed eye and wait till I felt them seep in till I could safely open my eye.

    About a year later, I hit menopause quite suddenly and the nights were very difficult with frequent hot flushes. I'd had enough after 3 months so I went to a doctor specialising in bio-identical hormones. She put me on a mix of oestrogen, progesterone and DHEA, which I get from a compounding pharmacy. To my great surprise, my eyes improved overnight. Now I keep up the night-time regime (just in case) but I don't need drops in the day. I can go in air-conditioned buildings, even sit a bit closer to the heater. I'm 55 now. Don't know how you feel about hormone replacement, especially after Graves disease, but for me it was a bit of a miracle.

    All the best,
    Kerry

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    • #3
      I'm not familiar with hormone therapy for dry eye, but I went through menopause in my 40s. Definitely something to talk to my doctor about. I think I'll talk to both my eye doctor and my endocronologist. Today it's so bad I'm having a lot of trouble seeing out of my left eye. It doesn't help that at my routine doctor visit today my bp was 170/110. Extreme stress (work related) is doing a number on my heart :/

      Denise

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      • #4
        Hi from Lucy from Michigan!

        Welcome and I'll check in later. Lucy
        Don't trust any refractive surgeon with YOUR eyes.

        The Dry Eye Queen

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