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Last edited by octoberends; 08-Feb-2019, 04:51. -
I'm sorry to hear you had to leave university. Could you clarify whether you actually had a referral from your GP to see an ophthalmologist or have you only seen one in Accident & Emergency? If that's the case, they couldn't have had time to do a proper examination because it's a veritable conveyor belt. I know because I've had it.Originally posted by octoberends View Post
Their flippant attitude doesn't help - even though we all know that there are more serious things. My `more serious eye thing' is actually easier to manage than the dry eye and blepharitis.
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What type of pain is it? Like a sharp stabbing pain on the surface of the eye that comes and goes?
Or "deeper", constant aching pain around your eyeball?
If it's the deeper aching pain I think it is unlikely to be dry eye or blepharitis.
If it's only in one eye and the other eye is completely fine, that is also less likely to be dry eye or blepharitis.
Did the opthamologist do a dilated eye exam (they would have put drops in your eyes that made you really sensitive to light), or did they just look at the surface of the eye? Did they do any other tests? Ask for a dilated eye exam if they didn't do one. They may discover something wrong inside your eye. If they don't want to do one, try telling them you have also had a sudden increase in eye floaters.
Have you been given medications to try for neurological pain (amitryptyline/endep I think is one)? These are not really painkillers but can help people who get migraines and things like that. I think they work to actually prevent the migraines if that is what you have.Comment
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One more suggestion. Have you been to an optometrist (rather than an opthamologist) and done a full regular eye checkup. There is always a chance an optometrist might pick up on something that gives you a clue as to what's wrong, just because they do spend a lot more time with you and usually genuinely want to help. They will also do the eye pressure test and things like that which you might not have had... at least here in Australia they do.Comment
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Possibly you need to see a neurologist. I say this because my father suffered a stroke several years ago and since then he's had several mini-strokes. One of the mini-strokes caused severe pain and blurry vision in one of his eyes, which thankfully eventually resolved itself. However, such eye pain can also be an indication of a brain aneurysm and I feel it is important that this be considered and that you should see someone other than eye specialists.Comment
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It might be unusual but not impossible. My left eye causes more discomfort than the right one so yours might be a matter of degree.Originally posted by octoberends View Post
Looking at the back of your eye was the right thing to do because they needed to rule out conditions like uveitis (inflammation of the iris). That's something I get - although thankfully not as often as I used to. Some of the symptoms could be described as `burning & tugging' but I knew the real discomfort was behind the eye rather than the surface. It's a condition that needs to be treated promptly or else there can be real problems.
Keep hopeful
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Many of us use antibiotics; doxycycline is one example.
I'm not able to use baby shampoo because it's too harsh. I often use plain warm water with salt. Commercially available cleansers (Ocusoft, Lidcare) sometimes seem to make the problems worse.
Blepharitis means inflammation of the eyelids so it covers a wide spectrum of things. I've known it clear up in a few weeks but it depends on what's causing it in the first place. You would never believe that the condition still poses challenges to doctors - but your GP is wrong to dismiss it.Comment
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Hello again Octoberends
You would expect baby shampoo to be mild but brands differ so much.
I think you are wise to get an appointment at Moorfields although I'm a bit surprised that the neurology person wasn't able to make some kind of internal referral. I appreciate that it depends on how the department is set up.
Let us know how it goes.Comment
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ann m
Hello There
I probably can help you when I am back from my business trip. I started with RCE in August and my life was literally put on hold-and believe me it is and has been an agonizing process. If you can visualize a life- completely changed in a moment- that was the impact of RCE on me. The difference with me is probably that I am happy and always looking for a plan to live with this thing.
You must show authority and "ask for what you need." It is very true that the squeaky wheel gets the grease. You must keep trying until you find someone to help you. I am still not cured- but I am at least satisfied for this moment. You have to be in control of your situation and when you are completely miserable- it is almost impossible--- but yet again, it is doable and necessary to abate the depression that sets in with most of us. It is a choice to set up a plan ....
I took control and I am in a stable situation for 6 days out of 7. That 7th day is awful- and I am going to decide how to make this heal if it is possible. If it is not possible- then I will go on to the next procedure. It can change in an instant- so I am not fooled. It is awful but not devastating perhaps.
We are only going to advance if there is a group- from different areas- explaining his/her own experience. I know accounts of people that are erosion free 5 years and it starts all over.Last edited by ann mckinnon; 26-Oct-2010, 03:59.Comment
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The description of your eyelids is familiar.
I may have given you this website before: scroll down as you will see that antibiotics are mentioned. Some pictures also so you can compare these to your own eyes.
http://www.agingeye.net/otheragingeye/blepharitis.phpComment
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