How dry eyes ruin my life

[anthos_1975]

Why me, that's the question ! It's so difficult to live with dry eyes. Sometimes i lose my hope. Nothing can treat this condition and researchs are at the beginning...

I can't go outdor to play with my daughter and my wife... I stay at home all the time except to go to work. My life is miserable. I am losing my job !

I feel the pain every day and every night, there is no medication to treat the pain, my hope is in the darkness now.....

My schirmer test is 0, my BUT 4 sec and my eyes are so red and painfull.

All the days i wonder me if the life need me... My family yes, but i can't do anything with my family. I can't go outdoor, can't go on holidays, can't go to the cinema, theatre, read a book.... It's not a life, it's a jail.

Is there any persons who can tell me how they do to live ! Sometime i feel so bad that i want to die for stopping the pain... I am 35 years old only....

My future is so dark !

My treat :

Ciclosporine 0,1 % 3X
Zaditen 2X
Baggy rice
Tranquileyes
panotptx
Ointment for night (Vitamine A, petrol)
Vismed
Punctual plug : low for the moment
Next : Moister chamber


When i see the reasearch pipeline, i am afraid that my condition will be not treat in a very very very long time.... or never.

Doctor's haven't any medication to treat us and i wonder if the ciclosporine is effective because since i have start cyclo, my condition worse.

If i lose my job and i need to saty at home all the times, where is my life ? Where is my mind ? What shall i come ?

I can not take away the idea of suicide. It's terrible for me because i love life, i believe in god and i am terrify by my future.

I wish full of hope to all !

[aga]

hope for You

I feel so sorry for you. A year ago I lost my tears of no reason. I went to bed healthy and woke up with no tears.Probably the reason were antidepressants, but who realy knows? I took restasis for 7 months with no result. I resigned (I mean I HAD TO RESIgn)from my work. I had two choices to do-to commit suicide or to start something different. I went to Chinese Medical Centre. I had herbs to boost my immune system, to calm my nerves , to boost my blood circulation and herbs for "ill eyes". I had acupuncture as well. After 6 months of this treatment my eyes are much better. No gels for sleeping, no drops for waking up. I put drops during the day- every 2-3 hours but for me it is nothing because I had to put them every 10-15 minutes. In Schrimmer test- between 10-12mm!!!!!! So if you dont have any illness such as Sjorgen Syndrome etc. try something unconventional. I.m sure it will help.

[anthos_1975]

Thank you aga,

Could you tell me the herbs that you have taken or medicals chinese you took.

Like i think it's antidepressant wih is the cause of my dry eyes... maybe but not sure. Doctor's tells me no !!! but....

I am very interessing about your informations...

[zde2]

sorry to hear you are going through this. Have a read of my post it may help you


http://www.dryeyezone.com/talk/showthread.php?p=57111

[Rebecca Petris]

anthos_1975,

I am so sorry you are in such a difficult place right now. This is the place many here fear. Feeling hopeless is just an awful place to be.

I want to say a word about your daughter. A lot of people in a dry eye crisis go through this - they may feel they are letting their family down, or they may feel useless because they can't do as much for people as they used to. But... you have some limitations right now (I feel sure you will be able to get it under better control in time but unfortunately none of us know exactly how long in advance!) and it's OK to accept those limitations and let your family adapt. - My husband has a lot of health issues, serious enough that he can't even live with us now because he has to have more medical care than I can give him. He is only 43. We have an 8-year-old daughter. Her dad can't do any of the things with her that her friends' dads can... but that's OK. She knows that he would if he could and she knows he loves her and that's enough. Just having him be her dad and seeing him as often as she can is OK. Do we wish it were different? Sure, but we also work hard to embrace things as they are. I know our situation is very different - ours is long term, but the severe crisis stage of dry eye is not generally a long term thing (eventually you get to more of a maintenance phase) - all I am trying to say is that it's helpful to stop putting too much pressure on yourself and let it be OK that you do less for awhile. Your family can adapt too.

I can't go outdor to play with my daughter and my wife... I stay at home all the time except to go to work.

I am hoping that good moisture chambers will completely change this for you. I remember when I got my first Panoptx glasses in Florida many years ago. I had not even realized how much I stayed inside until suddenly I could go out again! I was amazed.

My life is miserable. I am losing my job !

I am so sorry. What kind of work do you do? Is it possible to get some understanding and help where you are working?

I feel the pain every day and every night, there is no medication to treat the pain, my hope is in the darkness now.....

Is there anything that seems to help the pain - cold compresses or anything else? Is there anything of what you're doing now that seems to make it worse?

[aga]

herbs

My doctor says that antidepressaqnts can kill the impulse in brain even for 3 years!!!!!And he is really good one so I trust him. About herbs-I have no idea the names of this herbs- they are just black or brown balls in small bags and that,s all what I know:-). So the only solution is to go to the chinese medicine doctor and ask for help.
PS.I took lexapro and its the biggest **** on the market. And as you-I,m very young-34!!!!

[patrick]

hi anthos,

sorry to see you're having such a hard time.
many of us have been there,but you need to remember it will pass!
learning to cope with this aggonising condition just takes (a lot)of time.
don't give up hope for a cure/treatment or that your condition will improve spontaniously. this condition probably won't stay with you the rest of your life. things are changing rapidly at the moment.
since you live in france haven't you tried to get an appointment with dr. baudouin in paris?
from what i've heard he is one of the worlds most prominent dry eye researchers.
if you're interested i can provide you with the contactinformation.
i live in europe as well (the netherlands) and i've contacted him to.
at the moment i'm waiting for his invitation to make an appointment in the near future.

patrick...

[rooneyandfergie]

Why me, that's the question ! It's so difficult to live with dry eyes. Sometimes i lose my hope. Nothing can treat this condition and researchs are at the beginning...

I can't go outdor to play with my daughter and my wife... I stay at home all the time except to go to work. My life is miserable. I am losing my job !

I feel the pain every day and every night, there is no medication to treat the pain, my hope is in the darkness now.....

Hi Anthos,

I empathize completely with what you are going through now. It is indeed difficult to live with dry eyes. It's frustrating that nothing really works effectively for dry eyes. My social life and quality of life have taken a beating due to dry eyes. My eyes are also red all the time which has really gotten me down.

When i see the reasearch pipeline, i am afraid that my condition will be not treat in a very very very long time.... or never.

Doctor's haven't any medication to treat us and i wonder if the ciclosporine is effective because since i have start cyclo, my condition worse.

If i lose my job and i need to saty at home all the times, where is my life ? Where is my mind ? What shall i come ?

I can not take away the idea of suicide. It's terrible for me because i love life, i believe in god and i am terrify by my future.

I wish full of hope to all !

Anthos, I am actually younger than you in my 20s. I too can't do a lot of the simple things which i have taken for granted in the past such as driving, using the computer and going into an air-conditioned room without feeling major discomfort. I was close to quitting my job a few months back and I too pondered about how life would be meaningless if I had to stay home everyday.

Apart from dry eyes, I also have glaucoma which could cause blindness. I discovered that about the same time I developed dry eyes. It was a devastating double blow for me. The eye drops for the glaucoma sting pretty badly and turn my eyes even redder. I also since developed sinus issues after having dry eyes.

The suicidal intentions that you have will come and go. It's a phase a lot of the other dry eye patients go through as well. I had dry eye for close to a year now. Compared to a year ago, I would perhaps say there has been a slight improvement in terms of the comfort although the redness has worsened. Hence, it is not totally a foregone conclusion. Your eyes will probably feel better after a few months if u take care of it. The improvement will be very slow and it will take time to feel the effects.

I hope you can hang on and try to do everything in your power to improve it. Keep doing your research and some trial and error. By doing so I believe you should be able to find some relief from your condition. Hopefully you will recover soon from your condition and God bless.

[anthos_1975]

Thank you all of us for yours posts. Suicide is an obsession for me. I
don’t want to commit suicide but i don’t want to live like that. I was a
guy who was very active and now i stay all the time in the same place… I
don’t know if i have a future or not. If i must stay at home all my life, i
prefered to die but i think i don’t have the courage. How can i do to
forget this obsession ? I would to be a personn who says i want to fight
and i want to win this battle. But when you look around, there is no
treat ! It’s hard.

I love my wife, i love my child soo much but I am so desperate. I am afraid
which my family doesn't support all that at the end. Suicide is not a
solution i know but it’s really attracting. Why i have this things in my
mind…. I want to live, play with my child, to take care, but i can’t. I am
very sad my friends at this moment. I hope my tears come back but nothing
arrives. My eyes are definitively dry !!! no moisture ! Sometimes i think
about blindness, i know not for now but in the future we don’t know. People
tells that you cannot go blind with dry eyes, but if you have absolute dry
eyes ???? I am afraid not to hold

At this moment, i am terrified by the idea to have an increase in the pains
and i don’t know how i can manage it and if i will prefer to jump from a
building and finished….

Today the single reason for which I fight it’s my family. Write on this
site is like a therapy for me, sorry for people who reads this post wich
misses hope.

I pray god every days to help me. I hope god help us one day.

________________________

I work in an office and i spend my time on computer. I put drops every
10min.. It’s very difficult, if i lose my job i did not
can been able to provide for the needs for my family. If this day arrive i
don’t know what my reaction will be !!!!!!! I am not poor today but it will
become to it and my family too if i lose my job. I am so affraid !!!! and
nobody can help me…. It’s dramatic.

[spmcc]

RE: anthos_ 1975

I'm so sorry to hear that you're in this state. I have been there too.

I am not a doctor but I wonder why you don't have steroid drops on your list of treatments?

I know that when I am in the worst pain, the only thing that helps is steroid drops. There are some that are weak (alrex), medium (lotemax) and strong (pred forte). If you can get some weak ones and try them... and if they don't work, move up to medium or strong, you will see a big drop in inflammation (and pain) almost immediately. A doctor needs to supervise this treatment because your eye pressures may go up.

Do you think you would be able to go to Paris to see Dr. Baudouin? He is highly recommended by people here.

Please try some new doctors and treatments. I believe that there is something that will help you with your pain quickly.

All the best.
Sheila

[anthos_1975]

I Will go to see doc. Doan who is another specialist in France of dry eyes on décember.
Today i am not on steroid because doc doesn't want to avoid glaucom. He gives me steroid in extreme case. He doesnt want to give pilocarpine because he says that pilocarpine attack the eyes and make them worse for zéro benefit or a little. I think only god can help me.

I need help but nobody can help me.

[aga]

help

I sent you a private message about herb so read and get some hope!!!!!