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Hello and thank you dez!!!!

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  • Hello and thank you dez!!!!

    I have suffered with severe dry eyes all of my life. I remember my mother telling me when I was a baby I would always hide my face in her chest because of the lights. My DES is due to a dry skin condition (palmar plantar hyperkeratosis) which causes the insides of my eyelids to be rough like sandpaper. It’s not as bad as some cases I‘ve seen on the internet but I do has patches of dry skin on the palms of my hands and the soles of my feet. Most people when they meet me think it’s a bad case of eczema.

    I have been visiting the site and reading the different posts for a few months now. Before coming across this site I was really starting to get depressed about my DES. I was starting to lash out at my family and began pushing my friends away. Everybody around me was changing. My younger sister just got her first car, one of my close friends just recently got engaged and I am suffering from a eye condition that no one understands. I stay in the house in the dark all the time. Doctors can’t help me, because of my photophobia they can hardly do any examinations on me (I’ve been to over a dozen eye specialist). So I decided to resort to home remedies which caused me to have a really bad eye infection (water, ACV, and honey is a big NO NO!!!!).

    After searching the internet, I came across this site, which I am so glad to have found. When I read the article on depression and anxiety I was relieved because it helped me to see that my emotions are valid and that there are others out there suffering and feeling the same way I am. This is very motivating to me so now I am educating myself on finding ways to live better with my DES.

    I’ve also learned about the sclera lenses through this site (which still puzzles me as to why none of my doctors never recommended these before…but I digress). I got myself together and I am doing everything I need to do to get these lenses. After a long wait, I will be headed to the Boston Foundation for Sight in about a week and I am really excited. After reading numerous of posts on this site I decided to register so that I can document my journey as well.

    This website has had the strongest impact in my life than any eye specialist has ever had.
    And God said: "LET THERE BE SIGHT."

  • #2
    Welcome... I'm glad you're here!

    Originally posted by iSIGHT View Post
    I’ve also learned about the sclera lenses through this site (which still puzzles me as to why none of my doctors never recommended these before…but I digress). I got myself together and I am doing everything I need to do to get these lenses. After a long wait, I will be headed to the Boston Foundation for Sight in about a week and I am really excited.
    I am sooo glad that you are on your way. Of all the difficult conditions that could hope to benefit from the PROSE lenses I think yours must be near the top of the list. Extreme photophobia is so disabling. I wish you the very best success with it. We're all wishing you well. Keep us posted
    Rebecca Petris
    The Dry Eye Foundation
    dryeyefoundation.org
    800-484-0244

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    • #3
      Welcome! Keep us informed PLEASE! I am so hopeful for you. We'd love to hear how the meeting with the foundation went. I think there are many others on the site that are considering a visit as well.

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      • #4
        Yes I will keep eveyone posted
        And God said: "LET THERE BE SIGHT."

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