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UPDATES: I figure since I'm so young and an am anomalous case, I've posted an update as a comment that's currently on page two of this thread. I'll continue to post weekly updates as I don't think I've seen that many comprehensive post-LipiFlow journals on these forums.
I've also posted a very similar thread in another subforum so I'm going to do updates on that one only as to avoid double-posting.
http://www.dryeyezone.com/talk/forum...sful-treatment
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Hi all, long post incoming.
TLDR; terrible MGD and pain, no treatments have worked, getting demoralized about dry eye.
I first experienced dry eye symptoms at age 17 and its been 3.5 years now. My symptoms are terrible pain from MGD, not aqueous deficiency and no treatment works. Treatments I've tried but failed to get any relief from:
The worst part about all of this is that my symptoms are all much worse than the signs. My meibomian glands are all still intact and no atrophy has occurred, my corneal staining is normal, my tear osmolarity is also in the normal range but my TBUT is 2-3 seconds in each eye and my lipid layer thickness is also below 50.
My ophthalmologist is the director of the dry eye and corneal disease center at a major Ivy League hospital so I have no doubt that she's giving me the best options possible but nothing helps with symptoms. I've also seen a rheumatologist and all the labs were normal for basically every autoimmune disease I was tested for. Every day my eyes are red from dryness and give me pain that gets worse as the day goes on. I'm concerned that my symptoms are already so bad when I'm this young that in the future I'll barely be able to keep my eyes open. The pain is bad enough that it interferes with my work and studies, especially during the winter when it is very dry outside. I have never been suicidal but this pain has made me think that being dead would bring relief from the eye pain. Honestly I'm getting very demoralized about my prospects in the future because of MGD and my symptoms.
Any suggestions on what to try next? I am considering LipiFlow and IPL but both are very expensive and I'm not sure I'd find relief from them.
I've also posted a very similar thread in another subforum so I'm going to do updates on that one only as to avoid double-posting.
http://www.dryeyezone.com/talk/forum...sful-treatment
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~
Hi all, long post incoming.
TLDR; terrible MGD and pain, no treatments have worked, getting demoralized about dry eye.
I first experienced dry eye symptoms at age 17 and its been 3.5 years now. My symptoms are terrible pain from MGD, not aqueous deficiency and no treatment works. Treatments I've tried but failed to get any relief from:
- preservative free lubricant eye drops
- daily warm compresses
- fish oil for several months
- oral doxycycline
- Alrex, Lotemax, FML, prednisolone steroid drops
- 50% autologous serum drops for a month
- Azasite and oral azithromycin
- Cliradex wipes for 3 weeks
- moisture chamber goggles
- Restasis for 10 months
- Xiidra for 3 weeks
- meibomian gland probing (worked for only two days)
- scleral lenses (can't tolerate very well for more than a few hours)
The worst part about all of this is that my symptoms are all much worse than the signs. My meibomian glands are all still intact and no atrophy has occurred, my corneal staining is normal, my tear osmolarity is also in the normal range but my TBUT is 2-3 seconds in each eye and my lipid layer thickness is also below 50.
My ophthalmologist is the director of the dry eye and corneal disease center at a major Ivy League hospital so I have no doubt that she's giving me the best options possible but nothing helps with symptoms. I've also seen a rheumatologist and all the labs were normal for basically every autoimmune disease I was tested for. Every day my eyes are red from dryness and give me pain that gets worse as the day goes on. I'm concerned that my symptoms are already so bad when I'm this young that in the future I'll barely be able to keep my eyes open. The pain is bad enough that it interferes with my work and studies, especially during the winter when it is very dry outside. I have never been suicidal but this pain has made me think that being dead would bring relief from the eye pain. Honestly I'm getting very demoralized about my prospects in the future because of MGD and my symptoms.
Any suggestions on what to try next? I am considering LipiFlow and IPL but both are very expensive and I'm not sure I'd find relief from them.
This forum also helps me when I feel down, reading the dry eye victories and knowing that theres some hope always gives me a little bit of a boost.
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