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  • Introducing myself

    Hi Everyone,

    After about a year of looking at this forum (which increased exponentially the last few months), I have decided to become an 'active poster'. As I am now an active poster it seems right to introduce myself. I'll say a couple of (short) things about myself first and then elaborate extensively on the history of my dry eye condition.

    Short bio

    I live in The Netherlands, male, 25 years old. I finished university last year and am currently working full time as a programmer. As you can imagine, I have a lot of exposure to screens due to my job.

    Dry eye history

    Experience with (ro)accutane

    My experience with DED started when I went on my first course of (ro)accutane, back when I was 19. I had mild dry eye symptoms (some irritation when conditions were windy). I believe this had to with me being on a pretty low dose of accutane. After finishing my course of accutane my skin cleared up and I no longer had eye issues. Several months later my acne came back and my dermatologist put me on a higher dosage of acctuane. Surely, the dry eye symptoms returned and, as my accutane dosage increased, dry eye symptoms got worse. At one point I felt like the dry eye symptoms were ruining my life more than the acne and I asked my doc to reduce the dosage. The dosage was reduced and dry eye symptom wise I felt some relief. After finishing this round of accutane my acne stayed away for much longer and my eyes returned to normal. Then, when I was 21 years old, my acne came back but not as severe as it used to be. My dermatologist decided to put me on a very low 'maintenance' dose of accutane. My acne subsided and I did not really experience any dry eye symptoms. Ever since I stopped this course my acne has not returned. However, after about 6 months of quitting accutane for good, my dry eye symptoms started to develop again. At this point I'm pretty sure that my past acctuane courses have caused my current dry eye. At the moment, of course, I really regret using accutane as much as I have done in the past. However, my dermatologist assured me that my dry eye symptoms would not be permanent, so I suppose I had no way of knowing that, in fact, damage done by accutane eyes can be permanent. Hell, I would take on severe acne again if it would mean my eyes would go back to normal.

    Mild DED

    In the beginning, I was about 22 years old, my symptoms were very mild. I had some problems during the evening if I had been using the computer all day, but only if I continued using the PC during the evening. I did not use any drops or other treatments at this time. Life was still pretty good. After several months my symptoms worsened, leading to problems every evening, even if I did not use the PC heavily. I decided it was time to visit a doctor. The doctor told me to use artificial tears. I did not experience symptom relief from using the artificial tears. The doctor decided to refer me to an eye specialist. The eye specialist diagnosed me with blepharitis and put me on a 2xday hot compress regime in combination with proper lid hygiene. This improved my symptoms, and, although I still had issues with using the PC for way too long, I could cope very well with my condition.

    Moderate DED

    Last year, I started to experience more moderate symptoms of DED, even though I was still doing the 2 times a day hot compress routine. I did some research and decided to use omega 3 (fish oil) supplements alongside with my lid hygiene routine. This helped a lot again and my dry eye symptoms went back to mild. As I finished university and would start working 40-60 hrs a week as programmer this year I decided to take some precautions, even though my dry eye was pretty mild. I visited a clinic that does IPL treatment, and started off with IPL. During these treatments (I had 3) I also started with my new job.

    Moderate/severe DED

    Sadly, my DED only seemed to get worse after the IPL treatments. I don't know if the IPL treatments were responsible for this (could do this be?) or that it has to do with more computer time during the day due to my new job. Anyway, I went back to the eye specialist and she noticed that my eyes were pretty inflamed (red) as well. She decided to prescribe me Tobradex. I have just started using it today (am supposed to use it 3xday first week, 2xday second week, and 1xday third week), and really hope that when the inflammation subsides, symptoms will go back to being mild again (although I'm afraid this is not going to happen). If the Tobradex does not work my eye doctor said she could try placing plugs. So at least I have a backup plan.

    At this point I'm constantly feeling my eyes burn, which is quite a different sensation from what I felt before. When I would only have problems during the evenings I could literally feel my tear film drying up, causing me to close my eyes. The constant burning I feel at the moment just feels different, but seems to be present at all times. My eyes also get very red. Not very consistenly though, just a red patch between my iris and my nose.

    I'm sorry for the wall of text. I just tried to be very detailed hoping that someone might recognize some of my problems and that they might have some advice for me on what to change/do differently (quitting my job and looking for a different kind of job is not an option yet I'm afraid).

    Thank you for reading!


  • #2
    The accutane is harmful to MG, they must stop selling it. i think that the first think to do is a lipiview to see the state of your MG and if you are a partial blinker . After that, you have many options, lipiview...
    Reading the forum will help you to find what to do next.

    Comment


    • #3
      Hey Therios,

      Welcome to the party! I figured I would comment since I sound pretty similar to you. I'm also 25, and although I didn't use Accutane, I think a combination of bad seasonal allergies (which I have had my whole life) plus 12-16hr contact lens wear since I was 13years old has turned my eyes against me. I'm the same as you, where it has gradually increased over time. I have burning and redness, which I hate the most. In 1.5 years I've done: 2 rounds of Lotemax for inflammation, eyelid debridement, countless OTC preservative free drops, humidifier, fish oils, allergy immunotherapy shots, etc.

      Although I haven't found the cure, I've learned to accept that it's a long and slow journey and it could take years! Keep up your regiment and know that there is a ton of ongoing research and clinical trials for new solutions for us! I am in the same boat - can't quit my job!! We just have to ride out each day and keep our chins up.

      Good luck!!

      ~L

      Comment


      • #4
        Originally posted by bobXfr View Post
        The accutane is harmful to MG, they must stop selling it. i think that the first think to do is a lipiview to see the state of your MG and if you are a partial blinker . After that, you have many options, lipiview...
        Reading the forum will help you to find what to do next.
        Thanks for the advice! I'm actually still looking for a dry eye specialist centre in The Netherlands (or perhaps even in Belgium, Germany of France near the border). So far I have only come across a clinic that offered IPL. I have not found anything yet that offers advanced machinery such as lipiview. If anyone has any any tips regarding this, please let me know!

        Comment


        • #5
          Originally posted by dryeyesandchocolate View Post
          Hey Therios,

          Welcome to the party! I figured I would comment since I sound pretty similar to you. I'm also 25, and although I didn't use Accutane, I think a combination of bad seasonal allergies (which I have had my whole life) plus 12-16hr contact lens wear since I was 13years old has turned my eyes against me. I'm the same as you, where it has gradually increased over time. I have burning and redness, which I hate the most. In 1.5 years I've done: 2 rounds of Lotemax for inflammation, eyelid debridement, countless OTC preservative free drops, humidifier, fish oils, allergy immunotherapy shots, etc.

          Although I haven't found the cure, I've learned to accept that it's a long and slow journey and it could take years! Keep up your regiment and know that there is a ton of ongoing research and clinical trials for new solutions for us! I am in the same boat - can't quit my job!! We just have to ride out each day and keep our chins up.

          Good luck!!

          ~L
          Hi there, thanks for the warm welcome haha. I have only recently started to accept my current position as well, and am also trying to take life day by day at the moment, hoping I will soon find something that will make it all more bearable again. I guess I'm relatively lucky that I can still try a couple of treatments I have not tried yet that are easily to come by such as plugs.

          Comment


          • #6
            see https://dryeyeandmgd.com/find-a-doctor/

            Comment


            • #7
              Make sure you limit as much as possible your time on electronic devices as I am seeing more and more young people with MGD since I started on this forum 6 years ago...it is alarming! Google things that you can do to mitigate the damage caused by these devices.

              Comment


              • #8
                I am also a long time accutane sufferer since I took it about 10 years ago, I also tried IPL and other expensive treatments 8 years ago, my advice would be not to focus on these expensive treatments instead focus on diet and detox to get the accutane out of the body as that is the root cause, I wrote a post here about a guy who did this and had a lot of success:

                http://forum.dryeyezone.com/forum/dr...s-disappear-to

                Comment


                • #9
                  Therios, have you looked into scleral lenses yet? These are nickel-sized dome-shaped gas permeable lenses that bathe the corneas in saline, and the lens edges rest on the sclera/white part of the eyes. Although this does not solve MGD, it can provide relief for the dryness. Not everyone can wear them, but it's worth a try to go for a consult to see if you are a candidate. WVM, a guy in his 20's like you from the Netherlands, found a lot of relief using sclerals, and there was a specialist in your country who successfully fit him with the lenses. Perhaps reach out to him to find out more, here's his thread he kept up with his progress:

                  http://forum.dryeyezone.com/forum/dr...rable-dry-eyes

                  As Alex mentioned, diet changes can also help. I was finally able to get better with probing plus changing my diet. To help manage the remaining dryness, I also wear sclerals.

                  Comment

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