Feeling Discouraged..

[Rebecca Petris]

Hi Jenessa!

Wow, what an ordeal! I am so sorry. And yes hospitals really are the very worst, aren't they?

To me this sounds like exactly the right situation for PROSE.

[Hokucat]

JenessaP , I think it’s a good sign the IPLs help, even if only for a short time. I had a similar experience after each of the probe procedures I had where my eyes felt better each time for ~a week, then revert back to the same debilitating dryness that kept me homebound. I had to try many different diet changes until I found what helped me produce better oils from the inside so my glands didn’t get blocked up again, and also helped my lacrimal glands produce more tears. I have not had a probe for over three years now.

Perhaps make more diet changes one at a time, as you continue with your IPLs. I prefer food as my medicine, but some people have also found doxycycline helps thin their oils from within.

I documented my dry eye journey a few months ago, in case something here might help you, if at minimum, to give encouragement that it’s very possible to get better:

https://www.dryeyestories.com/new-bl...ous-deficiency

Hope you find more relief soon.

[edmunder]

How does HOCl become soap?

I thought it was the best non irritating option to kill bacteria on the lid margins.

Is it safe to be used on the lid margin?

Hypochloric acid kills the bacteria so that the soapy discharge from bacteria doesnt happen.

Its good for the eye and for many people makes their eyes feel better.

I definitely have nocturnal lagophthalmos. After taping my right eye for the last three days things have improved significantly. But I do feel my glands are not producing lipids at enough rate since in the morning I could see my lid margins quite shiny and nicely coated with lipids and feel quite normal even under a ceiling fan running at full RPM. But as the day progresses the shine on my lid margins and the coating of lipids on the same seem to diminish. I can clearly note the difference under a flash light in front of a mirror. The lid margins appear more matt if not absolutely dry and the shine is not as reflective as it's in the morning after I wake up.

I’d say if you can, when things start to feel off, toss in your favorite drops and take a nap. If you feel good from sleeping, try using it as a tool to heal your eyes. Sounds like your assumption is correct. Either you’re not blinking completely, your oil quality is poor, production/expression is low. Sounds like you’re just evaporating quickly and over the course of the day, the exposure causes dryness and inflammation. So wearing moisture chambers to prevent evaporator and taking naps should help a lot. When my daughter naps, I nap or at least close my eyes and listen to a podcast. I’m lucky I get to watch her all day.

[Milo007]

I wouldn’t know a cause of dry eye progressing through the day, but if you were symptomatic in the mornings, most likely you sleep with your eyes open. If you get more dry as the day progresses, you probably don’t have nocturnal lagopthalmos, so you can eliminate that as a cause.

Trying to eliminate as many possibilities that don’t fit and entertain the ones that do.

I definitely have nocturnal lagophthalmos. After taping my right eye for the last three days things have improved significantly. But I do feel my glands are not producing lipids at enough rate since in the morning I could see my lid margins quite shiny and nicely coated with lipids and feel quite normal even under a ceiling fan running at full RPM. But as the day progresses the shine on my lid margins and the coating of lipids on the same seem to diminish. I can clearly note the difference under a flash light in front of a mirror. The lid margins appear more matt if not absolutely dry and the shine is not as reflective as it's in the morning after I wake up.

For a person whose eyes get worse progressively as the day passes, what could be the cause?

I wouldn’t know a cause of dry eye progressing through the day, but if you were symptomatic in the mornings, most likely you sleep with your eyes open. If you get more dry as the day progresses, you probably don’t have nocturnal lagopthalmos, so you can eliminate that as a cause.

Trying to eliminate as many possibilities that don’t fit and entertain the ones that do.

[Milo007]

I would look into hormone issues. The birth control issue with women and dry eye seem to have connection. Maybe testosterone cream or something on the eyes.

No LASIK. Did you take Accutane?

I understand the homebound life/hell. I went from living in a huge Asian metropolis with an amazing lifestyle, friends and job to living in my bedroom at my moms house listening to audiobooks since July 2nd. Definitely considered suicide more than once.

For me it was getting at the inflammation with steroids that helped. And lab goggles. I live in them and actually ordered s box of 5. I wear one for a few weeks then its kind of broken. 5$ a pair. Sleep in them too.

Hypocholoric acid on the eyes to kill the bacteria which become soap and cause burning.

Lid scrubs? I dont like them. Blepharitis is not my issue. Have you tried?

How does HOCl become soap?

I thought it was the best non irritating option to kill bacteria on the lid margins.

Is it safe to be used on the lid margin?

[Milo007]

How well do you sleep? Do you wake up a lot to put drops in? Are you worse in the morning or are you good in the morning and get worse as the day progresses?

I think for most of us on the forum, it’s trying to find the cause of the problem. For me, I was sleeping with my eyes open. Now that I’m taping my eyes shut at night and controlling inflammation, tings are better. Not perfect, but better. I’m still looking for some relief from some lingering issues, but finding my root cause has changed things a lot.

Hope you get some relief.

For a person whose eyes get worse progressively as the day passes, what could be the cause?

[edmunder]

I would look into hormone issues. The birth control issue with women and dry eye seem to have connection. Maybe testosterone cream or something on the eyes.

No LASIK. Did you take Accutane?

I understand the homebound life/hell. I went from living in a huge Asian metropolis with an amazing lifestyle, friends and job to living in my bedroom at my moms house listening to audiobooks since July 2nd. Definitely considered suicide more than once.

For me it was getting at the inflammation with steroids that helped. And lab goggles. I live in them and actually ordered s box of 5. I wear one for a few weeks then its kind of broken. 5$ a pair. Sleep in them too.

Hypocholoric acid on the eyes to kill the bacteria which become soap and cause burning.

Lid scrubs? I dont like them. Blepharitis is not my issue. Have you tried?

[Meibum Ian]

The one I saw spent more time examining my blink than anyone else (but thought it wasn't a factor).

Probably a good idea to ask them first if that's their kind of domain, before handing over any more money. It was just suggested to me that I see one if I wanted to further examine whether eyelid floppiness was a factor for me

I got great insurance and my deductible is met...so it would be free or a 50 dollar copay. I wouldn’t mind paying that for an opinion. Might as well, figure out what’s going on over here.

[Meibum Ian]

That may be my next stop then, no lie. I’m exhausting all other fields of medicine.

Probably a good idea to ask them first if that's their kind of domain, before handing over any more money. It was just suggested to me that I see one if I wanted to further examine whether eyelid floppiness was a factor for me.

Next on the list would be a witch doctor I reckon

I know I've mentioned this before, but I think an Oculoplastic surgeon might be best suited for examining this specific problem.

That may be my next stop then, no lie. I’m exhausting all other fields of medicine.

[Meibum Ian]

I have had exactly what you’re speaking about in both eyes, and I currently still have it in the right eye pretty bad. I describe it almost like eyelid paralysis. I want the lid to move I’m trying to make it move but it just does not want to close all the way. I’m still trying to figure out what’s causing it. Is nerve damage, is it just simply exposure from keeping the eye open at night, is it just simply inflammation, a little bit of all that. I have no clue. But that’s why keep going to doctors trying to figure out what’s going on with these eyes.

I know I've mentioned this before, but I think an Oculoplastic surgeon might be best suited for examining this specific problem.

Dowork123 Nights are getting better for me after the IPL but it’s not always consistent. I used to sleep with an eye mask but I kept taking it off in my sleep so I might try again. Im not sure if you’ve ever had this but sometimes when my eyes are really sore I have a hard time closing them at night? It’s almost as if the muscle is too tired to keep my eyes shut. But it’s only on bad days. What do you use to tape your eyes? I did initially have papillary conjunctivitis after my first experience with dry eye when I was wearing contacts, however this went away after I stopped wearing them. I also think contacts contributed to my gland dysfunction amongst other things.. I just find it interesting that if contacts was a huge factor that it would be both my upper and lower glands that would have more damage not just my lowers. I did respond really well to steroids I was on Lotamax for about 3 weeks in June and then after each IPL session I was on Prednisolone for one week. But after a while steroids made my eyes feel like they were going cross eyed and I would get a lot of pressure in my ears so I don’t know if I am a steroid responder or what but I stopped using them. But makes me think that the hospital just inflamed the crap out of my eyes and that if somehow I could get it under control then I could find some relief!

I have had exactly what you’re speaking about in both eyes, and I currently still have it in the right eye pretty bad. I describe it almost like eyelid paralysis. I want the lid to move I’m trying to make it move but it just does not want to close all the way. I’m still trying to figure out what’s causing it. Is nerve damage, is it just simply exposure from keeping the eye open at night, is it just simply inflammation, a little bit of all that. I have no clue. But that’s why keep going to doctors trying to figure out what’s going on with these eyes.

So I use the mepitac Tape from the dry eye shop. It’s the only tape I’m not allergic to. I’m still having issues with tape though by the way. I seem to get a lot of glare in my left eye when I wake up after taping Mayeye. My vision is also blurry in the morning. My corneal specialist told me it was probably because I’m cutting off oxygen to the cornea. But he also said it’s better to cover the Ivan to leave it exposed. So you know everything I do is a problem. Every cure also causes another issue.

For me, inflammation is the biggest killer. I mean it just destroys my eyes. I cannot handle the burning, it’s the worst symptom. Since my doctor found out that I was sleeping with my eyes open. For me, inflammation is the biggest killer. I mean just destroys my eyes. I cannot handle the burning, it’s the worst symptom. Since my doctor found out that I was sleeping with my eyes open. He wants me on steroids for six months to calm the inflammation and get everything working properly again. My hope is that once I stop the steroids, things don’t revert quickly back to that painful burning hell. Trying to be hopeful.